To honor #LongCOVIDAwarenessDay, Open Medicine Foundation (OMF) #MEAction Network Solve M.E. & Bateman Horne Center once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4
Teal and gray ribbon symbolizing Long COVID awareness with logos of Bateman Horne Center, Solve M.E., OMF, and #ME Action above text promoting Long COVID resources.
To honor #LongCOVIDAwarenessDay, @meactnet.bsky.social @solveme.bsky.social @batemanhornecenter.bsky.social & @openmedf.bsky.social once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4
#LongCOVID #pwME
Teal and gray ribbon symbolizing Long COVID awareness with logos of Bateman Horne Center, Solve M.E., OMF, and #MEAction above text : "Together, we're highlighting Long COVID resources! Long COVID Awareness Day"
To honor #LongCOVIDAwarenessDay, #MEAction Network, Solve M.E., Bateman Horne Center & Open Medicine Foundation (OMF) once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4
#LongCOVID #pwME
Check out this helpful resource from our friends at @batemanhornecenter.bsky.social!
#pwME #disability #UnitedForME
Screengrab of meeting with CEOs and staff from Solve M.E., Bateman-Horn Center, #MEAction, and Open Medicine Foundation.
We met up with our friends at
@meactnet.bsky.social ,
@openmedf.bsky.social y.social
and @batemanhornecenter.bsky.social
this week to share ideas.
We're so grateful for our partners!
#UnitedForME
Great group! #StandByMEcfs #UnitedForME
Six individuals in a virtual meeting. Text reads: "Strong leadership creates strong results." Logos of Bateman Horne Center, OMF, Solve M.E., and #MEAction displayed below.
Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work.
Progress isn’t always visible, but it is happening. And we’re doing it together.
#UnitedForME
Great group! #StandByMEcfs #UnitedForME
Graphic with the StudyME logo, showing a blue interconnected globe and the text ‘Accelerate Research – Join OMF StudyME Registry,’ along with the OMF logo in the corner.
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
Blue heart with the text "Self-Care for Carers" in front. Emerge Australia logo is in the bottom left corner.
Being a caregiver often means putting another person’s needs first. @emergeaustralia.bsky.social's Self-Care for Carers guide offers strategies to help protect and balance their own wellbeing.
🩵 Read it here 👉 https://bit.ly/47xsysl
#mecfs #caregiverawarenessmonth #unitedforme
When a loved one with #MECFS or #LongCOVID experiences a crash, knowing how to respond matters. 💙 Our Caregiver Guidance resource offers practical steps for safe, compassionate support during post-exertional malaise (PEM).
Read it now: https://bit.ly/44ZtO4R
#UnitedForME
1 in 4 people with #MECFS are housebound or bedbound. 💙 @emergeaustralia.bsky.social’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing.
Read more: https://bit.ly/4nD2Add
#UnitedForME
Graphic with workshop details and a photo of Kim Moy (smiling Asian American woman with light-medium skin tone and graying hair, wearing a blue top and colorful scarf standing outside.) Text: Join Us Live Workshop Top 10 lessons from 20 years of caregiving with Kim Moy. Sunday November 16 3 pm ET Get your tickets now. (QR CODE)
Join us TOMORROW - Nov. 16 at 3 pm ET for a workshop for caregivers: Top 10 Lessons from 20 Years of Caregiving by Kim Moy. ow.ly/gtAP50XlbZb
Do not miss our 2nd workshop especially for parent caregivers coming Nov. 22.
#PwME #UnitedForME #Caregiver #ChronicIllness
ME/CFS caregiving often requires navigating many logistics. Last year, we partnered with caregiver Galen Warden @galen2.bsky.social to share a practical guide covering medical proxy, disability, transport, clinic accommodations, and more: https://bit.ly/4hCSpDP
#CaregiverAwarenessMonth #UnitedForME
Do you have a spare room to rent?
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.
For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.
This week’s focus: the Employee Retirement Income Security Act (ERISA).
Download our one-pager here:
solvecfs.org/wp-content/u...
#UnitedForME
Logos of organizations above the text: "Together, we’re highlighting Caregiver resources & events with one united hashtag: #UnitedForME" for National Family Caregivers Month.
This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support.
Together, we’re stronger, and united in care. 💙
Follow and share using #UnitedForME
Would you like to make a difference to people’s lives today?
Please donate to David Tuller’s crowdfunder!
David’s been a courageous voice for people with #MEcfs & #LongCovid across the world for over a decade
We’re too sick to properly advocate for ourselves & need support!
#SevereME #UnitedForME
It’s National Family Caregiver Appreciation Month 💙 We’re sharing resources from @meactnet.bsky.social , @openmedf.bsky.social & @solveme.bsky.social — all supporting families caring for those with ME/CFS, Long COVID & other IACCs. #UnitedForME
Can you help in any way please:
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
@ris-law.bsky.social is there anything the #MEcfs community can do to help besides fundraising to help the #JusticeForME campaign please?
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
A person wearing an orange shirt is standing indoors, leaning slightly against a wall, and covering their eyes with one hand as if feeling dizzy. Below the image, text reads: “Living with Orthostatic Intolerance (OI)” followed by a quote: “If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.” — Melanie Hoppers, MD.
From the OMF-Supported Medical Education Resource Center (MERC) at Bateman Horne Center:
Orthostatic intolerance & #POTS are common in #MECFS & #LongCOVID. Learn signs + management tips: ow.ly/iz3b50Xb2QJ
#POTSAwarenessMonth #UnitedForME @batemanhornecenter.bsky.social
Woman leaning against a wall with her hand on her forehead, appearing fatigued. Text reads: "Living with Orthostatic Intolerance (OI)."
“If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.”
— Melanie Hoppers, MD
OI & #POTS is common in #MECFS & #LongCOVID. Learn signs + management tips: https://bit.ly/4eLc3eY
#POTSAwarenessMonth #UnitedForME
Thank you so much Jaime!!
@halcionandon.bsky.social
we’re trying and we’re sending loads of love and support 💙
#UnitedForME #JusticeForME
“I fear being conscripted.”
For Severe ME Awareness, Max in Ukraine shares his story of illness, resilience & fear during war.
Read here: buff.ly/I5q60OW
#SevereME #MECFS #UnitedForME
Hal Walker, Ohio musician & writer living with severe ME/CFS, shares how “welcoming it all” helps him face the storm of illness. From his bed, he weaves music, stories & community—including ours. 💙
Shared during Severe ME Awareness Month.
🎧 Ep. 103: buff.ly/DRRT1gF
#MECFS #UnitedForME #SevereME
Thank you to over 100 people who submitted artwork for the 5th year of this project. All artwork is by people with Severe Myalgic Encephalomyelitis. Some artwork might have been created before they were severely ill and some created while severely ill.
#SevereMEday #UnitedForME
August is Severe ME Month.
Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp
💙 We stand with them.
#SevereME #MECFS #UnitedForME
In this video, Hollis Mickey, who lives with severe ME, shares how the energy management needed for survival can also feel like a profound loss.
#UnitedForME #MECFS #SevereME @solve_cfs
Let's head to a virtual art gallery together! The Severe ME Artists Project just debuted it's 5th year!
We have a powerful selection of writing, videos, and still art. Please spend some time perusing and share! www.meartistsproject.com/severe-me-ar...
#pwME #SevereME #UnitedForME #art
