Poster type picture with zebra in the middle. Text says: 80% of rare diseases are genetically based. Many rare diseases result in premature death of infants and young children or are fatal in early adulthood. Families and private foundations provide about 3% of all medical research funding in the US. 90% of the healthcare providers must treat the majority of rare disease patients with non-FDA approved drugs. 1 in 10 Americans have a rare disease, 30 million people have a serious lifelong condition. More than half are children. Holding hands, they would encircle the globe about 1.5 times. 7,000 rare diseases exist with less than 500 FDA approved treatments. 5% of rare diseases have treatments.
Tomorrow is a very special day for me and to so many others. I didn't really understand rare diseases until I found out that I have one. It nearly killed me in 2018. I spread awareness because some of these are super rare, just a few patients, so I speak up for them all. 💜🦓🔬💜 #RareDiseaseTruth
