🎓 La grande journée est arrivée ! ✨Lancement de la #RDD2025 par le Président de l’UTT, Pr.Christophe Collet. Nous célébrons aujourd’hui vos réussites, vos parcours inspirants et vos projets d’avenir. 🚀 #RDDUTT2025
#UTTroyes #Ingenieur
What drives someone to spend their career solving rare diseases? In Ep. 3 of Rare Disease, Real Progress, researchers and clinicians share what keeps them going—and how collaboration fuels discovery.
🎧 bit.ly/3YUmKpz
#RareDisease #RDD2025 #rarediseaseawareness #rarediseaseresearrch
On #RareDiseaseDay, families, scientists & advocates united to share powerful stories & breakthroughs shaping the future of #RareDiseaseResearch. When you're 1 in 300, science is a lifeline. Watch the recap. Feel the momentum: youtu.be/QM8u4SXzBGw #RDD2025
At PNRI’s Rare Disease Day 2025, 30+ family foundations joined us to push research forward. Watch as two moms share why collaboration between families, scientists & clinicians matters. Learn about these remarkable fdns and how you can support their work at: bit.ly/41YSjAm
#RDD2025 #raredisease
What happens when scientists, clinicians & patient advocates come together? Big ideas, powerful conversations & new collaborations to drive rare disease research forward. Catch the highlights from PNRI’s Rare Disease Day 2025 symposium at Seattle Children's Research Institute!
#RDD2025 #RareDisease
#RareDiseaseDay #RareDiseaseDay2025 #RDD2025. Recurrent FSGS #rFSGS is a ultrarare disease. We recently had a conference and we are building a community. Stay tuned for new updates, events, research opportunities.
@rfsgsinitiative.bsky.social @gbadegesinlab.bsky.social @alessiafornoni.bsky.social
Today is #RareDiseaseDay a time to recognize the 300M+ people worldwide living with rare diseases. Many conditions, like AEC syndrome & rare B-cell cancers, lack effective treatments. Advancing research & innovative therapies is crucial.
#RareDiseaseAwareness #RDD2025 #medsky
PLEASE, also remember that 28 FEB= #RareDiseaseDay.🤍🦓
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#RareDisease patients have had NIH-FDA stop our clinical trials&treatments, NIH&CDC remove-alter INFO, #RDD2025 cancelled, & cuts to Medicaid=☠️.
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Please consider donating your boycott-saved $ to the fundraisers of rare-disease patients.
More than you can imagine - Bohring-Opitz Syndrome/ASXL1.
#rarediseaseday #rdd2025 #bohringopitz #bosaware
PLEASE, everyone:
🤍🦓
Remember that 28 FEB= #RareDiseaseDay.
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#RareDisease patients have had NIH-FDA stop our clinical trials&treatments, NIH&CDC remove-alter INFO, #RDD2025 cancelled, & cuts to Medicaid=☠️.
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Tomorrow, PLEASE donate your boycott-saved $ to the fundraisers of rare-disease patients.
旭化成ファーマが希少疾患の日に協賛し患者支援を強化します #希少疾患 #旭化成ファーマ #RDD2025
旭化成ファーマが希少疾患の日「RDD2025」へ協賛し、患者やその家族に向けた支援を強化。イベントのテーマや詳細も紹介します。
🙌 Most importantly, share your support online! Use #RareDiseaseDay #RareDiseaseDay2025 #RDD2025 hashtags & let’s get rare the recognition it deserves
📅 Hosting a #RareDiseaseDay event? Tell us about it! Whether it’s virtual or in-person, help us spread the word by submitting your event to NORD's official U.S. Rare Disease Day calendar: bit.ly/3OrYnKz
#RDD2025 #RareDiseaseDay2025
Wow! Our Rare Disease Day 2025 event reached capacity even faster than expected, and we can no longer accept RSVPs. Thank you for your enthusiasm! Stay tuned for event highlights and more ways to support rare disease research. 💜 #RareDiseaseDay #RDD2025 #RareDiseaseResearch
Be part of history! 🌟 Join us Feb. 28 for Seattle’s 1st-ever rare disease research symposium at Seattle Children’s Research Institute. 🧬 Hear from top researchers, clinicians & advocates advancing rare disease care.🎥 See the lineup & register for FREE at: pnri.org/rarediseaseday2025
#RDD2025
Calling all rare disease researchers, clinicians & advocates! Join us on Feb 28, 2025, for a FREE Rare Disease Day symposium in Seattle. Talks, posters & a reception—connect, share, & collaborate! RSVP & submit poster details by Jan 31 at: pnri.org/rarediseaseday2025
#RareDiseaseDay #RDD2025
