Potocki–Lupski Syndrome (PTLS) is a rare genetic disorder caused by a duplication of genetic material on the short arm of chromosome 17 (17p11.2).
3/8 is World #PTLS Awareness day.
Find info at ptlsfoundation.org
You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
These will be some of the #children hurt by the #Trump administrations #callousness. #PTLS #Potocki-LupskiSyndrome #WorldAwarness day #March8,2025 #RareGeneticDisorder
My daughter was born with PTLS, please help to #SpreadtheWord about this condition.
anydayguide.com/calendar/6258
These will be some of the #children hurt by the #Trump administration. #PTLS #Potocki-LupskiSyndrome #WorldAwarness day #March8,2025 #RareGeneticDisorder
My daughter was born with PTLS, please help to spread the word about this condition.
anydayguide.com/calendar/6258
I’m not a video editor, just bored. I say bad words a lot. #practicemakesbetter #ptls #nsfw
"You are a part of Pat's legacy, you are a part of that story, a part of the ripple effect of what we can all do in this world. You are making a difference, and you always can make a difference." - Coach @jwelter47
@pattillmanfnd #TillmanHonors #PTLS
"My job as a coach is to put you in a position to win. And I'm only as good as your performance." - Dr. @jwelter47, first female coach in the @NFL
@pattillmanfnd #TillmanScholars #PTLS
"I admire the ethic that runs through the #TillmanScholar program and the ethically-minded leadership that the scholars are devoting themselves to. The country desperately needs the kind of leadership you are cultivating." - @JusticeHarvard
@pattillmanfnd #PTLS #leadership
"It's not inequalities of income alone, but the inequalities of esteem, of respect, that have polarized politics." - @JusticeHarvard
@pattillmanfnd #TillmanScholars #PTLS
"We have to challenge the idea that people succeed on their own, that success is one's own doing. That the rich are rich because they are more deserving than the poor. The meritocratic hubris drives us apart by prompting understandable resentment." - @JusticeHarvard
#PTLS
"Chances are not truly equal in American society. We like to think of our society as open to upward mobility but as a general matter, ... children born poor are likely to stay poor. The chance of rising are only 1 in 15-20." - Michael Sandel
@pattillmanfnd #TillmanScholars #PTLS
"Those who've landed on top have come to believe that their success is their own doing, a measure of their own merit, and that those who struggle those who are left behind must deserve their fate as well." - Michael Sandel
@pattillmanfnd #TillmanScholars #PTLS
"If we can incorporate the total self - past, present, and future of finances - it will go along way into making life better for everybody.”
2013 Tillman Scholar Mike Kothakota on how to approach finances in these uncertain times.
#PTLS #TillmanScholars #LeadershipMatters
"I'd never send someone out, wait for them to get lost, and then send help. What if we gave them the map up front?"
2016 Tillman Scholar @skgallagher16 talks about the 'Trauma of Freedom' in military transition.
#PTLS #TillmanScholars #LeadershipThroughAction #LeadershipMatters
Who says you can't engage a community of distributed leaders during a pandemic? Round 2 of the Pat Tillman Leadership Series and our #TillmanScholars are getting it done, weighing in on the role of police forces in a racially and economically just society. #PTLS
"The toothpaste doesn't go back in the container." @thomaschattwill on the need for a 'my bad' option online, and how we must push against social media's tendency toward piling-on without seeking genuine discussion.
Pat Tillman Leadership Series, Round 2. #PTLS #TillmanScholars
