TODAY April 15:
Zoom/phone support meeting for #MECFS, #LongCovid.
MEAction
NC State Chapter Support Group,
friends, allies, caregivers.
🫂 WED Apr 15, 2026
(3rd Wednesday, monthly)
🕧12:30 PM EDT US
www.meaction.net/event-detail...
#MEActionNC is Advocacy meeting tomorrow!
Sat, Apr 11, 2026
11a -12p, Eastern US
We will discuss opportunities for action, big & small. We welcome all volunteers regardless of capacity. For deets, link, call in #, use last month's mtg announcement:
www.meaction.net/event-detail...
NASA is going back to the moon more than a half-century after Apollo. NASA’s Artemis program is a follow-up to the Apollo moonshots of the late 1960s and early 1970s.
Follow AP on YouTube for a hosted livestream of Artemis II on launch day.
bit.ly/4bIIRWR
It was a great talk!!
I read about your nicotine study yesterday: Wild stuff!
For the Renegade followers who do not know what a Neurogastroenterologist is: "Neurogastroenterology studies the relationship between the nervous and digestive systems, sometimes called “the brain-gut axis.”" - Cleveland Clinic
LOL he *whispers "and IBS."
Busting the myths of IBS!!! Yes.
This is going to be breath-giving, itch-relieving, moving in general and for bowels, and overall amazeballs.
TY to
@renegaderesearch.bsky.social
for allowing me to volunteer some on this one.
*whispers "and IBS"
Busting the myth of IBS.
This is going to be breath-giving, itch-relieving, moving in general and for bowels, and overall amazeballs.
TY to @renegaderesearch.bsky.social for allowing me to volunteer some on this one.
The DC Metro
Happy birthday to the Washington Metro, which opened 50 years ago today with service on 4.6 mi of Red Line between Rhode Is. Ave & Farragut N. System now serves 130 mi.
The DC Metro shows that, with good planning & enough investment, the public sector can succeed & build something extraordinary.
me, too.
Me, too.
@repwalkinshaw.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program
~$50M for the NIH Research Roadmap &
~ME/CFS in the PRMRP.
Please support all 3 in the FY27 appropriations bills. Your VA constituents are counting on you.
#MEAwareness #MECFS #VA11
Don't forget to register for our Clinician's Roundtable this Friday with neurogastroenterologist Dr. Zac Spiritos!
If you have #MastCells #MCAS #MACD #Mastocytosis #HaT #Histamine on the mind, you'll want to learn about the brain-gut connection and treating gastric impacts!
Register ⬇️ #MedSky
EDS conference April 9-10 feat. Fraser Henderson, Clair Francomano, Anne Maitland, Steven Smith, Chip Norris and more!
There’s an online option, registration’s free, and several of the talks look like they might be relevant to complex chronic illness broadly even if you don’t have EDS specifically!
Today. In 30 minutes. Hope to see you.
Happening now!
Long Covid Awareness and Advocacy topics.
Help for figuring out easy ways to participate.
Things we want people to know. 6 years after the start* of the COVID-19 pandemic. *The day the World Health Organization declared COVID-19 a global pandemic. This was not the date of the first case.
It’s not just a cold. We wish it were just a cold. We would not keep talking about it if so. Since 2020, doctors, scientists, and millions of people who have had COVID-19 have learned that it can cause permanent damage to multiple organ systems within your body, leave you disabled and unable to do the things you love, and significantly harm your quality of life. A cold cannot disable or kill you the way COVID-19 can.
We know a lot more about prevention than we did back then. We all remember when we thought maybe we’d be ok as long as we were 6 feet away from sick people; that masks worked one way but not the other; and more. But just like with all new viruses and scientific study, we learned more as there was more time to study and observe, and we now know that wearing masks and keeping cleaner air are key to protecting ourselves and others. Now that we know better, we can (and should) better protect ourselves and others.
We understand the frustration about vaccines, but they are still extremely important. We all remember when vaccines were first made available, and it would’ve been great if that was the end of the pandemic. It wasn’t. And a lot of people have gotten frustrated and have given up on vaccination. It’s true, the virus that causes COVID-19 changes (which is why, like the annual flu shot, we need to get updated COVID-19 vaccines each year), and the vaccines we have now will not eliminate COVID-19 on their own. But they are still very effective at preventing serious illness and death, so even though they are not the one quick solution to the pandemic we all wish they were, they are still extremely important, and we should all stay up to date.
This week marked the anniversary of the start of the COVID-19 pandemic. We’ve summarized our thoughts a bit below, but tl;dr: Unfortunately, COVID-19 is still with us, & although we may be tired of hearing about it, it’s extremely important to continue to take steps to protect ourselves & others.
Photo of Speaker Zachary Spiritos, MPH mid right side. QR code upper left. Background: orange square with bubbles on left bottom corner. Text: Clinician’s Roundtable, When the Gut-Brain Axis Goes Wrong: Mast Cells, Histamine, and Practical Clinical Management Speaker Zachary Spiritos, MD, Neurogastroenterology. Date and Time: Friday March 27, 2026, 1 pm Eastern US Registration: URL for Registration is https://tinyurl.com/ypy99ma5 Text and Logo of Renegade-Research.org
A purple and blue graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center and lower left depicts photos of Drs. Douglas Kell, Resia Pretorius, Jill Schofield and Jordan Vaughn. White text reads: Research Roundtable: Hypercoaguability, Clotting and Microclotting, and Blood Issues in ME/CFS and Long Covid. Friday, March 13, 2026, 1 pm ET US. Register: tinyurl.com/renres-03-13-2026. Renegade-Research.org.
TODAY 3/13 at 1 pm EDT 📢:
The Hypercoagulation / Microclotting / Blood Issues Research Roundtable
2 weeks from today 3/27 at 1 pm EDT 📣:
The Gut-Brain Axis and Mast Cell Connection Clinical Roundtable.
Sign up at @renegaderesearch.bsky.social events page:
renegade-research.org/events-list
Also if you have blood and long Covid or ME/CFS symptoms or study or treat them, maybe come to the research roundtable on blood and blood vessel issues webinar on Fri 3/13 by @renegaderesearch.bsky.social. See their pinned tweet.
In 2022, I counted more than 400 healthcare centers in the U.S. offering Long COVID care. @delfimarchese.bsky.social followed up three years later, and found many of them have closed... or at least failed to respond to our inquiries.
Her investigation for @thesicktimes.org: clinics.thesicktimes.org
#teamclots don’t miss this hrpercoag / microclots event in thread above on March 13 2026 or catch the recording later.
Please donate to #TheNicotineTest, to fund the second round of research for this project - the Zeffy crowdfunding link is in this post ⬇️
Follow @thenicotinetest.bsky.social to learn more and support - Troy Roach, the project's principal investigator, explains the 3 years+ ongoing project's efforts
In 2 days…
Two of authors and others who study micro clots and blood issues in ME/CFS and Long Covid @resiapretorius.bsky.social and @dbkell.bsky.social are headlining a research roundtable. 1pm. Friday the 13th. Check @renegaderesearch.bsky.social the host’s pinned tweet to register.
Recording of Sleep Dysfunction and Breathing Mechanics, a Clinician's Roundtable with Dr. Avram Gold.
We learn via data & renegade discussion about Obstructive Sleep Apnea (OSA), Upper Respiratory Airway Syndrome (URAS), how you don't have to be a snorer, and more.
www.youtube.com/watch?v=R6XN...
#disability people, here’s a link to the Renegade Research lecture about our research. BTW, I am not a consultant, not looking for patients or subjects, not selling snake oil, and don’t want anything from anyone. We have some hopeful news for many chronic illnesses. www.youtube.com/watch?v=J_WR...
👋
I love that the paper mentions PPAR agonists!
Maybe we'll hear more at Roundtable with @dbkell.bsky.social & @resiapretorius.bsky.social (+ Dr. Vaughn + Dr. Schofield) + some very awesome panelists.
Fri MAR 13 1 pm EDT US by @renegaderesearch.bsky.social
us06web.zoom.us/webinar/regi...
We have another Clinician’s Roundtable on Friday, March 27 at 1 pm ET US:
“When the Gut-Brain Axis Goes Wrong: Mast Cells, Histamine, and Practical Clinical Management” with neurogastroenterologist Dr. Zac Spiritos bsky.app/profile/rene...
You can register here: us06web.zoom.us/webinar/regi...
Please join our other upcoming events:
Long COVID Awareness Day is March 15! We'll host an X Space on March 17 to discuss Long COVID community thoughts, feelings, concerns, needs, research, care x.com/i/spaces/1nK...
This event will be recorded and posted to our YouTube (and our website later)
Jill Schofield is Founder/Director of Center for Multisystem Disease & a Clinical Associate Professor. She works in antiphospholipid syndrome, autoimmune dysautonomia (& underlying causes in patients conservative therapies fail) & mast cell activation syndrome (MCAS). centerformultisystemdisease.com
Jordan Vaughn is a physician/researcher at MedHelp, founder of Microvascular Research Foundation for Spike Protein & Long COVID, mvresearch.org
He works in endothelial damage & clotting via spike protein, immunofluorescent microscopy to see amyloid fibrin in blood medhelpclinics.com/service/long...
