A close-up of a person’s wrist wearing a black smartwatch. The watch display shows a heart rate reading of 105 beats per minute. The text reads: Science Wednesdays: Digital Health

Digital health in clinical research means using tools like smartphone apps and wearable devices to help people take part in studies. OMF’s Melbourne ME/CFS Collaboration has developed a novel digital health tool as part of their Personalized Treatment Trials project.

👉 https://ow.ly/30x750YCVFp

Promotional graphic for the StudyME Registry. The background shows blurred researchers working in a lab. Text on a white banner at the bottom reads: “Do you want to help speed up the research process? Now you can! Join the OMF StudyME Registry: www.omf.ngo/studyme.”

🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas.

👉 Sign up today: https://www.omf.ngo/studyme/

#UnitedForME #MECFSresearch #POTS #pwME #pwLC

Hands forming a heart shape, with text reading '37 New Hope Builders – Thank You!' and the Hope Builders OMF Monthly Donor Program logo.

A heartfelt thank you to our OMF community💙

In March, we welcomed 37 new Hope Builders, surpassing our goal of 30! Your support—whether through monthly donations or engaging in other ways—is helping us make progress in #MECFS and #LongCOVID research and medical education. 🌟

Repeatable vs Reliable — OMF Science Wednesdays graphic featuring a medical stethoscope overlaid on a blue digital health and data visualization background.

🧬Science Wednesdays: Repeatable vs reliable

At OMF’s Melbourne ME/CFS Collaboration, the team is assessing the repeatability and reliability of the FUNCAP questionnaire as a measure of in-the-moment functional capacity.

🔗 https://www.omf.ngo/repeatable-vs-reliable/

The image shows a smiling woman with shoulder-length red hair, looking directly at the camera.At the bottom of the image, there is a logo featuring a heart shape combined with a globe design. Next to it, the text reads: “HOPE BUILDERS, OMF MONTHLY DONOR PROGRAM”

⏰ Last Chance to Join Our March Hope Builders Challenge

There are just 24 hours left to join the Hope Builders and make a lasting impact. We’re just three supporters away—will you be the one to help us cross the finish line?

💙 Become a Hope Builder today: https://ow.ly/JEIp50YAJut

In "Beyond the Glass," Donni is reclined in an armchair, wrapped in a yellow blanket, facing a large window. Outside, life goes on — lush, bright, and just out of reach.

Nearly 20 years ago, Donni opened her own kindergarten. Four years in, everything changed. 🤝 She now supports OMF to find real answers for #MECFS & #LongCOVID.

🔗 Read Donni's story and join Hope Builders: https://www.omf.ngo/donni-beyond-the-glass/

ART: “BEYOND THE GLASS” by Donni

A person in profile wearing glasses, hand raised to their chin in a thoughtful pose, with complex data visualizations and AI diagrams overlaid on their silhouette.The text reads: Science Wednesdays: Data artifacts

Data artifacts are flaws or distortions in data, resulting from things like how the data were collected or processed.

👉 Read more about data artifacts in #MECFS research and OMF’s Computational Research Center: https://www.omf.ngo/data-artifacts/

A woman sits on top of a yellow car surrounded by blooming spring fields, with the text "Spring Into Giving — Your vehicle donation makes an impact! Your gift is tax-deductible."

🌸 Spring into giving and make a lasting impact by donating your vehicle to OMF. It's easy, free, and tax-deductible. Learn more: https://ow.ly/gKnA50YybGP

Long COVID affects ~5.8M children, more than asthma, and is often missed or dismissed.

It’s not just fatigue; it’s loss of function.

This #LongCOVIDAwareness week, we’re sharing resources + education.

Watch full session here: https://youtu.be/no1a1A4tMfw

Announcement for ME/CFS Advocacy Week 2026 starting March 23-27 with a virtual kickoff call on March 23 at 12 pm PT/3 pm ET. Register at tinyurl.com/MEActionAdvo2026. Text-based graphic with a megaphone in top corner, text in center, and logos in bottom corners.

ME/CFS Advocacy Week 2026 starts today and it's not too late to join! Solve M.E. & #MEAction Network are building the case to make ME/CFS part of standardized medical education.

Register: https://tinyurl.com/MEActionAdvo2026

Virtual kickoff call today at 12 pm PT/ 3 pm ET!

#MECFS #pwME #MedEd

A promotional page for the Hope Builders OMF Monthly Donor Program, featuring a photo of diverse hands joined together in a team gesture, above the Hope Builders logo — a heart shape incorporating a globe, in blue tones.

OMF invites you to join our community of Hope Builders — compassionate individuals who support OMF's research with a monthly gift of just $5 or more.

Become a Hope Builder today 👉 https://ow.ly/q4G450YxGse

Thank you for your support!

Tina and her husband smile on a rocky overlook at Grand Canyon, wearing hiking hats and backpacks with red canyon cliffs behind them. ​​Overlayed at the top is a quote: “I lived a very full and active life—until ME/CFS entered it. When ME/CFS hit, all of that came to a sudden stop.”

Tina is one of the Hope Builders — monthly donors whose collective support helps keep OMF's research moving forward. This March, we're welcoming 30 new Hope Builders. Will you join us?

👉 Read Tina's story and become a Hope Builder: https://www.omf.ngo/tina-mecfs-story/

The image features a stack of colorful sticky notes with the top note displaying the text "What's Your Story?" Below the image, there's a message that reads "Your Voice Matters" and "Share Your Story Today."

🗣️ Your voice matters! By sharing your story, you help raise awareness and deepen understanding of #MECFS, #LongCOVID, and related diseases.

Whether you're a patient, caregiver, family member, or friend, your experience is important. Submit your story today 👉 https://www.omf.ngo/voices-of-m-e/

Honoring the many lived experiences with Long COVID RECOVER recognizes International Long COVID Awareness Day on March 15—a day established by the Long COVID community to increase visibility of the condition, share resources, and educate the public.

From The RECOVER Initiative: Honoring the many lived experiences with Long COVID

👉https://ow.ly/8JJc50YumfR

Graphic marking Long COVID Awareness Day on March 15, featuring a teal and gray awareness ribbon labeled "LONG COVID" on a dark-to-gray gradient background.

Today is #LongCOVIDAwarenessDay — a moment to recognize the reality facing hundreds of millions worldwide. 🌎 #LongCOVID is not a disease fading into the past. For many, it is a daily struggle with no clear end and no approved treatment in sight.

🔗 https://www.omf.ngo/2026-long-covid-awareness-day

Long COVID Resources Hub 2026

To honor #LongCOVIDAwarenessDay, Open Medicine Foundation (OMF) #MEAction Network Solve M.E. & Bateman Horne Center once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4

Printable “Critical Needs” communication cards. The sheet includes illustrated cards labeled Food, Hydration, Medicine, Toilet, Bathe, Brush Teeth, Fresh Clothes, Hygiene Wipes, and Change Sheets, plus two blank cards.

Printable “Symptoms & Sensitivities” communication cards. Illustrated cards labeled I Can’t Speak, I Can’t Think, I Am Hot, I Am Cold/Chills, In Pain, Nausea, Cramps, Touch Sensitivity, Sound Sensitivity, Light Sensitivity, and Smell Sensitivity.

Printable “Comfort” cards with icons for Do Not Disturb, TV Remote, Phone/Computer/Tablet, Decide For Me, hot pack, cold pack, pillows, blanket, wash cloth, and eye mask

nine labeled icons: Severe Reaction (911), Call Doctor, Emergency Room, Can't Eat/Drink, Can't Sit Up, Can't Move Body, Can't Swallow, Difficulty Breathing, and Chest Pain. Two blank cards are included for custom use.

From the OMF-supported MERC with @BatemanHorne: During a crash, #pwME may struggle to think or communicate clearly. Communication cards help patients point to needs like water, pain, light sensitivity, or emergencies.

Find these cards in our Crash Survival Guide: https://bit.ly/44MgSS9

A promotional graphic for the Hope Builders monthly donor program. Several people stand in a circle with their hands stacked together. Text reads, “Set up your monthly gift today!” and a blue banner says, “Become a Hope Builder.”

💙 Will you take the next step with us? Join our community of Hope Builders by becoming a monthly donor to #OMF!! 👉 https://ow.ly/aJCP50VjlWq

Your support fuels #MECFS and #LongCOVID research, bringing us closer to solutions.

A data infographic from the Open Medicine Foundation estimating the lifetime prevalence of ME/CFS, stating that 1 in 29 people will experience ME/CFS in their lifetime, totaling over 279 million people globally, with a breakdown table showing Pre-COVID ME/CFS, Long COVID, Post-COVID ME/CFS, and Total ME/CFS figures for the United States, Australia, Canada, and globally.

🧬Science Wednesdays: Estimating Lifetime Prevalence of #MECFS

Based on published research, the lifetime prevalence of ME/CFS is over 279 million people, which is around 1 in 29. 🔗 Read more about lifetime prevalence of ME/CFS: https://ow.ly/iR4q50Ysroa

Notebook with the handwritten title “OMF Journal Club” and notes reading “March 11” and “11 am ET,” next to a pencil and a cup of tea on a light blue background.

📚OMF Journal Club: March 11 at 11 am ET

Dr. Meadows will discuss the latest paper from Dr. Jonas Bergquist and collaborators: "Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection (PASC)."

👉 Sign up: https://ow.ly/qyW950YrjKe

Photo of Sebastian wearing headphones around his neck and making music from bed. Behind him are two signs: the sign on the left reads, "Tried 30 meds, none worked. #curemecfs," and the sign on the right reads, "Not tired. Sick. #curemecfs."

From his bed, Sebastian creates Drum & Bass 🎶

Two years ago, he was active, sporty, and highly driven. Today, he is around 90% bedbound. He works on music when he can & his work has reached over 1.5 million streams on Spotify. Read Sebastian's story👉 https://ow.ly/n2KZ50YpIqX

This image promotes the "Hope Builders" program, part of the OMF Monthly Donor Program. It features a group of hands joined in solidarity, symbolizing community and support. The logo includes a heart encircling a globe, and the text encourages people to "Join Our Community of Hope Builders."

Hope for people with #MECFS and #LongCOVID starts with research.

When you become a monthly donor — a Hope Builder — you provide steady support that helps sustain critical research programs and move discoveries forward.

👉 Become a Hope Builder today: https://ow.ly/V98M50YpHsm

Portrait of Dr. Wenzhong Xiao in a gray button-down shirt, hands resting on a railing, standing before a colorful molecular illustration with red‑blue helical structures. The text reads: Science Wednesdays: Significant

In the context of research, calling something “significant” is a statistical description. It’s a term that indicates it’s unlikely that random chance could explain a result.

🔗Learn more about calculating significance in #MECFS research: https://www.omf.ngo/significant/

Graphic announcing a new publication titled “Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection,” featuring the OMF logo and a headshot of Dr. Bergquist in a suit and red tie against a blue scientific background.

Dr. Bergquist & his collaborators published a paper looking at protein levels in people with post-acute sequelae of SARS-CoV-2 infection and controls who recovered from a SARS-CoV-2 infection.

🔗 Learn more about this publication and the next Journal Club: https://ow.ly/mwbX50YoHEn

Blue background with big data concept: motion of digital data flow. The text reads: Is the OMF’s ME/CFS BioQuest Study the Study We’ve All Been Waiting For?

In 2025, OMF launched a large-scale #MECFS biomarker project called BioQuest. Cort Johnson’s article explores the study and includes insights from Dr. Danielle Meadows, OMF’s Vice President of Research Programs & Operations.

🔗 Read the article here: https://ow.ly/zgGn50YocTW

🤝 Be a Catalyst for Change: Join Hope Builders

Hope Builders are our cherished monthly donors. This March, we’ve embarked on a mission to welcome 30 new Hope Builders by the month’s end.

Will you be one of them? 💙Join us and fuel progress: https://ow.ly/Ep7m50YnEOO

From the OMF-supported Medical Education Resource Center (MERC) with @batemanhornecenter.bsky.social ⬇️

The image shows a stylized, glowing blue brain formed from interconnected lines and geometric shapes. The text reads: Science Wednesdays: Encephalopathy

Encephalopathy generally describes a condition that affects brain function. There are different causes of it, including infection, exposure to toxins & more. Learn more about encephalopathy and the Uppsala CRC investigation into post-viral encephalopathy: https://www.omf.ngo/encephalopathy/

A graphic for StudyME from OMF. It says, “Over 15,000 Participants Joined! Can we reach 16,000?” with lab and research images below. The StudyME logo is at the top, and the link www.omf.ngo/studyme/ is at the bottom.

Photo showing a summary of research studies conducted by universities and institutions around the world. The page includes icons and counts for different study types: Biobank, Registry, Remote/Online, and In-Person/Hybrid.

🎉15,000 Participants and Growing: The OMF StudyME Registry

🌎 StudyME is a free global participant registry, serving as a recruitment tool to accelerate research on #MECFS, #LongCOVID, and other related illnesses.

Learn more and join StudyME today: https://ow.ly/3ALK50Yl576

OMF graphic recognizing National Caregivers Day on February 20.

OMF honors and recognizes the dedication of caregivers who provide daily support, advocacy, and stand beside loved ones living with #MECFS, #LongCOVID, and related diseases.

To every caregiver: thank you. You make a difference. You matter.💙