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Happy Holidays from us to you and yours!! Thank you for all of your continued support of the Choices study!

#holiday #sicklecellmatters #sicklecellwarriors #thankyou

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Sickle Cell Awareness Month ends today, but our commitment to patients and families continues every day. Learn more: www.innovativehematology.org/sickle-cell-...
#SickleCellAwareness #SickleCellWarriors

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Your story belongs at the center of research—especially for conditions like sickle cell disease that touch our community every day.

Every minute—and every voice—is precious. 💛

#TimeIsPrecious #SickleCellWarriors #HealthEquity #ClinicalTrials #HeliosClinical

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One step forward, no steps backwards

Now more than ever, we need good institutional and interpersonal leadership to avoid back sliding for #sicklecellwarriors and equitable care for all patients

This is a pep talk to myself as much as to the rest of us

#notgoingback www.nejm.org/doi/full/10....

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📣 1 week left!
#SickleCellWarriors & Caregivers—learn to advocate for yourself, talk to doctors with confidence & find key resources!

💼 FREE Patient Advocacy Workshop
📅 Sat, Jan 25 | ⏰ 12 PM CT/ 1 PM ET
🧑🏽‍💻 Join in-person in KY or virtually!

🎟️ Register now: bit.ly/EdWorkshopJan
#empowersicklecell

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3rd principle #Kwanzaa: Ujima, we take care of our own

Grateful that our amazing community of leaders has decided to raise money and collect coats for our #sicklecellwarriors this year! 🙏🏽

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How unseries my sis and I are. When we get blood transfusion we watch a vampire movie or show 😂 #sicklecell #sicklecellwarriors #buffythevampireslayer

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Where are my fellow #sicklecellwarriors at? I know we here #BlackSky ❣️

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My first #NIHLRP payment just came through! Pediatric hematology isn't a field you go into for the money. We get toddler drawings, teen fist bumps, and parent hugs 🥰

So I'm grateful for this loan repayment support while I research ways to help more #sicklecellwarriors

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Acute Care Physical Therapy and Sickle Cell Disease: A... : Journal of Acute Care Physical Therapy obility and function, but little is known about their application to the unique pathophysiology of those with SCD. The purpose of this review is to summarize evidence relevant to the physical therapy ...

#Sicklecellwarriors, how have your experiences w/ physical therapy been? PTs, have you felt you didnt have the tools to help #sicklecell pain?

Unsurprisingly, the data on PT interventions for SCD are sparse. @BenReaderPT is going to change that!

journals.lww.com/jacpt/abstra...

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When Actions Speak Louder Than Words — Racism and Sickle Cell Disease | NEJM As medical leaders around the United States issue statements denouncing racial injustice and calling for the dismantling of racism, we must ensure that these pledges translate into durable improvem...

The climb towards equity and inclusion for #sicklecellwarriors continues and we can all play a role

www.nejm.org/doi/full/10....

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Did you know the #BlackPanther party advocated for #SickleCellWarriors and organized some of the 1st screening programs and health fairs?

Sickle cell history is Black American history
#BlackHistoryMonth #sicklecellmatters

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Blood is a life-saving and scarce resource.

We must prevent preventable transfusions to ensure safe blood is available in critical moments

In Africa, one of the best ways to do this may be to treat #sicklecellwarriors, saving lives and saving blood

pubmed.ncbi.nlm.nih.gov/38332651/

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Did your hospitals #AntiRacism pledge include efforts to help #SickleCellWarriors? If not, you've got more work to do! 💪🏿💪🏾💪🏼

@PTMcGann & I outlined some steps to get you started
nejm.org/doi/full/10....

#PHOdocs #SickleCellAwarenessMonth #EverydayisJuneteenth #EverydayisMLK

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It's not a competition of which diseases are worse, but I want these options for her and other #sicklecellwarriors as well

I sat back down

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