The @alzheimerssoc.bsky.social initiative to raise awareness among the public of how those affected by #dementia can be supported in everyday settings. I've joined the Friends #endFTD being under recognised #svPPA #carer
@arthriticchick.bsky.social thank you for this article painpatientadvocacyaust.org/nociplastic-... calmly explaining nociplastic pain #fibromyalgia (with #svPPA)
#endFTD missinformation, with this helpful image that not all #dementia are the same; their symptoms nor their prognosis and pace of change. #svPPA
Our paper summarising the last 20 years of research in the treatment of #svPPA has reached almost 2k full-text reads in its 1st year:
๐ธRehabilitation in #svPPA is backed by evidence
๐ธ Psychologists, SLTs & OTs can deliver effective treatment
๐๐ ๐...
I show my patient with #svPPA a pic of a pencil sharpener.
He says: "I remember seeing one of those in my desk's drawer. It's blue & tiny (makes a gesture with his thumb & index finger). What is it for?".
The marvels of #episodicmemory in the context of semantic breakdown.
Matching items based on their visual similarity is an extensively reported strategy used by people with #svPPA.
But when the Foie-Gras ๐ฆ & the cat food tins ๐โโฌ look so alike, culinary disasters may happen.
Lesson๐: plan for contingencies when using visual shopping lists.
Article access stats of the practical recommendations from management of #svPPA paper. 414 full-text views in 7 days. 767 abstract views
Seems there are hundreds of readers out there interested in how better treat and support people with #svPPA ๐ฅณ
Fantastic @BocchettaM has translated the lay summary of these practical recommendations for the treatment of #svPPA into Italian ๐ฎ๐น !๐ค Thank you Martina
๐จ๐จ #svPPA paper alert๐จ๐จ
Semantic Variant Primary Progressive Aphasia: Practical Recommendations for Treatment from 20 Years of Behavioural Research: https://dir.lat/Kfajit
Written by clinicians for clinicians (with ๐)
Lay summaries in...
This is a very important piece of work to make progress on the development of effective treatments for people with #svPPA. Semantic storage matters. And getting a good understanding of the degree of impairment of treatment items matters as well....
I highly recommend this #metaanalysis and #systematicreview about #language training in #PPA: www.sciencedirect.com/science/article/pii/S014...
They rate 2 of my papes in #svPPA. And also work from lovely colleagues @ERogalskiPhD @Leanne_SLP @SharonSavage79 &...
Cathleen Taylor-Rubin's very creative approach to facilitate verb phrase production in #PPA, with svPPA and lvPPA clearly benefiting. I'll use it to improve my COEN therapy for #svPPA. Just need to think about how to control for complex confounders! ๐ค๐ #academyofaphasia2019