Community Chats | Team Telomere Team Telomere made Community Chats to be safe spaces for those in the Telomere Biology Disorder community to connect with others, ask questions to experts in the fields, and learn more about TBDs.…

Team Telomere staff will be on hand to provide tech support and help facilitate connections. We look forward to seeing you there.

Register now! Tuesday March 10th, 2026 7PM ET
Link: teamtelomere.org/resources/co...

#TelomereBiologyDisorders #TeamTelomere #CommunityChats #LiverComplications

Community Chats | Team Telomere Team Telomere made Community Chats to be safe spaces for those in the Telomere Biology Disorder community to connect with others, ask questions to experts in the fields, and learn more about TBDs.…

Team Telomere staff will be on hand to provide tech support and help facilitate connections. We look forward to seeing you there.

Register now! Monday, March 9th, 2026 at 2pm ET/7pm UK
Link: teamtelomere.org/resources/co...

#TelomereBiologyDisorders #TeamTelomere #CommunityChats #OpenForum

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

Support Research Season & stories like Gerald’s:
🔗 teamtelomere.networkforgood.com/projects/294...

#26for26 #TeamTelomere #RareDiseaseMonth #ResearchSeason #DyskeratosisCongenita #HopeThroughResearch 💜🩷💚

#26for26 #TeamTelomere #ResearchSeason #RareDiseaseMonth #TelomereBiologyDisorders #DyskeratosisCongenita #HopeThroughResearch #PatientAdvocacy #ResearchMatters #RareButNotAlone

#26for26 #TeamTelomere #TelomereBiologyDisorders #DyskeratosisCongenita #RareDiseaseMonth #ResearchSeason #RareDiseaseCommunity #RareDiseaseResearch

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

Link to donate: teamtelomere.networkforgood.com/projects/294...

#26for26 #TeamTelomere #ResearchSeason #RareDiseaseMonth #TelomereBiologyDisorders #RareDiseaseResearch #LegacyThroughResearch #HopeThroughScience #AdvocacyInAction #ResearchMatters #Bereavement #TransformationalResearch #Liver #BMF

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

💜 You can honor community members like Jeni by supporting Research Season, through learning, advocacy, and investing in the research that creates brighter days.

💜🩷💚

Link to donate: teamtelomere.networkforgood.com/projects/294...

#26for26 #TeamTelomere #ResearchSeason #RareDiseaseMonth

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

💜 You can support individuals like Aidan by following Research Season, learning more about telomere biology disorders, or donating to advance research and care.

💜🩷💚

Link to donate: teamtelomere.networkforgood.com/projects/294...

#26for26 #TeamTelomere #ResearchSeason #RareDiseaseMonth

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

💜🩷💚

Link to donate: teamtelomere.networkforgood.com/projects/294...

#26for26 #TeamTelomere #ResearchSeason #TelomereBiologyDisorders #RareDiseaseResearch #RareDiseaseMonth #AdvocacyInAction #DyskeratosisCongenita #BMF #Liver #PF #HopeThroughResearch #ResearchMatters

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

💜🩷💚

Link to donate: teamtelomere.networkforgood.com/projects/294...

#26for26 #RareDiseaseMonth #TeamTelomere #TelomereBiologyDisorders #ResearchSeason #RareDiseaseMonth #RareDisease #DyskeratosisCongenita #TelomereBiologyDisorders #BMF #Liver #PF #HopeThroughResearch #AdvocacyInAction

Katie Runs for Rare & Rural I’m honored to be running in the 2026 United Airlines NYC Half on behalf of the EveryLife Foundation for Rare Diseases. This race is more than a personal challenge - it’s a commitment to the 30…

Link to donate: teamtelomere.networkforgood.com/projects/294...

#TeamTelomere #26for26 #ResearchSeason #RareDiseaseMonth #RareDisease #DyskeratosisCongenita #TelomereBiologyDisorders #PulmonaryFibrosis #LungTransplant #HopeThroughResearch #AdvocacyInAction #ResearchMatters

#TeamTelomere #TBDawareness #TelomereBiologyDisorders #RareTogether #CitizenHealth #RareDisease #PulmonaryFibrosis #DyskeratosisCongenita #IPF #ILD #AplasticAnemia #AdvocacyInAction

Volunteer | Team Telomere There are so many ways to join the fight against Telomere Biology Disorders. Your financial support and personal involvement helps families and provides the medical community with the funds needed to…

Grab your bib 👉 teamtelomere.org/volunteer/#teamtelomere
Start a fundraiser & tag your pics #TurkeyTrotForTT

Community > Research > Advocacy > Cure

#TeamTelomere #TBDawareness #TBD #RareTogether #DyskeratosisCongenita

Today and every day, we honor veterans in our community who’ve served with strength and dedication. This #VeteransDay, we celebrate Damian, Lisa, Nicole & Mike for their service to our country and the TBD community. 💙
#HonoringAllWhoServed #TeamTelomere

team telomere logo on the top of the image with white background. Then a dark blue background with teal border around images of previous years of the team telomere pff booth.

We’re excited to share that Team Telomere will be at the Pulmonary Fibrosis Foundation Summit, Nov 13–15! 🌟 Visit Booth #26 to learn about Telomere Biology Disorders, PF, testing, and resources for our community. 💙

#PFFSummit2025 #TeamTelomere #PFCommunity

#TeamTelomere #TBDawareness #TelomereBiologyDisorders #CommunityStories #RareTogether #GivingTuesday #TBDCommunity #TBDawareness #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #CommunityStrong #DyskeratosisCongenita

#TeamTelomere #CitizenHealth #AIAdvocate #TBDawareness #RareTogether #TelomereBiologyDisorders #TelomereBiologyDisorders #TBDCommunity #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita

Thank you to everyone who joined us in pushing the mission forward and making this community stronger than ever! Read our newsletter for more information!

#TeamTelomere #CocktailsAndChromosomes #SharkTank #TelomereBiologyDisorders #TTMicro2025 #DyskeratosisCongenita

Join us Nov 4, 2025 at 7PM ET for our Community Chat with members of Team Telomere’s Medical Advisory Board! 🧬 Ask questions, hear expert insights, & connect with the TBD community.

Register 👉 us02web.zoom.us/meeting/regi...
#TeamTelomere #CommunityChat #RareDisease #TelomereBiologyDisorders #MAB

gradient blue to yellow background. Team telomere logo on top, great nonprofits logo in center and a review button sticker on bottom.

💙 Team Telomere is powered by YOU! Help us keep our nonprofit status by completing our quick community review 🧬

Your feedback keeps us supporting families & driving rare disease research.
✅ Do it here: greatnonprofits.org/write-review...

#TeamTelomere #RareCommunity #NonprofitSupport

Stay Connected | Team Telomere Every single day, Team Telomere is working to create a brighter future for those impacted by Telomere Biology Disorders. Stay up to date with research findings, community events, advocacy efforts,…

👉 Are you signed up for our newsletter? That’s where all the behind-the-scenes highlights, photos, and updates live! Don’t miss out - sign up today!
Link: teamtelomere.org/stay-connect...

#TeamTelomere #CocktailsAndChromosomes #RareDiseaseResearch #CommunityScience #MicroMeeting2025

Thanks to Ben Tran with Tran Creative for his work with the Native Tribes and providing this beautiful graphic to share.

We also want to honor Rachelle Cobell for her time writing these words in 2022. 1982-2023

#TeamTelomere #CDATribe #RareDisease #IndigenousPeoplesDay

As Yom Kippur begins, we’re taking a moment to reflect, reset, and reconnect.

To everyone observing, we’re sending strength for a meaningful fast and a peaceful day of reflection.

G’mar Chatima Tova - wishing you clarity, compassion, and a sweet year ahead.

#YomKippur #TeamTelomere #Community

gradient background from yellow to blue. logo on top of page. center image of dr bertuch smiling.

🧬 Join our October Community Chat with Dr. Alison Bertuch (Baylor College of Medicine) to explore genetics & subtypes of Telomere Biology Disorders (TBDs). A chance to learn, ask questions & connect!
🔗 Register: us02web.zoom.us/meeting/regi...

#TeamTelomere #Genetics

🧬 Want to know what’s on the horizon for research? Check out Chapter 31 of the TBD: Diagnosis and Management Guidelines! teamtelomere.org/diagnosis-ma.... The Guidelines also provide information about PF and lung transplantation in TBDs.

#PFAwareness #TeamTelomere #IPF #ILD #DyskeratosisCongenita

ClinicalTrials.gov Study record managers: refer to the Data Element Definitions if submitting registration or results information.

A total of 36 pediatric and adult patients with a diagnosis of a TBD will be enrolled at Boston Children's Hospital. To learn more about the study questions, objectives, and eligibility criteria, visit clinicaltrials.gov, NCT06817590.

#ClinicalTrial #DyskeratosisCongenita #TeamTelomere #Research

📅 Don’t miss this chance to learn from a TBD expert & connect with community.

👉 Register: us02web.zoom.us/meeting/regi...

#TeamTelomere #CommunityChat #RareDisease #PF #TelomereBiologyDisorders #Pulmonology

One-Pager Resources | Team Telomere Our one-pager educational resources were created to empower our community through education and advocacy.

🧬Download our informational one-pager resources: teamtelomere.org/one-pager-re...

#PulmonaryFibrosisAwareness #TeamTelomere #ShowYourLaces #IPF #ILD #DyskeratosisCongenita

Centers of Excellence | Team Telomere We are excited to announce the institutions chosen as Team Telomere’s Centers of Excellence (CoE) for Telomere Biology Disorders.

This collaboration drives better care, deeper understanding, and lasting hope for our community.

Learn more: teamtelomere.org/centers-of-e...

#TeamTelomere #CentersOfExcellence #Collaboration #RareDisease #DyskeratosisCongenita

#PulmonaryFibrosisAwareness #TeamTelomere #ShowYourLaces #IPF #ILD #DyskeratosisCongenita