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The @alzheimerssoc.bsky.social initiative to raise awareness among the public of how those affected by #dementia can be supported in everyday settings. I've joined the Friends #endFTD being under recognised #svPPA #carer

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Understanding Nociplastic Chronic Pain: A Comprehensive Guide in 2024 - Pain Patient Advocacy Australia Nociplastic chronic pain is caused by changes in the way the nervous system process pain signals, rather than by injury or damage to the bodies tissues. This type of pain is often described as burning...

@arthriticchick.bsky.social thank you for this article painpatientadvocacyaust.org/nociplastic-... calmly explaining nociplastic pain #fibromyalgia (with #svPPA)

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#endFTD missinformation, with this helpful image that not all #dementia are the same; their symptoms nor their prognosis and pace of change. #svPPA

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#carers #dementia #svPPA #FTD #FTLD #aphasia

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Our paper summarising the last 20 years of research in the treatment of #svPPA has reached almost 2k full-text reads in its 1st year:

๐Ÿ”ธRehabilitation in #svPPA is backed by evidence
๐Ÿ”ธ Psychologists, SLTs & OTs can deliver effective treatment

๐Ÿ“š๐Ÿ“– ๐Ÿ‘‰...

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I show my patient with #svPPA a pic of a pencil sharpener.

He says: "I remember seeing one of those in my desk's drawer. It's blue & tiny (makes a gesture with his thumb & index finger). What is it for?".

The marvels of #episodicmemory in the context of semantic breakdown.

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Matching items based on their visual similarity is an extensively reported strategy used by people with #svPPA.

But when the Foie-Gras ๐Ÿฆ† & the cat food tins ๐Ÿˆโ€โฌ› look so alike, culinary disasters may happen.

Lesson๐Ÿ“: plan for contingencies when using visual shopping lists.

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Article access stats of the practical recommendations from management of #svPPA paper. 414 full-text views in 7 days. 767 abstract views

Seems there are hundreds of readers out there interested in how better treat and support people with #svPPA ๐Ÿฅณ

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Fantastic @BocchettaM has translated the lay summary of these practical recommendations for the treatment of #svPPA into Italian ๐Ÿ‡ฎ๐Ÿ‡น !๐Ÿค— Thank you Martina

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๐Ÿšจ๐Ÿšจ #svPPA paper alert๐Ÿšจ๐Ÿšจ
Semantic Variant Primary Progressive Aphasia: Practical Recommendations for Treatment from 20 Years of Behavioural Research: https://dir.lat/Kfajit

Written by clinicians for clinicians (with ๐Ÿ’œ)

Lay summaries in...

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This is a very important piece of work to make progress on the development of effective treatments for people with #svPPA. Semantic storage matters. And getting a good understanding of the degree of impairment of treatment items matters as well....

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ScienceDirect

I highly recommend this #metaanalysis and #systematicreview about #language training in #PPA: www.sciencedirect.com/science/article/pii/S014...
They rate 2 of my papes in #svPPA. And also work from lovely colleagues @ERogalskiPhD @Leanne_SLP @SharonSavage79 &...

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Cathleen Taylor-Rubin's very creative approach to facilitate verb phrase production in #PPA, with svPPA and lvPPA clearly benefiting. I'll use it to improve my COEN therapy for #svPPA. Just need to think about how to control for complex confounders! ๐Ÿค”๐Ÿ˜Š #academyofaphasia2019

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