Bath day. Life with EB is very complex and challenging. No day is ever the same. We have good and bad days. We just have to go with the flow and deal with things as they come. Today has been positive... TikTok video by Darcie🦋

One of the examples of a baby living with EB. This is what I’m raising awareness for and I’m not gaining a thing I WANT to do this. These are people’s babies. I want if not them another child to have a chance. #EB #butterflychildren #debrauk #debraUS #awareness #charity

www.tiktok.com/t/ZTjjj1YMn/