This is terrifying as a large number of parents report having their concerns about their children dismissed by professionals. The move to make teachers the gatekeepers to neurodiversity assessment is detrimental to children. We know our children. Listen to us #phd #SEND #dyscluded
The impact of this persistent dismissal was significant. It made them feel isolated and dyscluded.
I'm still massively struggling
A roller coaster of emotion.
Everybody
Telling me
I was overegging it
I wasn't talking to anybody
What's the point?
#mothering #unpaidcarers #dyscluded #phd
On this day six years ago I was in the @britishlibrary.bsky.social to find a book chapter for my #MSc in nutrition and behaviour dissertation. #mothering #autism #restrictedeating #dyscluded @bournemouthuni.bsky.social
Several shared this experience, which also happened to me on several occasions, as the teacher calls them in to speak about their child's behaviour they are made to sit on a chair suitable for a 5 year old: I had to sit there, on the little chair, like a naughty mum. #SEND #autism #dyscluded
Saw Jenny Eclair on TV this morning who was being celebrated for her ability to find the ludicrousness in an everything. What a great coping mechanism. I think I may just try this one. Find the ludicrous in every day! #ludicrous #dyscluded #mothering #coping
It would be illegal to work that many hours
on no pay
no holiday
You've got to work when you're sick
There's no breaks.
Who would do that job?
No one would do it
No one would want to do it
You expect us to do it.
I don’t feel supported.
#unpaidcarer #mothering #autism #send #dyscluded #phd
Appalled to learn that @teamlabouruk.bsky.social are adding #VAT to learning support costs for children and young people with #SEND educated in independent schools. Adding VAT to education is bad enough but adding it to support is indefensible. #mothering #dyscluded #education
The song #truecolors resonated with my experience and that of many of the women that shared their stories for my research as it feels like we are often people that value and recognise our children’s potential:
‘But I see your true colors
Shining through’
#mothering #send #autism #phd #dyscluded
Having a child with #send is such a learning curve. We want to understand. We want to help but our ability to do this is complicated by #misinformation and #disinformation often from professionals. Every aspect is just #mindblowing. #mothering #autism #dyscluded
A dominant feature in all of the stories my participants contributed to my research about their experience mothering autistic children was the uphill struggle these women faced as they fought and battled to secure support for their children. #mothering #autism #send #dyscluded #unpaidcarers #phd
Back to my collage…the plaster reflects that I felt I couldn’t make things better. That was really difficult to deal with. I don’t mean in terms of curing them but everything…I didn’t want them to face the challenges they did. #mothering #autism #send #unpaidcarer #dyscluded #phd
My research was auto/biographical and we shared feeling a physical empathic pain when our children had experienced restraint at school. “It hurts your heart”. We were all desperate for it to stop. #dyscluded #phd #mothering #autism #send #unpaidcarers #nosupport
In addition to poetry and collages, I created a research playlist. This features music that represents my research or the stories participants shared. Have a listen at
open.spotify.com/playlist/7r7... #phd #mothering #dyscluded #creativeresearchmethods #mothering #autism
After writing a bit of auto/biographical poetry I saw the potential of using biographical poetry to analyse the stories the women contributed to my research so developed (what I have called) b(i)o-poems. Adapted from the technique for creating ipoems. #phd #dyscluded #poetry #send #autism #mothering
Happy to be here. My profile collage is the collage I produced for my #PhD to represent my #mothering experience disrupted by cultural narratives of #mothering, #autism, #disability #neurodevelopmentaldisorders #unpaidcarers #truecolours #love #dyscluded
Feeling Dyscluded and Dysclusion was one of the themes arising from my #phd research which aimed to understand the experience of women #mothering autistic children. It refers to flawed/dysfunctional inclusion. #autism #universityofplymouth #dyscluded #phdresearch
Happy to be here. My profile collage is the collage I produced for my #PhD to represent #mothering experience disrupted by cultural narratives of #mothering, #autism, #disability #neurodevelopmentaldisorders #unpaidcarers #truecolours #love #dyscluded
