#nemalinemyopathy

We're looking for children & adults with Nemaline Myopathy to join a study to collect data on the natural progression of the condition.

Help us understand Nemaline Myopathy to be ready for therapeutic developments

See more at bit.ly/3HeoRPc

#NemalineMyopathy #RareDisease

A Foundation Building Strength for Nemaline Myopathy We are the leader in funding Nemaline Myopathy research, dedicated to finding treatments for the rare muscle disease.

This article was very fittingly published during Nemaline Myopathy Awareness Month – please take a look at buildingstrength.org for more information on how to get involved. 💙
#NMAwarenessMonth #NemalineMyopathy #AFBS (6/6)

Grateful to be working with a physical therapist who specializes in Neurology…I now know what to do on my own at the gym between visits with her. May is #nemalinemyopathy Awareness Month.

A Foundation Building Strength for Nemaline Myopathy We are the leader in funding Nemaline Myopathy research, dedicated to finding treatments for the rare muscle disease.

This article was very fittingly published during the Nemaline Myopathy Awareness Month – please take a look at buildingstrength.org for more information on how to get involved 💙
#NMAwarenessMonth #NemalineMyopathy #AFBS (5/5)

May is Nemaline Myopathy Awareness Month (I recently learned this). I am mostly in gratitude, because if you click on the #nemalinemyopathy you’ll find young children in wheelchairs, many on respirators. I have lived to be a 63-year-old man. Self-care IS #resistance

Wonderful last meeting for 2024 b/t our team and that of Prof David Mack @UWash - modelling & treatments for #nemalinemyopathy. This work is supported by A Foundation Building Strength and Hearts & Minds and @perkinsinstitute.bsky.social #myopathy #iPSC #organoids