#HAE #HereditaryAngioedema #AngioedemaAwareness #RareDisease #RareDiseaseAwareness #Ekterly #HAEAwareness #PatientChoice #HealthNews #RareDiseaseCommunity #BioNews #AngioedemaNews
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Hypersensitivity Pneumonitis (HP) is a rare immune lung disease triggered by inhaled mold, bird proteins, or chemicals. Symptoms include cough, breathlessness & fatigue.
Learn more: pulmonaryfibrosis.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare blood disorder where red blood cells lack immune protection, causing chronic destruction, dangerous clots & bone marrow failure.
Learn more: https://www.aamds.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Yellow Nail Syndrome is a rare disorder causing slow-growing yellow nails, leg swelling & chronic lung problems including pleural effusion. Cause unknown; fewer than 400 cases reported.
Learn more: https://dub.sh/YNS1
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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rise from the ashes, ig
KingTiger is playing Phoenotopia: Awakening! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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#HAE #HereditaryAngioedema #HAEAwareness #RareDisease #RareDiseaseAwareness #Angioedema #AngioedemaNews #HAECommunity #ChronicIllness #InvisibleIllness #TravelWithHAE #RareDiseaseCommunity #BioNews #AngioedemaNews
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Multicentric Castleman Disease (MCD) is a rare lymph node disorder driven by excess inflammation that can cause fever, organ enlargement & life-threatening complications.
Learn more: cdcn.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Aquagenic Urticaria (AU) is an extremely rare condition where contact with water — including sweat and tears — triggers painful hives within minutes, regardless of water temperature.
Learn more: https://dub.sh/aqua-urt
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Nephrogenic Systemic Fibrosis (NSF) is a rare disorder causing progressive skin hardening and organ fibrosis in kidney disease patients exposed to MRI contrast dye.
Learn more: https://dub.sh/NSF1
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Hereditary Hemorrhagic Telangiectasia (HHT) is a rare inherited disorder causing fragile, malformed blood vessels that bleed easily in the nose, lungs, brain & liver. Most cases go undiagnosed.
Learn more: curehht.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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BanShi FriDay
BanShi's playing There Is No Game!! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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Lamellar Ichthyosis is a rare genetic skin disorder present from birth, covering the body in large, dark, plate-like scales. It impairs sweating and can restrict movement. There is no cure.
Learn more https://dub.sh/lamellar
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Link in bio to learn more about angioedema.
#Angioedema #RareDisease #InvisibleIllness #ChronicIllness #RareDiseaseAwareness #PatientVoices #DisabilityAwareness #HealthEducation #ChronicIllnessAwareness #SupportRare
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Granulomatosis with Polyangiitis (GPA) is a rare autoimmune disease that inflames blood vessels in the airways, lungs & kidneys. Remission is possible but relapse is common.
Learn more: https://vasculitisfoundation.org/
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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A robot & a mouse walk into Twitch
We're playing co-op game Wires and Whiskers! LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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Neonatal Hemochromatosis (NH) is a rare, life-threatening disorder where maternal antibodies attack the fetal liver before birth, causing iron overload & liver failure in newborns.
Learn more: https://dub.sh/NH01
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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sus
Playing Copycat! Apparently we're in for emotions... LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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What happens when we recognize IgG4‑RD early?
Less organ involvement.
Awareness leads to answers.
Early diagnosis changes outcomes.
Find trusted resources and education at zurl.co/K8uwZ
#IgG4RD #RareDiseaseAwareness #EarlyDiagnosis #PatientEducation
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Confluent & Reticulated Papillomatosis (CARP) is a rare skin disorder causing a striking net-like pattern of brown, scaly plaques on the trunk & neck of teens & young adults.
Learn more: https://dub.sh/1CARP
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Primary Sclerosing Cholangitis (PSC) is a rare progressive liver disease that scars the bile ducts, causing liver failure over time. With no approved treatments, liver transplant is the only cure.
Learn more: pscpartners.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Illustration of a child with a rare genetic condition surrounded by caring family members and soft, supportive elements. The design highlights awareness, compassion, and inclusion for rare diseases.
Awareness brings visibility to the rarest voices. 💙🧬
Every life deserves understanding, care, and support 🤝
#BohringOpitzSyndrome #RareDiseaseAwareness #WorldBOSDay #InclusionMatters #SupportRareDiseases #AccessibilityForAll #EveryLifeMatters
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Stiff Person Syndrome: A rare autoimmune disorder causing progressive muscle rigidity & agonizing spasms triggered by noise, touch, or stress. Affects ~1 in 1 million, no cure exists.
Learn more: stiffperson.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Join us in celebrating IgG4-RD Awareness Day today! IgG4‑Related Disease is rare, complex, and often misunderstood. 💜
AiArthritis has created dedicated tools and resources at: zurl.co/ErwcJ
#IgG4RD #IgG4RDAwarenessDay #RareDiseaseAwareness #ChronicIllness #HealthEducation
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Parry-Romberg Syndrome: A rare disorder where skin, fat & bone on one side of the face slowly waste away. Onset in childhood, cause unknown, and the tissue loss is permanent.
Learn more: parryromberg.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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friday nite, BanShi nite
It's the kid's night and games will be played! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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#HAE #HereditaryAngioedema #HAEawareness #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #InvisibleIllness #PatientVoice #HealthAdvocacy #BioNews #AngioedemaNews
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Fatal Familial Insomnia (FFI): A rare prion disease that destroys the brain's ability to sleep. Progressive, untreatable insomnia leads to hallucinations, dementia & death within months.
Learn more: https://dub.sh/aXYVQsE
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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Proteus Syndrome is an ultra-rare mosaic genetic disorder causing progressive, asymmetric overgrowth of bones, skin & organs in random patches.
Learn more: https://www.proteus-syndrome.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
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the squirreling
Tonight we're finishing up Squirrled Away! LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
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'Letters to ALS: Our Journeys to Hope' — black book promoting personal ALS stories that foster understanding and connection.
Inside this new book: https://bit.ly/41sB1uB
A newly released collection, Letters to ALS: Our Journeys to Hope, shares personal letters from people living with ALS, along with families, advocates, and care teams.
#ALS #RareDiseaseAwareness #HealthStories #ALSNewsToday #Bionews
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