On November 10th, I went under the surgery where the risks were as massive as the tumor itself. That was the start of a 40-day hospital marathon. Liver failure, a second emergency surgery, chest tubes, and endless blood transfusions. I am home now and in my 3rd month of recovery. #leiomyosarcoma

Ich habe gerade einen Workshop für 2027 festgemacht & naja, das sind noch mindestens 4 CTs bis dahin. 😬

#RareCancer
#Sarcoma
#Leiomyosarcoma
#palliativ

'I thought it was just menopause - then doctors said I had months to live' Brave mum Gail Redpath is undergoing palliative chemotherapy after doctors found a golf ball-sized growth in her womb - which was a very rare form of cancer

Well done Gail for sharing your devastating story to raise funds and awareness for Leiomyosarcoma Research UK
#leiomyosarcoma #lmsruk #sarcomaresearch

www.mirror.co.uk/news/health/...

Can patients with high-risk retroperitoneal #sarcoma benefit from neoadjuvant chemotherapy? The international EA7211/STRASS 2 #ClinicalTrial, led in the US by Dr. Kenneth Cardona, aims to find out. More: bit.ly/EA7211 #leiomyosarcoma #liposarcoma

Yesterday a decision was made to attempt surgery of my liver sarcoma. Despite the size and the complications for this surgery there are no other options unless I give up trying. That is something I won't do. Scared and anxious. I got the call it is happening on Monday.
#leiomyosarcoma

This sums up my last 4 months. Tomorrow is the day I will know what is next for me. I dont know how to prepare for the decision about my future.
#sarcoma #leiomyosarcoma #cancer

I had my post radiation MRI. My tumor hasn't changed in size. Things are not looking good. In two weeks a decision will be made, attempt surgery, attempt chemo, although it is known that my cancer is chemo resistant, or pallitive care.

#liversarcoma #leiomyosarcoma #cancer

I have worked throughout the last 4 months since I found out about my cancer, leiomyosarcoma. I worked through 25 rounds of radiation. I will continue to work until I can't and then I dont know how I will manage...
#Leiomyosarcoma #workingwithcancer

25 rounds of radiation completed. Exhaustion is a daily battle. Some days, I am hopeful, and others I can't put the fear aside. I hold on to my privacy, not wanting everyone to know that I have rare and aggressive cancer. 3 weeks and I will find out what's next.
#liversarcoma #leiomyosarcoma

My world was flipped 3 months ago. An ultrasound found a massive liver tumor. In July, a biospy confirmed the worst. It is a rare, hard to treat cancer on my healthy liver. #Leiomyosarcoma

Primary Pulmonary #Leiomyosarcoma: A Case of Prolonged Survival With #Radiotherapy and #Pazopanib in a 90-Year-Old Female
onlinelibrary.wiley.com/doi/10.1002/...

Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!

#SarcomaAwarenessMonth2025

As a person with a rare cancer that has no real treatment, a lot of the chemos are off-label, and already in palliative care, i cant stress enough how much i'm disgusted with that. The big money in the USA in cancer research was kinda my last straw.

#RareCancer
#Leiomyosarcoma
#uLMS

Well done Donald! #sarcoma #sarcomaawareness #leiomyosarcoma #sarcomafundraising

Foto in der U-Bahn aus Fluky's Perspektive. Zu sehen ist ein Stück Sitz, ein Stück Trolley, ein Stück Rucksack und Flukys Hand, die auf dem Rucksack ruht.

Auf in den stationären Krankenhausaufenthalt Nr. 14 in 31 Monaten seit Beginn meiner Krebs-Journey.

#CancerSucks
#RareCancer
#Sarkom
#Leiomyosarcoma
#uLMS

Ja, zum Beispiel mich ganz konkret.

#RareCancer
#Leiomyosarcoma

My chemo meds during the last 2.5 years plus Cyberknife Radiation have cost tenthousands of euros.

What do I pay?

Occasionally 5 Euros here and 10 Euros there.

I'm thankful for the solidarity system in Germany.

#Sarcoma
#palliative
#RareCancer
#Leiomyosarcoma

Leiomyosarcoma Research UK Home Supporting research and education to improve treatment options and outcomes for Leiomyosarcoma (LMS) patients. - Leiomyosarcoma Research UK Home

Please take a look at the first dedicated #Leiomyosarcoma focused charity in the UK. Changing the outlook for current and future patients. #oncosky #cansky
#sarcoma #rarecancer #cancerresearch

lmsruk.org

Brilliant news, thank you. A fantastic discussion and it passed! As a patient with #Leiomyosarcoma this means so much to our community.
#oncosky #cansky #rarecancerbill

If you or a loved one have been affected by a rare cancer please urge your MP to attend and support the second reading of this bill on Fri 14th March. #rarecancersbill #rarecancers #braintumour #sarcoma #neuroblastoma #leiomyosarcoma #panreaticcancer #oncosky #cansky #cancerresearch

The Afsar Family Page for Leiomyosarcoma Research UK Help Kate Afsar raise money to support Leiomyosarcoma Research UK

Please support this fundraising page for #Leiomyosarcoma Research UK. #rarecancer #sarcoma #uLMS #cansky #cancerresearch #thankscancer

www.justgiving.com/page/kathari...

New video Living with Cancer and Leiomyosarcoma is out youtu.be/i7BeHhJENnI #MLS #KickCancer #cancersucks #livingwithcancer #leiomyosarcoma Share with anyone in your soccer family who is struggling.

Why Cancer Anxiety Brain Gotta Be So Rough... I'm not a fan.

I am not at peace with dying.
Being raised in a high control religion that is works based can fuck up a kids' head. It sure fucked mine up anyway.
Not gonna lie, I'm pretty terrified at the thought of dying.

graceandmagic.substack.com/p/why-cancer...

#cancer #scanxiety #leiomyosarcoma #hope

Is your family going through a cancer ordeal? Follow this series on Living with Cancer. youtu.be/sKs45VHO4ik #mls #kickcancer #soccerfamily #cancersucks #LivingwithCancer #leiomyosarcoma #usmc You can find useful info in the links of each video. Please share.

Know someone with cancer? Have the caregivers watch this series. youtu.be/-FPwu-QTCfs #cancer #leiomyosarcoma #sarcoma #mls #kickcancer #family #usmc Give it like and share if you can.

Cancer Diagnosis? What to do Week One youtu.be/BMwsCWKazfw #cancer #cancersucks #mls #kickcancer #usmc #livingwithcancer #leiomyosarcoma Living With Cancer and Leiomyosarcoma Episode 5

Living with Cancer Episode 3 AND 4 are now up after a glitch. Tune in and subscribe if you know someone who could benefit from this story
#cancer #livingwithcancer #family #sarcoma #leiomyosarcoma #cancersucks #charity #fightingcancer
#kickcancer #mls #USMC

youtu.be/TkCfiL_V7nk

Living with Cancer Episode 3 is now up after a glitch. #cancer #livingwithcancer #family #sarcoma #leiomyosarcoma #cancersucks #charity #fightingcancer #kickoutcancer #mls
youtu.be/TkCfiL_V7nk

Episode 2 of Living with Cancer and Leiomyosarcoma. For anyone who has it or has a loved one going through it. Not just for our soccer friends, pass it around youtu.be/KnjCVu0tVlE #Cancersucks #livingwithcancer #mls #soccer #leiomyosarcoma