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Posts by PRDA

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Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

17 hours ago 1 1 0 0
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🌟 Spotlight on our Medical Advisers 🌟

Our Medical Advisory Panel is made up of UK experts, dedicated to improving care for people with #PelvicRadiationDisease (PRD).

Meet Professor Sara Faithfull and discover her work: https://ow.ly/SJ0450YCeGf

5 days ago 1 2 1 0
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Taking on a challenge this year? Join our incredible fundraisers and make a real difference! 💪🏃🚴

It's easy to set up a fundraising page. Simply share it with friends and family, and start raising for people with #PelvicRadiationDisease💙

https://donate.giveasyoulive.com/charity/prda

6 days ago 1 1 0 0
Quote: After an initial, kindly phone consultation, I was accepted to see the Senior Therapeutic Radiographer, who decided, even after thirty years since my radiotherapy, that she could help. I hadn’t realised that Pelvic Radiation Disease was a ‘thing’, and she gave me gentle support and told me about PRDA. Just the acknowledgment that I wasn’t just another old woman suffering incontinence, that there was indeed an association to help and inform, was a comfort.

Quote: After an initial, kindly phone consultation, I was accepted to see the Senior Therapeutic Radiographer, who decided, even after thirty years since my radiotherapy, that she could help. I hadn’t realised that Pelvic Radiation Disease was a ‘thing’, and she gave me gentle support and told me about PRDA. Just the acknowledgment that I wasn’t just another old woman suffering incontinence, that there was indeed an association to help and inform, was a comfort.

Symptoms of #PelvicRadiationDisease can emerge months, years, or even decades after radiotherapy.

Alyson self-referred to Nottingham’s Late Effects Service 30+ years later thanks to signposting from a Macmillan nurse.

UK late effects services: prda.org.uk/late-effects-services/

1 week ago 2 0 0 1
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Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

1 week ago 0 0 0 0
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Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓️ Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

2 weeks ago 2 2 0 0
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Anal cancer: Woman left in pain six years after radiotherapy treatment Trish Prosser said she was too embarrassed to tell loved ones about the type of cancer she had as she felt there was a stigma surrounding anal cancer.

We’re so grateful to Trish for speaking so openly 💙 Sadly, she’s not alone.

#PelvicRadiationDisease can cause numerous symptoms, yet awareness is low and support is very limited in the UK, with no services in Northern Ireland.

https://www.bbc.co.uk/news/articles/c5yq1yg9ldwo

3 weeks ago 1 0 0 2
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Support Pelvic Radiation Disease Association on Kingston Community Lottery Pelvic Radiation Disease Association is offering you the chance to win big prizes and help raise much needed funds.

🎉Extra chances to win with this month's Super Draw🎉

Playing the Kingston Community Lottery is a great way to support good causes like ours with proceeds helping people living with Pelvic Radiation Disease.

Play here👉 https://ow.ly/LeRT50YsmgY
#CharityLottery

1 month ago 0 1 0 0
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Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

1 month ago 1 1 0 0
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Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

1 month ago 1 0 0 0
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Healthcare professionals: if you’re supporting people living with #PelvicRadiationDisease, please consider signposting them to our Out and About Toolkit. Practical tips and tools to help people feel more confident leaving home.
👉 prda.org.uk/out-and-about-toolkit/

#SupportiveOncology

1 month ago 1 0 0 0
“It’s so important that we have long-term plans to help cancer survivors fit into normal life and achieve the best possible quality of life.”

Amy - living with PRD

“It’s so important that we have long-term plans to help cancer survivors fit into normal life and achieve the best possible quality of life.” Amy - living with PRD

Surviving cancer isn’t just about a cure, it’s about living well after treatment. Many people struggle with late effects. The National Cancer Plan must recognise #PelvicRadiationDisease and provide support shaped by lived experience.

https://ow.ly/RArl50Yep2U

#NationalCancerPlan

1 month ago 2 0 0 1
“I often see patients who were unprepared for new symptoms and the significant impact these have on quality of life.”

Dr Jan Bornschein, Consultant Gastroenterologist and PRDA Medical Adviser

“I often see patients who were unprepared for new symptoms and the significant impact these have on quality of life.” Dr Jan Bornschein, Consultant Gastroenterologist and PRDA Medical Adviser

Many people aren’t prepared for the lasting effects of pelvic radiotherapy, which can affect daily life. The PRDA is calling for consistent, compassionate, patient-focused care.

👉 prda.org.uk/prda-response-to-the-national-cancer-plan/

#PelvicRadiationDisease #NationalCancerPlan #PatientCentredCare

1 month ago 1 0 0 0
Please welcome our new Chair of Trustees

Please welcome our new Chair of Trustees

We’re delighted to announce Elaine as our new Chair of Trustees 🌟

With her experience in health services and charity leadership, she’s set to guide our work supporting the Pelvic Radiation Disease community.

prda.org.uk/new-chair-of-trustees-appointment/

1 month ago 0 0 0 0
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We welcome the National Cancer Plan’s focus on quality of life, not just survival. But NHS staff training & dedicated long-term care services are urgently needed for equitable outcomes.

prda.org.uk/prda-response-to-the-national-cancer-plan/

#PelvicRadiationDisease #SupportiveOncology

2 months ago 0 0 0 0
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Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

2 months ago 0 0 0 0

Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

2 months ago 1 0 0 0
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National Cancer Plan for England Documents relating to the government’s plan to transform cancer care and outcomes in England by 2035.

The 2026 National Cancer Plan is a chance to improve life after cancer. People with Pelvic Radiation Disease need care that is timely, high-quality, and reflects their real experiences. We’re ready to work with the NHS to make it happen.

https://ow.ly/oy9x50YarFc

#CancerCare #SupportiveOncology

2 months ago 3 0 0 0
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🎉Extra chances to win with this month's Super Draw🎉

Playing the Kingston Community Lottery is a great way to support good causes like ours with proceeds helping people living with Pelvic Radiation Disease.

Play here👉 https://ow.ly/gXNF50Y84JX
#CharityLottery

2 months ago 0 0 0 0
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This #WorldCancerDay we’re calling for cancer care that puts people first, not just during treatment, but long after it ends.

Person-centred care must include long-term survivorship support and proper provision of late effects services.

Read our latest update 👉 https://ow.ly/pJuh50Y664O


2 months ago 1 0 0 0
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Late effects services for adults living with and beyond cancer: a scoping exercise of the current provision in the UK Late effects services for adults living with and beyond cancer: a scoping exercise of the current provision in the UK

New report reveals that the majority of people with late effects can't access specialist services due to limited availability across the UK.

The NHS can better meet the long-term needs of cancer survivors by investing further in late effects services.

https://ow.ly/IRhm50Y5m8M

2 months ago 3 1 0 0
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By taking the #PRDPledge our pledge champions are helping us raise awareness of #PelvicRadiationDisease

Thank you for your dedication to better outcomes, better understanding, and better care 💙

Get involved and take the pledge👉 https://ow.ly/bb6i50Y3W16

#RTLateEffects #RadOnc

2 months ago 0 0 0 0
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New or ongoing symptoms 3 months or more after pelvic radiotherapy could be #PelvicRadiationDisease

Symptoms can start years or even decades after radiotherapy and are often under-recognised. Find more information on our website:

prda.org.uk/what-is-pelvic-radiation-disease-prd/

2 months ago 2 1 0 0
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Support Pelvic Radiation Disease Association on Kingston Community Lottery Pelvic Radiation Disease Association is offering you the chance to win big prizes and help raise much needed funds.

🎉Extra chances to win with this month's Super Draw🎉

Playing the Kingston Community Lottery is a great way to support good causes like ours with proceeds helping people living with Pelvic Radiation Disease.

Play here👉 https://ow.ly/EXaG50Y18OH
#CharityLottery

2 months ago 0 0 0 0
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Help raise FREE funds for Pelvic Radiation Disease Association from your grocery shopping, insurance switches and other online purchases.

Plus, we'll get a bonus donation when you sign up before the end of February 💙 https://ow.ly/Ku8H50XX73Q

#ShoppingForACause

2 months ago 0 0 0 0
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Thanks to Macmillan funding, we’re increasing access to our Out and About Toolkit programme across NHS Late Effects Services.

If your service isn’t yet involved and would like to find out more, please get in touch.

👉 Read more: https://ow.ly/VvjR50XX7A5

#PelvicRadiationDisease

2 months ago 2 0 0 0

Support is available for people living with #PelvicRadiationDisease at our Chat Together virtual support group.

➡️3rd Tuesday of each month at 12:30pm and 1st Wednesday of each month at 7pm
prda.org.uk/chat-together

#LivingWithAndBeyondCancer #CancerQualityOfLife

3 months ago 0 0 0 0
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🎉Extra chances to win with this month's Super Draw🎉

Playing the Kingston Community Lottery is a great way to support us with proceeds benefiting good causes like ours.

Play here👉 https://ow.ly/y8GP50XU5WI
#CharityLottery

3 months ago 0 0 0 0
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New or ongoing symptoms 3 months or more after pelvic radiotherapy could be #PelvicRadiationDisease

Symptoms can start years or even decades after radiotherapy and are often under-recognised. Find more information on our website:

prda.org.uk/what-is-pelvic-radiation-disease-prd/

3 months ago 0 0 0 0
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Pelvic Radiation Disease Association Support Support is available from the PRDA for people affected by Pelvic Radiation disease. We have a number of support services available that are free to access for people living with symptoms of PRD.

Happy New Year from all of us at PRDA 🎉

If you know someone with #PelvicRadiationDisease who could benefit from peer support, please explore our services at: prda.org.uk/support/

#LivingWithAndBeyondCancer #RTLateEffects

3 months ago 1 0 0 0