Thank you so much Trish for sharing 💙
A stark reminder of the embarrassing, painful and long lasting symptoms of #PelvicRadiationDisease and the impact on people’s daily lives
#LivingWithAndBeyondCancer
1
0
0
0
Hashtag
#LivingWithAndBeyondCancer
Advertisement · 728 × 90
I just wanted to remind people that the first episode of my podcast is available via most podcast platforms.
The second episode will be released next week!
Listen to the first episode here
#podcast #livingwithandbeyondcancer #mentalhealth #Cancer
podcasts.apple.com/gb/podcast/l...
0
0
0
0
Support is available for people living with #PelvicRadiationDisease at our Chat Together virtual support group.
➡️3rd Tuesday of each month at 12:30pm and 1st Wednesday of each month at 7pm
prda.org.uk/chat-together
#LivingWithAndBeyondCancer #CancerQualityOfLife
0
0
0
0
Happy New Year from all of us at PRDA 🎉
If you know someone with #PelvicRadiationDisease who could benefit from peer support, please explore our services at: prda.org.uk/support/
#LivingWithAndBeyondCancer #RTLateEffects
1
0
0
0
Our online 'Chat Together' peer support group offers a safe space for people living with #PelvicRadiationDisease to connect💙
📆 3rd Tuesday each month at 12:30
For more information visit 👉prda.org.uk/chat-together/
#RTLateEffects #CancerQualityOfLife #LivingWithAndBeyondCancer
1
1
0
0
“If these findings are confirmed by future, more definitive studies…”
What would a more definitive study be? An RCT where you are randomised to being lonely?😭
I am joking of course, but it always seems that #LivingWithAndBeyondCancer research must pass some unattainable bar before being accepted
2
0
0
0
Incredibly powerful story - read this to understand the serious long term impact that cancer treatment can have on health and wellbeing.
🙏 thank you for sharing Ellie
#LivingWithAndBeyondCancer
2
0
0
0
Our online 'Chat Together' peer support group offers a safe space for people living with #PelvicRadiationDisease to connect💙
📆 1st Wednesday each month at 7pm
For more information visit 👉prda.org.uk/chat-together/
#RTLateEffects #CancerQualityOfLife #LivingWithAndBeyondCancer
2
1
0
0
Conference programme 1
Conference programme 2
Selection of leaflets
Very much looking forward to today’s Pan London Cancer Alliances’ AHP and Psychological Therapies conference - brilliant packed programme and loads of great stuff happening on #LivingWithAndBeyondCancer 😀👏 #SuppOnc
1
0
1
0
Sleep problems and cancer prevalence
Foundation for good sleep
Other sleep disorders
Take away messages from talk about sleep and cancer
Great talk from Helen McNamara on managing insomnia. So many health benefits can arise by improving people’s sleep, including those with obstructive sleep apnoea #SupportiveOncology
#LivingWithAndBeyondCancer
#UKASCC25
0
0
1
0
List of parts of the body affected by pelvic radiation disease
Quote from a GP on the importance of holistic care for people affected by PRD
On 🚂 to Manchester for the UK Assoctn of Supportive Care in Cancer’s 2025 conference ukascc.org
Looking fwd to learning loads & meeting new and familiar faces in the world of #LivingWithAndBeyondCancer
Plus the bonus of talking about @prda.org.uk #PelvicRadiationDisease to anyone that’ll listen!
1
0
0
0
Delighted to be in Sussex today for the @surreyandsussexca.bsky.social annual event on Personalised Care in Cancer and Why It Matters.
Brilliant that the Alliance is able to bring folks together to celebrate the progress on #LivingWithAndBeyondCancer as well as inspire further improvements 🙌👏
2
2
0
0
Fantastic to be in Chester-le-Street for the Macmillan Regional Study Day on Pelvic Radiotherapy late effects. Amazing venue @durhamcricket.bsky.social with Lumley Castle in the background. Looking forward to a superb day
@prda.org.uk #PelvicRadiationDisease #LivingWithAndBeyondCancer
0
0
1
0
Honoured to be speaking about #LivingWithAndBeyondCancer at Oral Oncology QoL meeting #IAOO2025
Amazing programme - am learning loads!
#CancerQualityOfLife
1
0
1
0
Sometimes the best support comes from connecting with others who truly understand🌻
Explore our support services to see how we can help people living with #PelvicRadiationDisease: prda.org.uk/support/
#LivingWithAndBeyondCancer #RTLateEffects
2
1
0
0
A wonderful day in the company of the excellent Cancer Alliances’ leadership group for #LivingWithAndBeyondCancer 🙌
Great discussions around the new cancer plan 👏😀
(Also did one of my better cheesey yolks IYKYK 🐣😬🫠)
2
0
0
1
“…surgical treatment was associated with improved survival, but also more symptom interference in general activities and work. These results may be useful in palliative surgical decision-making and informing patients during consultation for malignant bowel obstruction.”
#LivingWithAndBeyondCancer
2
0
0
0
Congratulations on what I’m sure has been a fabulous day! 👏👏
Will undoubtedly help further advance @nhs-wca.bsky.social great work on #LivingWithAndBeyondCancer 🙌
2
0
0
0
📣 Don’t forget! The sooner you respond to the Govt call for evidence for the new England national cancer plan, the better, especially on #LivingWithAndBeyondCancer (my favourite subject 😀).
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
6
4
0
0
“Advancements in cancer treatment have led to a growing population of cancer survivors worldwide, who often experience premature onset of age-related conditions”
#LivingWithAndBeyondCancer
8
4
1
0
I had a great time at this inspirational event - see my profile for various posts I did during the day.
#CancerQualityOfLife
#LivingWithAndBeyondCancer
Many thanks to @yclared.bsky.social and all the Northern Cancer Alliance collaborations! 👏
1
0
0
0
Chloe McMurray (dietitian) and Hannah Whittle (physio) giving a really informative talk about supporting patients to self-manage cancer-related fatigue
#LivingWithAndBeyondCancer
4
0
1
0
@lesleysmith.bsky.social presenting the national context for #LivingWithAndBeyondCancer as part of cancer alliance work here at The Northern Cancer Alliance Share and Learn event in Durham
3
0
0
0
The analysis is “unique in that we evaluated participants who began their treatment with robust functional status, demonstrating the association of treatment toxicities with functional decline is not limited to those already experiencing deficits.”
#LivingWithAndBeyondCancer
1
1
0
0
📣 Please respond to the Govt call for evidence for the new England national cancer plan, especially on #LivingWithAndBeyondCancer (my favourite subject 😀).
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
2
4
0
0
Great to see mention of cancer survivorship studies being an important part of the role of cancer registries.
As the piece says, we need to “understand the statistics of cancer in order to provide more equitable and inclusive care for all”.
#LivingWithAndBeyondCancer
1
1
0
0
Brilliant to see another new #radiotherapy #LateEffects service open. Very many thanks to Macmillan & all involved. This will be a huge help to people affected by #PelvicRadiationDisease and other long term side effects of radiotherapy 😀👏
#LivingWithAndBeyondCancer
www.ouh.nhs.uk/news/article...
7
2
0
0
People experiencing symptoms that start or continue three months or more, after the end of their pelvic radiotherapy, may have #PelvicRadiationDisease.
Information and support is available from the Pelvic Radiation Disease Association:
prda.org.uk/support/
#LivingWithAndBeyondCancer
3
2
0
0
Hi there, I’m here all things #CancerQualityOfLife #LivingWithAndBeyondCancer #CancerSurvivorship #CancerRehab #LateEffects
#PersonalisedCare #SupportiveCare #PalliativeCare #LongTermConditions #Prehabilitation #PsychoOncology #ExerciseOncology #PelvicRadiationDisease #PROMS #HealthInequalities
15
3
0
0
“We have two lives, and the second begins when we realise we only have one” ~ Confucius
Food for thought on my train ride home from visiting St Christopher’s Hospice and The Royal Marsden #palliativecare #livingwithandbeyondcancer #rehabiliativepalliativecare
3
0
0
0