Vote YES, Virginia. Click the link to hear Obama speak on protecting free and fair elections. www.instagram.com/reel/DVgPM9o...
Visit Virginians for Fair Elections here: www.virginiansforfairelections.com?gad_source=1...
You are not alone. My 38 year old son's days are much like yours. You are both unbelievably brave and courageous warriors waiting for effective treatments and a cure. Wishing you continued hope and courage and better days soon!
Thank your for checking, Tay. The meds help maintain but not improve. He is in very rough shape. Thank you for keeping him in your prayers.🙏❤️
I had a very serious medical incident happen right after posting my last video about talking again and have been through a lot…I'm ok now, I’m recovering…
Read or listen to the whole piece on my blog👇
www.whitneydafoe.com/mecfs/?post=...
#mecfs #chronicillness #pwME #LongCovid #resiliance
Thank you for this. It echoes my son's experience; it's heartbreaking to know how many lives are silenced. Thank you for your courage and determination; your words encourage others - the ripple effect. It makes a difference! My son worked at OMF until he got COVID. Hoping for your improvement! 🧡
Today, the Trump administration repealed the endangerment finding: the ruling that served as the basis for limits on tailpipe emissions and power plant rules. Without it, we’ll be less safe, less healthy and less able to fight climate change—all so the fossil fuel industry can make even more money.
We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support.
Free, practical, and built for real life.
🔗https://bit.ly/3ZBBIAC
The 19 Buddhist monks carrying a message of peace made it to Richmond on Monday, the 100th day of their walk from Texas to D.C.
The mayor’s office estimated 10,000 people lined the route through the city. https://wapo.st/3NUrWaj
A moving 'thank you' from a longCOVID patient to the ME/CFS community. Worth a read.
centerleftstack.substack.com/p/those-who-...
www.youtube.com/watch?v=cSC-...
WE THE PEOPLE
Stand together.
Share broadly on social media. Pass it on to friends and neighbors. Take the message viral.
Inspired by Heather Cox Richardson's Tuesday, January 27 Politics Talk on YouTube.
Philip Glass boycotting the Kennedy Center
Philip Glass boycotting the Kennedy Center
Philip Glass boycotting the Kennedy Center
Philip Glass
Philip Glass
Philip Glass
Philip Glass
Philip Glass boycotting the Kennedy Center
👇🏼👇🏼👇🏼
Large text reads, 'INSIDE OMF: YOUR QUESTIONS, OUR ANSWERS.' There are two photos: on the left is Linda Tannenbaum smiling, and on the right is Danielle Meadows, also smiling.
On January 21 at 1:00pm ET, Linda Tannenbaum (CEO and Founder) and Danielle Meadows, PhD (VP of Research Programs) will host a webinar with the objective of answering your questions about OMF and its research.
Register for the webinar: ow.ly/IyGz50XWboB
Submit question: ow.ly/81OM50XWboA
Thank you, Tay. This is definitely challenging. Grateful to be able to care for my son. He is remarkable!
Hi Tay,
Thanks for checking. We continue on. Trying a new med that may take a while to show results. VCU clinic on hold for now. Keeping an eye on new research and potential treatments. Many ME/CFS patients are ill for decades. We remain hopeful. "Hopefulness is the warrior emotion..." -Nick Cave
Today, I am reflecting on the bravery of the officers who heroically defended our Capitol on January 6, 2021, from violent insurrectionists sent by Trump. We must never forget the five officers, all Virginians, who lost their lives due to the attack.
youtube.com/shorts/0PLaJ...
Just caught this 2011 interview with Bill Moyers posted recently by @democracynow.org -- He saw it coming a long, long time ago. Guessing he wasn't alone. Anyone working in the industry felt it. Thank goodness for independent journalism.👏👏
www.democracynow.org/2025/12/26/r...
Key highlights from 2025: 40 active research projects underway; 16 new scientific publications and one preprint; StudyME registry with over 14,500 participants supporting 21 studies worldwide; launch of BioQuest, the largest biomarker discovery study in ME/CFS research; progress in the Life Improvement Trial (LIFT); and release of a Clinical Care Guide for ME/CFS and Long COVID through the Medical Education Resource Center.
Because of our community, 2025 moved the field forward. Since 2012: $60M+ raised, 76 projects, 53 publications.
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
Devastating. Trump admin selling off historic public art to the highest bidder. "It is a tragic irony that murals meant to represent the contract between the government and its citizens would be sold to the highest bidder rather than preserved for posterity." www.alternet.org/trump-destro...
✨Last Chance to Triple Your Impact! In this interview, all of OMF’s Directors talk about how their overarching hypotheses of #MECFS might explain how symptoms look different in different people.
🔗 Watch now and support OMF's research: www.omf.ngo/interview-wi...
#GivingTuesday
Giving Tuesday, Dec 2. Spread the word! Bateman Horne Center logo at the bottom.
Giving Tuesday is coming up soon. 💙
This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.
More details coming soon, stay tuned.
Estelle holds a white sign with black text that reads: “ME/CFS is a profound loss of identity. It is watching most of the things we once held dear growing further out of reach.” Below the photo, on a blue background, large white text reads: “48 hours left! Make your gift count 3x.Donate today: www.omf.ngo.”
Only 48 hours left to make your gift count 3x ⏳✨
Triple Giving November is your chance to help accelerate research into #MECFS and #LongCOVID. Every donation is tripled through December 2 (up to $1M). There’s still time!
💙 Donate today: ow.ly/kUgC50XA0Mb
CHIPPING AWAY AT THE MYSTERIES OF #ME/CFS
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
I was hacked. Don't try to open it. Glad you checked!
Destruction of the White House East Wing began today. Here it is in better times with better residents.
Hi, Tay. Thanks for checking in. Brent does have some basic home care, but the VCU group that can really help him won't come to the house. Good news is we have a wonderful new physical therapist, and he is making some small progress with her. We are on a very long road....
This is precisely the kind of government coercion that the First Amendment was designed to prevent — and media companies need to start standing up rather than capitulating to it.
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To collect tips, we use encrypted forms and apps, so messages cannot be read by anybody other than you and ProPublica.
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9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American."
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
