Dignity is the right to live β not pressure to die
Across the country, and now in Illinois, lawmakers have advanced a so-called
"medical-aid-in-dying" bill that promises compassion and choice. The language sounds reassuring: autonomy, dignity, self-determination.
But for many disabled and marginalized people, the legislation represents the collapse of real options - not choice.
In the early hours of Oct. 31, the state Senate pushed through the End-of-Life Options for Terminally III Patients Act through rushed, opaque circumstances, leaving disability organizations and impacted communities with no time to weigh in.
Now it sits on the governor's desk. This is not how ethical policymaking works, and it reflects a larger pattern. When disabled voices are sidelined, the resulting policy cannot claim to protect autonomy or dignity.
Polling shows while Americans value compassion and bodily autonomy, support for medically-assisted death drops sharply when people learn that disabled individuals often turn to it because they cannot access housing, care and other essentials. People want fairness not coercion disguised as compassion.
Our research at Northwestern University's Center for Racial and Disability Justice shows disabled people, especially those who are poor, Indigenous, or people of color, are already offered help to die more readily than help to live.
In Canada, some have been pushed to medically-assisted death after being denied home care or accessible housing. Similar pressures are emerging in the U.S. When disability, poverty and systemic neglect make life unbearable, that is not
"autonomy" - it is abandonment.
The rhetoric around medically-assisted death frames it as a tightly regulated option for terminal illness. In reality, safeguards are eroded. Research shows physicians
routinely underestimate disabled people's quality of life, oversight is minimal, and there is no guarantee people receive palliative care or community support before being offered death.
When governments and insurers fund dying more readily than living, we must ask:
Whose dignity is being protected?
These laws also undermines suicide-prevention efforts by carving out an exception that suggests disabled lives are less worthy of saving. Research from other countries shows troubling "suicide contagion" effects when the procedure is normalized.
The answer is not expanding medically-assisted death but expanding accessible housing, community-based services, palliative care, mental health supports and disability benefits that allow people to live with dignity.
Illinois may have rushed this bill through, but Gov. JB Pritzker still has a choice. And so do we. True compassion is measured not
so do we. True compassion is measured not by how easily we allow people to die, but by how hard we fight for their right to live.
Kate Caldwell, director, Research & Policy, Center for Racial and Disability Justice, Northwestern Pritzker School of Law
The Center for Racial & Disability Justice has an incredibly compelling op-ed in the Chicago Sun Times about why #AssistedSuicide laws are bad, & asking @govpritzker.illinois.gov to veto SB 1950. #DisabilityJustice #DisabilitySky #DisabilityRightsAreHumanRights tinyurl.com/4nk7e6ru