A graphic featuring a blue watercolor background with the white relief of a world map overlaying it, surrounded on the top and bottom by the logos of the SPAGN member groups. The caption reads: "Nearly 70 member groups. Learn more and join our global community."

We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit bit.ly/SPAGNmembers to learn more about membership.

#SarcomaAwarenessMonth2025

A graphic featuring a photo of two people walking together, washed in blue, with an outline of a globe framing their bodies and the SPAGN logo in the center. The caption reads: "We are rare, but not alone".

Sarcomas can be isolating, but you are not alone. Three tips:
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers

2️⃣ Join patient support groups on social media

3️⃣ Share your story, what questions to ask, and what worked for you.

#SarcomaAwarenessMonth2025

A graphic featuring a collage of photos of monuments and homes lit up with yellow lights. The caption reads: "Light up for sarcoma. TONIGHT, post your photos of local landmarks, homes, and spaces lit up with yellow lights to show everyone struggling with sarcoma you are not alone."

Our friends at @curesarcoma.bsky.social have coordinated the #LightUpForSarcoma campaign for years. Now, it's going global. Join our members & post a photo of local landmarks and homes lit up with yellow to bring awareness to these rare cancers. You are not alone.

#SarcomaAwarenessMonth2025

A graphic featuring a black and white photo of a group of women walking through the woods with their arms around each other supportively. The caption reads: "Sarcoma can be a lonely road. Tag someone who walked with you."

Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛

#SarcomaAwarenessMonth2025 #RareButNotAlone

Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.

#KnowYourNormal #SarcomaAwarenessMonth2025

Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.

#KnowYourNormal #SarcomaAwarenessMonth2025

If a lump is growing, even if painless, ask for imaging. If bone or soft-tissue pain wakes you at night or lingers longer than a month, push for an answer. These red flags can lead you to a critical early diagnosis.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

A graphic for Sarcoma Awareness Month 2025 featuring a row of red flags set against a gray sky. The caption reads: "Sarcoma Red Flags. Any lump 1-2 in (about 5cm) or more, even if painless, situated in the muscle or soft tissue. Any palpable bone lesion. Unexplained pain especially at night, if lasting more than a month. Learn the signs, insist on answers."

HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma & help your patients get clear answers, quickly.

Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

Wilker is an #LMS patient from Brazil, an oncology pharmacist and an advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to his diagnosis and the emotional toll that led him into patient advocacy.

#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday

💜 LMS patients, share your story:

When did you first sense something was wrong?
Who helped you keep pushing for answers?
What do you wish every newly diagnosed patient knew about LMS?

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal #PatientAdvocate #Sarcoma

Together we can shorten the road from “Something’s wrong” to an accurate diagnosis—and open the door to timely life-saving treatment.

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #PatientAdvocate #Sarcoma #KnowYourNormal

4/4

Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story.

#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma

Tasha of @curesarcoma.bsky.social had a sore throat that refused to go away. They ruled out COVID and strep before a lump began to grow. Guess how many doctors she had to see before she got a diagnosis? Watch and find out.

#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma

A graphic promoting GIST Awareness Day for July 13th. The image includes a large purple ribbon with the caption "Do you know the signs of GIST?" and "July 13th is GIST Awareness Day, Sarcoma Awareness Month 2025."

Gastrointestinal Stromal Tumors can present as ulcers or reflux. Look for unexplained GI bleeding, fatigue, persistent fullness, or abdominal pain. If GIST is suspected, ask about mutation profiling. Share your GIST story below.👇
#SarcomaAwarenessMonth2025 #GISTAwarenessDay

Early symptoms of PEComa may include:
• A lump or swelling
• Ongoing bloating or pressure
• Pain in the belly or pelvis
• Irregular bleeding
• Chest pain or cough
• Fatigue or unexplained weight loss

#SarcomaAwarenessMonth2025

2/3

A graphic with the image of a golf ball and the logo of Sarcoma Patient Advocacy Global Network overlaid. The caption reads: "Follow the 'Golf Ball Rule'. Any lump the size of a golf ball needs to be thoroughly checked out to rule out sarcoma." The measurement of the golf ball shows as 4.3cm.

The golf‑ball rule: any lump 4-5 cm or larger—especially if deep and growing—deserves imaging. If you find a lump like this, or you’re experiencing night bone pain, insist on scans and a sarcoma‑specialist referral.

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

A graphic with a compilation of 4 black and white images. Pictured clockwise from the top left: A child with cancer is seated on a sofa. An older male patient lying in a bed looks out of a window. A woman lying in a hospital bed speaks to a man in hospital scrubs seated next to her. A doctor speaks with a patient. The caption reads: "You have a right to CLEAR answers. Know YOUR normal."

Ever had a doctor tell you “It’s nothing”? What did you do? Seek a second opinion; keep a diary of symptoms; or bring a partner to your next appointment? Share how you made yourself heard.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal

A graphic promoting Wear Yellow Wednesday, global day of solidarity with a photo of a woman wearing a yellow sweater holding her arms up in celebration and smiling. Behind her is a bright yellow wall.

Drop that selfie in yellow 🟡! Let’s fill up the feed with sunshine so no sarcoma patient feels alone. Tag #SarcomaAwarenessMonth2025 and tell us who you’re wearing yellow for.

#WearYellowWednesday #SarcomaAwareness

A collage of 6 photos of members of the SPAGN team dressed in yellow and holding sunflowers for Wear Yellow Wednesday.

We #wearyellow to show our solidarity with everyone impacted by #sarcoma. Whether you are a patient or a caregiver, know that you are not alone in your journey.

#SarcomaAwarenessMonth2025 #PatientAdvocacy

July is #SarcomaAwarenessMonth2025. Wear something yellow today 7/9 to show your support! #CanSky

Constant or recurring pain is a sign that something is not normal. Don't settle for half answers. Ask for all the tests you need to get a clear diagnosis and a path forward.

Many thanks to Kelli of Sarcoma Cancer Ireland for sharing their family's story!

#SarcomaAwarenessMonth2025

For years, Kelli's husband was told his back pain was just muscular tension and he was advised to get massages. Eventually Kelli pushed him to get the symptoms checked further and a massive tumor was discovered.

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

Lakshay of Sachin Sarcoma Society developed extreme pain in his leg while doing sports at university. The pain kept him up at night, so he went to the doctor. It took several doctors to get to the bottom of it. This is his story.

#SarcomaAwarenessMonth2025
#KnowYourNormal

Trek woensdag iets geels aan, maak een selfie en tag ons!

💛 Toon je steun aan sarcoompatiënten.

Samen laten we zien: jij bent niet alleen.

#cumcura #sarcomapatients #SarcomaAwarenessMonth #SarcomaAwarenessMonth2025 #SAM2025

Dr. Roohani shares how sarcoma care must center the whole person. Treatment success is not just about tumor control. It is also about supporting long-term health, dignity, and daily life after cancer.

#SarcomaAwarenessMonth2025 #Sarcoma #PatientAdvocacy

How to improve quality of life during and after radiotherapy? Sarcoma practice and research in large university clinics in Toronto and Berlin - SPAGN - Sarcoma Patient Advocacy Global Network The winner of this year’s research grant of the German Sarcoma Foundation, Dr. Siyer Roohani, decided to go to Canada to deepen his sarcoma expertise. A soon-to-be radiation oncology specialist for sa...

🎗️ What does quality of life mean during and after radiotherapy for sarcoma?

In a new interview, SPAGN speaks with Dr. Siyer Roohani, a radiation oncologist based in Berlin who just concluded a research project in Toronto.

Read more: ➡️ bit.ly/SPAGNblog_QoL
#SarcomaAwarenessMonth2025

The first sign of #sarcoma isn't always obvious. Carol Haslam of Sarcoma Cancer Ireland said she noticed "a bit of an ache" in her hand. When she sought care, she was referred to a specialist who discovered she had #SynovialSarcoma.
#SarcomaAwarenessMonth2025
#SarcomaSignsAndSymptoms
#KnowYourNormal

A graphic with an image of a man clutching the side of his abdomen in pain. The caption reads: "Know YOUR normal. When something feels off, get it checked!"

Share the moment you first thought, “This isn’t normal.”

Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.

#SarcomaAwarenessMonth2025 #KnowYourNormal

A graphic promoting "Wear Yellow Wednesday" on July 9th in the style of a comic book panel.

Next Wednesday we’ll flood feeds with yellow to show sarcoma fighters they’re seen. Snap something yellow 🟡, tag us, and let’s paint timelines bright!

#SarcomaAwarenessMonth2025 #PatientAdvocate #Sarcoma

Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!

#SarcomaAwarenessMonth2025