Not sure what website says, to be honest. But looks like an overview of #raredisease talks at #icord2017 in #beijing

Shelley Zhou's advice to families. #raredisease #icord2017 #icord

Shelley Zhou's advice for #raredisease patients. #icord2017 #icord

Powerful patient speaker, Shelley Zhou! #icord2017 #icord #raredisease #bethlemmyopathy

Learning about the undiagnosed disease network @UDNconnect at #icord2017. Very important initiative in the #raredisease community!!

Barbara Wuebbels from @AudentesTx: "Veterinarians keep large databases of animals with rare disorders." Interesting. #icord2017 #raredisease

Jim Green from @NiemannPickUK asking "what does it mean to be rare?" #icord2017 #RareDisease

Canada's champion @Durhane from @raredisorders @rarediseasesint speaking about #rarediseases & #networks while holding court at #iCORD2017.

#iCORD2017 #RareDisease

Photos from 12th Annual #ICORD Conference & 6th China #RareDisease Summit. #iCORD2017

#European Platform For #RareDisease Registries - #iCORD2017

Major challenges in developing novel #bioinformatics tools. #icord2017 #raredisease

Challenges of #raredisease in #China. #iCORD2017

Love this quote!: "Statistics are people with the tears wiped off"
#raredisease #iCORD2017 #data #patients #health #advocacy

A better understanding of #raredisease is changing #publichealth. #iCORD2017

Professor Harvey Lodish speaks about work being done on Dravet cc: @curedravet @DravetUK #icord2017 #raredisease

Harvey Lodish from @MIT @WhiteheadInst with the keynote address at #icord2017 #raredisease

Rare disease patients in China struggle to find a high quality of life. #icord2017 #raredisease

Kevin Huang is an absolute force for the #raredisease community. Such an inspiration. #icord2017

"Rare disease is one of the greatest challenges confronting human beings...60 million rare disease patients in China" Wow!! #icord2017

"By 2030 we will create a healthy China... this of course includes the health of its citizens" #icord2017 #RareDisease

Starting my #iCORD2017 thread. Looks like it is going to be a big crowd! #RareDiseases

I will try to Tweet during the #iCORD2017 conference if I can. It may be hard given that Twitter is blocked here, but I will try :)

In Beijing for 12th Ann'l ICORD Conf #iCORD2017 & 6th China #RareDisease Summit. Lots of #volunteers, great speakers, and ~600 attendees!

In Beijing to speak @ #iCORD2017. Registration today and then two jam-packed days of learning & connecting ahead! #raredisease #mucklewells