News Article - MEAction UK MEAction UK - Supporting people with ME

Update: DHSC wrote to #MEActionUK yesterday to say that they have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest.

News article here:

meaction.org.uk/news/2026/03...

@tessamunt.bsky.social

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.

#MEActionUK emailed @NHSEngland about incorrect info on its ME/CFS webpage. Our request will be 'added to their backlog for a member of the website team to pick up when there is capacity'
bit.ly/3NoAFRF
#MyalgicEncephalomyelitis #HealthEquality

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.

#MEActionUK emailed @NHSEngland about incorrect info on its ME/CFS webpage. Our request will be 'added to their backlog for a member of the website team to pick up when there is capacity'
bit.ly/3NoAFRF
#MyalgicEncephalomyelitis #HealthEquality

Ode to My Cane by M.S. Marquart It started with an “I voted” sticker. I stuck it on my cane, and soon came my first cane compliment, a jolt that echoed throughout my body. Could it be possible to be proud of my cane? ...

It’s #DisabilityPrideMonth, and I’m grateful to HAD for publishing my poem “Ode to My Cane" recently. @havehashad.com

www.havehashad.com/hadposts/ode...

#MillionsMissing #meaction #meactionuk #meactionscotland
#pwme #mecfs #crippoetry #crippower #disabledpoets #disabilitypoetry #poetry

Louder! | Issue 14 | Poetry Magazine | Free the Verse What do you want to shout about? The poems in this issue talk about what it means to make noise, and what it means to stay quiet.

It’s #DisabilityPrideMonth, and I’m grateful to Free the Verse for including my poem “Protesting from Bed” in their latest issue.

It was inspired by the #MillionsMissing protest hosted annually by #meaction #meactionuk #meactionscotland

#pwme #mecfs #crippoetry #crippower #protectmedicaid #resist

There is a drawing of a woman collapsed on the floor. The title says “it (literally) took all the strength I had” The caption says - #ME/cfs - DEFINITELY NOT ALL IN THE MIND!

#ThereForME
#ME #MEcfs #LC #PEM #ChronicIllness #ChronicIllnessMemes @WesStreeting
@theguardian.com
@davetuller1.bsky.social
#ActionForME
#Icaireland.bsky.social
#MEActionUK
#Disability

#ActionForME
#ThereForME
@WesStreeting
@theguardian.com
@davetuller1.bsky.social
@lcaireland.bsky.social
#MEActionUK
#25%MEgroup