While we are transfixed by the antics of our supposed "leaders", a catastrophe of astonishing proportions has been creeping up on us. Climate scientists now believe it is more likely than not to happen, and soon.
This week's column.
www.theguardian.com/commentisfre...
Posts by jo
Health Rising: 'Takeaways From the Big Long COVID Clinical Trials'
'With estimates suggesting that 20â25 million people in the U.S., ~2â3 million in Canada, and ~20â40 million in Europe are currently living with long COVID, long COVIDâs impact has been huge.'
www.healthrising.org/blog/2026/04...
Sunrise, Thursday, 23 April, from Wainui Beach, Aotearoa / New Zealand.
Ata mÄrie / Good Morning âď¸
. @davetuller1.bsky.social & I amongst others were interviewed for this.
#MEcfs #LongCovid #PwME
Excellent piece in New Scientist on exercise research in #LongCovid and #MECFS.
Highlights studies ignoring post-exertional malaise, the PACE trial, and comments from David Tuller, Tom Kindlon and Todd Davenport.
Full article:
archive.is/2026.04.22-1...
đĄ "We should be as cautious with exercise in long covid as we have come to be in ME/CFS...I donât know how often we need to continue to put our finger on that light socket.â @sunsopeningband.bsky.social
GREAT article - completely debunks those trying to push exercise đ
Today, the Womenâs Prize Trust announced the shortlist for the 2026 Womenâs Prize for Fiction, narrowed down to six from a longlist of sixteen.
Introducing our official Candidate List for 2026! Party Vote Green, e te whÄnau.
đâ
đâ¨
www.greens.org.nz/green_party_...
The detailed agenda for the International ME/CFS Conference 2026 is out and it is just amazing. Top-notch novel research, 2 ministers, 50 researchers, focus on the hard (but needed) neuroimmunology road...
Have a look. No stone unturned! Just impressive đđ
events.mecfs-research.org/en/events/co...
Bateman Horne Center logo with large navy text reading "Not all days look the same"
Symptoms change. Capacity changes.
These tools help communicate what that actually looks like:
⢠Good Day / Bad Day Questionnaire
⢠Communication Cards
⢠Crash Survival Guide
Built to support understanding.
Find these resources freely available at https://bit.ly/4dJIQ6t
Proposed changes to alcohol laws in Aotearoa New Zealand would increase availability and limit community input, contributing to greater harm and inequities. Evidence shows more access leads to more harm. @AlcHealthwatch www.phcc.org.nz/briefing/unp...
Black background with WHN branding at the top reading âwhn.global.â Large pink and white text says: âMasks donât work.â Below it: âLetâs debunk this ââ Smaller text near the bottom reads: âShort answer: They do, but only when used correctly, and not all âmasksâ are created equal.â At the bottom: âWorld Health Network â Science for a safer, healthier world.â
Black background with âwhn.globalâ at the top. Large pink text says: âThe physics is clear: well-fitted respirators (N95/FFP2 or better) cut what you breathe out and what you breathe in.â Below, white text with one pink-highlighted phrase says: âConfusion often comes from studies that used loose surgical/medical masks, allowed people to take masks off while exposed, or mixed very different mask types and fits, conditions that blur the true benefit.â At the bottom: âWorld Health Network â Science for a safer, healthier world.â
Black background with âwhn.globalâ at the top. Large pink heading says: âDose matters.â Below, large white text says: âInfection risk rises with the dose you inhale; cutting that dose (even partially) lowers risk. When both people mask, the reduction compounds, dropping exposure much more than one person masking alone.â At the bottom: âWorld Health Network â Science for a safer, healthier world.â
Black background with âwhn.globalâ at the top. Large pink heading says: âFit is crucial.â Below, white text says: âRespirators are designed to seal and maintain high filtration across a range of particle sizes. Loose surgical/medical masks mainly help with source control and can leak around the edges; a well-fitted respirator protects you and others.â Lower down, smaller white and pink text says: âFor more information, visit our âYes, We Continue Wearing Masksâ page: whn.global/yes-we-continue-wearing-masks/â At the bottom: âWorld Health Network â Science for a safer, healthier world.â
âMasks donât work.â
We still hear this a lot, and it usually comes down to misunderstanding how masks actually work.
Masks arenât just tiny strainers. High-quality masks (like N95s) use electrostatic charge to attract and trap airborne particles, including those that carry viruses.
The pandemic is ongoing, it continues, itâs NOW. Everyone remains vulnerable to the harms of COVID. Weâre past only the initial acute stage of the pandemic. We likely still await the population-wide long term effectsâtragically.
Sunrise, Tuesday, 21 April from Wainui Beach, Aotearoa / New Zealand.
The sun has not quite cleared the low clouds on the horizon, but I had to get to work.
Ata mÄrie / Good Morning âď¸
Graphic styled as a reminder note pinned to a calendar. A blue sticky note reads: âReminder â Online Support Group.â Event title: âWho Am I Now? Identity and Chronic Illness.â Date and time: Tuesday, April 21 at 1:00 pm MDT. Background shows a monthly calendar layout, reinforcing the reminder theme. Bateman Horne Center logo appears at the bottom.
When illness changes your life, it can also change how you see yourself.
This Support Group is a space to gently explore identity, meaning, and who you are becoming, alongside others who understand.
Join us Tues, April 21 đ
đ https://batemanhornecenter.org/events/
How Covid spreads, Plague parallels, Long Covid underreported, Heart disease, Pandemic stress & grief, and more
open.substack.com/pub/johndupu...
Itâd be really freaking great if our healthy allies would participate, too.
Thank youâ¤ď¸
#MyalgicEncephalomyelitis #pwME
Why an ordinary storm can have an extraordinary impact - a great explainer about the Wellington events by @cubaraglanguy.bsky.social www.rnz.co.nz/news/weather...
It's just so tough to hear people talk about how difficult early pandemic was, and in the same breath just not care about the millions of us still suffering.
Glad you're over it, maybe hold on to some empathy for those of us who have been left behind! There is *so* much that could be done to help.
#MCAS folksâ
The newly formed International Society for Mast Cell Activation Syndromes has a 10-min survey to learn how they can best serve MCAS patients and caregivers.
Please take it, please share it!
Survey: forms.office.com/e/N4RDJYVep0
Org: ismcas.org
Qs: advocacy@ismcas.org
This piece from @emilywrites.co.nz is really worth reading, on the human impact of this weather and exactly how much this government has not just refused to act, but instead consistently acted against the interests of us all. www.emilywrites.co.nz/i-dont-want-...
There are no words that adequately describe how much I miss being able to go out to gigs, to parties, to festivals, just having a basic normal social life.
Long Covid took all that from me, and it could take it from anyone.
Wow, that hits hard.
A storm hit New Zealand every eight days on average in the last year.
Insurance claims more than tripled.
This is the #climatecrisis and it will get much worse â but how much worse, is still up to us.
An âordinaryâ storm with extraordinary impacts: what made Wellingtonâs deluge so intense?
James Renwick, Professor of Physical Geography at our School of Geography, Environment and Earth Sciences, explains.
A Northland iwi leader says some form of ongoing support is needed in order for marae to continue responding effectively to severe weather events.
âWeâve toiled and lost jobs just to end up with this crappy economyâ
I wish it was just jobs & toil. The govt have gutted pay equity, housing, food banks, disability support at the same time as pumping money into landlords, tobacco companies, & any pet projects that help donors not NZers #nzpol
NZ Govt has taken a huge bet on fossil fuels. NZ was already spending $8 billion a year importing fossil fuels, and now the global fuel crisis is going to make that worse. Betting on fossil fuels has turned out to be a losing bet for NZ. This is the 14 point policy record of 2 years of the NZ Govt:
The Hutt River has about 10 times the flow now (in cubic metres a second) than it was having at 3pm [link works in Chrome but seems a bit iffy in Safari] graphs.gw.govt.nz/envmon?view=...
MÄni Dunlop is so good at this. And the photo editing. #NzPol