In our final episode of this season Dani & I talk about words used when someone may be approaching the last days of life.
speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social #AdvanceCarePlanning #PEoLC #EoLC #OrdinaryDying
From Pathways to Personalised Care: Rethinking Language at the End of Life
In our penultimate myth busting series, we explore the word “pathway”. Listen in & share the conversations
speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social
#OrdinaryDying #AdvanceCarePlanning #PEOLC #EOLC
🚨Eating & drinking in last days of life
An emotive subject, important to explore & the focus of latest episode.
🎧https://speakforme.co.uk/podcast-episode-151
@drkathrynmannix.bsky.social
#OrdinaryDying
#AdvanceCarePlanning
#PEoLC
#EoLC
Debunking Myths About Dying
✔️Care in the last days of life
✔️Terminology
✔️Challenges of identifying this phase of life
+ resource & info about #OrdinaryDying
▶️ TY for your leading wisdom in this area @drkathrynmannix.bsky.social
🎧https://speakforme.co.uk/podcast-episode-148
#AdvanceCarePlanning
I still feel new in this space! I'm looking to connect, learn & share. Any tips on great communities & how to use this growing space - I'd love to hear from you.
#AdvanceCarePlanning #PEoLC #OrdinaryDying #EoLC #ImportantConversations #WhatMattersMost
It's a terrible title, isn't it?! Chosen by someone trying to lure in listeners, I suppose.
But it's helped lots of people, many of whom had it played to them by their palliative care nurse or GP.
#OrdinaryDying
Thanks Trisha and @timmorton2.bsky.social
We've got to keep talking about #OrdinaryDying, because the public discourse is way more fearful than it is well-informed.
Photo of a Facebook comment to me from palliative care nurse Anna. It reads: I’m a palliative care nurse. I had a dying patient last week whose relative told me ‘I know what to expect I’ve read a fantastic book by Kathryn Mannix’ it was a perfect way to frame the conversation I was having. And they were not afraid of what was to come. Thank you
This is why I do what I do.
Shared with permission from Anna.
#MakingADifference
#OrdinaryDying
The stories of the ordinary dying doesn't win votes but is my day to day reality and it is important those coming to the end of their life know that it is likely to be theirs too. #ordinarydying
We need to start by explaining #OrdinaryDying (e.g. bit.ly/TheosDFB)
Then we can talk about how we maintain symptom control once the dying person can't reliably waken to swallow meds towards the last few days of life - when syringe driver maintains comfort but doesn't shorten life.
How do we enhance public understanding of #OrdinaryDying?
#PalliativeCare peeps, will you be at Palliative Care Congress 2025? Who has ideas & experience about public engagement?
Suggest wise voices & effective campaigns from around the globe - there's lots to learn if we listen to each other.
A purple and white poster containing phrases to help HCPs and/or patients and families understand why someone may need the protection of a DNR/DNACPR decision.
I maybe should have mentioned that #havetheconversation is a big interest of mine…
CPR is not a treatment for #ordinarydying. Please, please sort out the protection of a DNACPR/DNR for someone whose life is coming to its end, before it’s too late.
It's such a tricky one to navigate: almost always the best plan is to bask in that unexpected & short period of lucidity & extra energy. But it triggers doubts about the overall deathwards trajectory in companions & staff alike.
We've forgotten the features of #OrdinaryDying.
I think it's essential that young people become aware of the process of #OrdinaryDying in a safe, thoughtful space.
Should be part of National Curriculum, with age-appropriate sessions preceded by parent/carer info sessions so that adults are primed to continue discussions at home.