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How does the ASH SCD Away Elective Rotation make an impact? Hear from a past participant!

This one-month immersive rotation offers hands-on #SickleCellDisease training in both inpatient and outpatient care.

Apply now: https://ow.ly/1sri50YCYab

#SickleCell #SCD #HemeSky

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Sickle cell disease has just been cured for the first time in New York For 21 years, Sebastien Beauzile lived with a disease that shaped every part of his existence.

Wow. This is amazing…but it comes with a huge price tag:

“Lyfgenia carries a list price of $3.1 million. Casgevy lists for $2.2 million.

These are not insurance co-pays.

They are the sticker prices for a single treatment.”

#SickleCell
#PatientAdvocacy

techfixated.com/sickle-cell-...

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If you're the young man I ran into at #Duke Raleigh with #SickleCell who was left waiting without care in the ED lobby for 6 hours - or you know him - could you have him get in touch? I really hope he's ok, and O'd like to speak to him further about what he was put through.

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This is GREAT...GREAT...GREAT🌟

Sickle cell disease has just been cured for the FIRST time🥳 Wahoo and thanks to scientists and doctors and all the people who helped make this happen🥰 #sicklecell #thereisgood❤️

Thanks #techfixated.com😊 techfixated.com/sickle-cell...

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Sickle cell disease has just been cured for the first time in New York

A historic day for medicine: Sickle cell disease has been cured for the very first time in New York! 🎉 This monumental breakthrough offers immense hope to patients worldwide. #SickleCell #MedicalBreakthrough #GoodNews

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📢 Deadline extended: North West Programme Manager

You now have until 29 April 2026 to apply.

Lead our CYP Peer Mentoring Programme and make a real impact for young people living with sickle cell.

🔗 www.sicklecellsociety.org/north-west-p...

#SickleCell #Hiring #ProgrammeManager

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so honored and excited tos hare on behalf of all our team and co-investigators the results of RUBY study #EditasMedicine that used novel first-in human CRISPR-Cas12a Gene Editing of HBG1 & HBG2 Promoters to treat #SickleCell Disease which was published today in @nejm.org www.nejm.org/doi/full/10....

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We’re recruiting Mentors in North West England for our CYP Peer Mentoring Programme.

📍 Liverpool, Manchester & Sheffield
Make a real difference for young people living with sickle cell.

🔗 www.sicklecellsociety.org/nw-s-yorks-m...

#SickleCell #PeerMentoring #Hiring

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We’re looking for healthcare & non-clinical volunteers for our Sickle Cell Family Retreat 2026.

Support families, build community and make a real difference.

📅 Apply by 10 April 2026
🔗 Volunteer Application Form

#SickleCell #VolunteersWanted #MakeADifference

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📣 Join our Sickle Cell Engagement Event

📅 16 May 2026 | 🕛 12–3pm
📍 St Thomas’ Hospital or online

Share your experiences and help shape better care.

Register:
In person: buff.ly/BGDZQVz

Virtual: buff.ly/Cith4BM

#SickleCell #PatientVoice #LondonEvents

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Only 2 weeks left to visit the Sickle Cell Society Exhibition – Our Journey, Our Story.

📍 Royal London Hospital, Inclusion Hub (Level 14)
🕐 Mon–Fri, 1–4pm
📅 Closes 11 April

Head down and see it before it closes.

#SickleCell #SickleCellSociety #Exhibition

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Most kids with chronic illness never see themselves in books.
So I wrote them.
📚 Follow @IAMElleCole
#sicklecell #type1diabetes #representationmatters #chronicillnesskids #patientadvocate #diabetesawareness #sicklecellwarrior #kidshealth

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Important update: meningitis advice for people living with sickle cell and thalassaemia.

Know the symptoms and when to seek urgent care.

Read more:
www.sicklecellsociety.org/staying-safe...

#SickleCell #Meningitis #HealthUpdate

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I used to put everyone else first—until burnout forced me to choose differently. Setting boundaries changed how I show up for myself and my family.

Hear my story on the Walking With Warriors podcast. 🎧 bit.ly/47bKeuN

#SickleCell #CaregiverBurnout #CaregiverSupport

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We’re hiring a Mentor Administrator (North West England) to support our Peer Mentoring Programme.

Help coordinate support for young people living with sickle cell.

🔗 www.sicklecellsociety.org/mentor-admin...

#SickleCell #SickleCellSociety #Hiring

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Having sickle cell trait doesn’t mean you can’t be an athlete. For most, it’s safe to play sports & do moderate exercise with routine precautions.

Learn more: https://ow.ly/krgA50Yy55c

#SickleCell #HemeSky #MedSky

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Can gene therapy transform sickle cell survival in Africa? Gene-editing breakthroughs are bringing curative therapies closer to reality. The challenge now is ensuring African health systems are ready to deliver them.

Science is proving a cure is possible. The real question is whether health systems are ready to deliver it where it’s needed most.

My latest for Nature Africa:

www.nature.com/articles/d44...

#sicklecell #genetherapy #africa

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We’re recruiting a Clinical Director for our CYP Peer Mentoring Programme (London).

Lead clinical oversight and help improve transition outcomes for young people with sickle cell.

📅 Apply by 28 April 2026
🔗 www.sicklecellsociety.org/clinical-dir...

#SickleCell #SickleCellSociety #Hiring

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📢 We’re recruiting Trustees.

We’re especially looking for people with lived experience of sickle cell and/or fundraising experience to join our Board. Your insight, perspective and expertise play a vital role.

🔗 buff.ly/PxgwQ1f

#SickleCell #Trustee #Fundraising

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We’re hiring a South West London Clinical Lead for our Peer Mentoring Programme.

📅 Apply by 27 April 2026
🔗 www.sicklecellsociety.org/clinical-lea...

#SickleCell #SickleCellSociety #Hiring

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Please be true!
#medical #breakthrough #sicklecell #science

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94%

94%!!!!!!!!!!!!!!!!!!!!!

#SickleCell

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Great news! #SickleCell

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Now accepting submissions for the March SCDC Update!

Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can help amplify your work in our next newsletter.

Send your items or questions to coordinator@scdcoalition.org.
#SickleCell #SCD

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Sign up to join our transition workshop on wellbeing, healthy lifestyle and staying safe.
This session is for North-East London Sickle Cell patients aged 14+ and will take place at Stratford Library.📲 Scan the QR code or click the link below to register: bit.ly/4s33TVD
#SickleCell #Transition

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Join us for the Sickle Cell Society Exhibition – Our Journey, Our Story plus a programme of talks, workshops & community events.

📍 Royal London Hospital (Level 14)
📅 11 Mar–11 Apr
🕐 Mon–Fri, 1–4pm

Come and be part of the conversation.

#SickleCell #SickleCellSociety #Exhibition

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Headed to Atlanta for the SCD Unified Action Forum (April 11–12)? This is your sign to lock in your travel.
Book your flight & hotel by March 24 to secure your spot and make the most of the Forum.
Let’s move sickle cell care, research & advocacy forward—together.
#SickleCell #SCD #SCDCPartner

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NCLEX Hematology Nursing Iii TEST BANK 2025 2026 Master Sickle Cell Anemia More With Verified Qa To Pass On Your First Try
#NCLEXHematology #Hematology #Nursing #TESTBANK #TESTBANK2025 #SickleCell #studyguide #hackedexams

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Sending love this Mother’s Day to all the incredible mums in our community. 💐Your strength and resilience inspire us every day.

From all of us at the Sickle Cell Society, we celebrate you. ❤️

#MothersDay #SickleCellMums #SickleCell #SickleCellCommunity

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Sickle Cell Disease
Sickle Cell Disease YouTube video by MED Adventure

Recent upload on Med Adventure..
#meded #medstudent #sicklecell #bsky

youtu.be/hqq1PL1jmhU?...

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