Green: …and pushing the concept of autistic self-advocacy as "dangerous anti-science"—when [the #profoundAutism people's] own comment sections are full of anti-vaxxers and pushers of unproven untested potentially dangerous autism treatments. 61/
Green: I don’t see easy read format literature coming out of these [ #ProfoundAutism] groups. I see scientific reports from people who are not scientists. I see interviews and articles that seem more concerned with decrying the neurodiversity movement... 60/
We don't need a #ProfoundAutism diagnosis. Instead, "go find the people in your state fighting for Medicaid. Those are your ppl. The DSM is not going to save your child or make your life more functional. Medicaid funded HCBS will." TY, Neuromess.
www.facebook.com/Neuromess.bl... #autism #disability
Green: [Alison Singer] even listed her daughter’s disabilities at the top with separate words that describe perfectly her daughter’s disabilities. No, she wants to just call all of that profound autism. Lumper.
#autism #disability #profoundAutism
44/
Singer: “Families like mine who face #profoundAutism have advocated for this distinction for quite some time. We strongly believe the breadth of the autism spectrum has become unwieldy.”
Green: Unwieldy? Whoa there! Like a wild horse. What kind of autism have you got? Mine’s unwieldy. Oh dear. 41/
Green: “Profoundly autistic” would misleadingly refer to ppl who actually have profound impairments that are not autism specific, while not nec. having any particularly extreme autistic characteristics. #ProfoundAutism is thus defined not by autistic features but by ID or language disability.” 40/
Green: per The Global Autistic Task Force on Autism Research:
“The term [ #ProfoundAutism] would not be sufficient to steer service provision or research efforts, just as functioning levels never were. It provides no useful info to others who may need to interact with the autistic person." 38/
Green: As far as the rest of the Lancet commission report goes there are some good bits. Like they go on about how it’s important to include autistic self-advocates and to work towards happy healthy lives for autistic people, which I assume had Alison raging. How dare they? #ProfoundAutism 37/
Green: And also, those requirements, the ones that [the #profoundAutism people are] suggesting—needing access to 24 hour care or being unable to take care of basic adaptive needs, for example—that is not synonymous with intellectual disability or language disability. 32/
Green: #ProfoundAutism is thus defined not by autistic features, but by ID or language disability. But what is wrong with saying "autistic with intellectual and language disability"? Which is what we do now. And if it’s not defined by autistic traits, then why is it a different kind of autism? 32/
As harmful autism disinformation campaigns go, grievance parents‘ attempt to break off “ #profoundAutism” as a separate diagnosis via smearing #neurodiversity advocates is notable—mostly for its spitefulness. Select observations by @embergreen.bsky.social:
thinkingautismguide.com/2026/03/debu... 1/
5am. The man hasn’t slept yet. TBH, hanging in there through menopause is harder than you’d think. #SpecialNeedsMom #profoundautism #adultautism #tired
These are not people who are forefronting their autistic loved ones' needs. There's a reason we also refer to #ProfoundAutism advocates as "grievance parents":
thinkingautismguide.com/2022/11/grie...
“I also don’t think there is any shorthand label that would reduce the need for the lengthy explanations that I am now well practiced at providing whenever I introduce him.”
open.substack.com/pub/joyofj/p...
#autism #ProfoundAutism #neurodiversity
“the reason I am not arguing for J to be “profoundly autistic” is partly because I believe it’s already obvious that I have a significantly disabled child who needs 24-hour support. Anyone can see this within a couple of minutes of meeting him.” -Louise Elliman
#ProfoundAutism #neurodiversity 1/2
If the U.S. government truly wants to invest in ways to help autistic people and their families—and not in the cures and quackery flogged by IACC members, or the hateful " #profoundAutism" parent agenda of the I-ACC, then this is where to start:
www.squidalicious.com/2026/03/my-c... #IACC #autism
"If you think that non-speaking autistic people do not have a voice it’s because you’re not listening." TY @embergreen.bsky.social.
#autism #neurodiversity #ProfoundAutism
SEND campaigners to organise a nationwide demonstration to defend legal rights www.learningdisabilitytoday.co.uk/news/send-ca... #autism #profoundautism
By creating this new I-ACC autism committee, Alison Singer and her " #profoundAutism" campaigners can finally, openly exclude autistic advocacy and rights from research priorities. They can focus on cures and treatments. This is not what autistic people want or need. The I-ACC is a bad project. 4/4
Alison Singer & her " #ProfoundAutism" campaigners were really mad about the increased autistic IACC representation in 2022, because they wanted more "profound autism" parents. Even though other IACC parents/siblings *did* have high-support autistic loved ones.
www.ncsautism.org/blog//select... 3/
Another profound side eye at the #profoundAutism lobbyists—as yet another ND person whom you call “fine” because they could attend college is instead profoundly hospitalized because of insufficient supports. Stop making supports a contest, you ghouls. All autistic people need and deserve more help.
Don't fall for the fabricated label "profound autism." Instead, get your information about autism and disability from those communities—where people will think you or your kid are awesome, and will want you to feel the same way.
#autism #ProfoundAutism #neurodiversity #autistic #parenting
This latter condescending interpretation served as ammunition for Grievance Parents* who are thrilled about the “ #profoundAutism” label (is it to resonate socially?).
*Parents who prefer to gripe about autism instead of learning how understand how to support their autistic kids.
20/
Also not helpful: Some #ProfoundAutism -pushing parents of autistic people with complex support needs who seem to want to foreground their grievances more than anything else, also tend to dismiss autistic people who speak for themselves—especially if those autistics are self-diagnosed. 17/
And yes, autistic people with intellectual disability and language impairment were included in the "four subtypes" autism analysis. In fact, the list of features that have been shoved under the “ #profoundAutism” umbrella were split into two separate subtypes in that genetics study. #autism 16/
@ejwillingham.bsky.social also notes "that in the much-hyped genetics study characterizing 'four subtypes' of autism—which had important limitations and a troubling fuzziness—a subtype that did not emerge in that analysis was one that even hinted at the contours claimed for #profoundAutism.” 15/
"Nor is it clear why the presence of co-occurring disabilities like intellectual disability or speech apraxia should result in a different label [like #ProfoundAutism ], when co-occurring disabilities are common in autistic people and already accounted for by the DSM." 14/
"—for example, there are many autistic people who speak or who have higher IQs but who require around-the-clock services, and there are autistic AAC users who live independently."
#ProfoundAutism #neurodiversity #autism
12/
@autisticadvocacy.org's clear response:
" #ProfoundAutism" is just an attempt to rebrand the same harmful notion. The reality is that autistic people, just like people with Down Syndrome or Cerebral Palsy, have a wide range of abilities and support needs, for lots of different reasons." 10/
…along with publication of a thrilled-sounding op-ed the ASF founder wrote. No surprise really, as she was a member of the Lancet commission, and once she got #ProfoundAutism into the report, she was free to run around wedging it into every news story she could.
www.statnews.com/2021/12/07/l... 9/
