QR Special: The cruelty of Long Covid
👩⚕️ The brutal physical, mental, emotional, social & professional impact
😳 HOW many affected?
🚑 The battle to be taken seriously
With @mrkennycampbell.bsky.social & Claire Higham
🎧 open.spotify.com/episode/1YGg...
🍎 podcasts.apple.com/us/podcast/t...
1/ In response to Emily Mendenhall’s recent Substack on critiques of her book Invisible Illness by the community & Wessely's legal threats.
Anthropology is often open to dialogue & critique, so let’s situate this moment historically & structurally. 🧵
open.substack.com/pub/emilymen...
IOE academics weigh in on the Curriculum and Assessment Review, a 🧵
"Cooperation, more than competition, will secure young people’s futures... knowledge without the capacity to bring about change is a fast-devaluing currency" says @ruperthigham.bsky.social
www.theguardian.com/education/20...
📢 Our Campaign Guide is out!
It deals with common media traps that we need to know how to deal with
🗣️ Part One covers the ‘Bait & Switch' tactic: ‘Its not ALL in you Head But…’
Easy-to-read download & audio included
💌 Help us shift the paradigm and share away!
Phenomenal journalism investigating the FII crisis for families with disabled, ill & vulnerable children by Emily Dugan.
We know this is negatively impacting #LongCovid families & urgent change is needed to the @rcpch.bsky.social FII guidelines. 🧵1/7
TW
🗞️🖇️ tinyurl.com/bdcrsxrj
💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
We have serious concerns about the appointment of Dr Terry Segal as paediatric expert in the @covidinquiryuk
This is due to her problematic history with ME, association with BACME & present framing of #LC
🧐What does the evidence say? /1
This is a great statement - it captures many aspects of a dire situation and offers solutions.
So good to see ME and Long Covid charities and advocacy organisations standing shoulder to shoulder.
#WorldMEDay
Self portrait of me (39 year old ww with wavy dark hair wearing sweatpants & a blue robe) seated in bed with my chi mix on my lap. I’m holding a sign that says Fuck M.E. in white all-caps over black
Fuck M.E. in white all-caps over black
TLDR: This is an SOS. If you don’t have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! 🙏🏻💙
#MEAwareness
#MillionsMissing
#DisabilitySOS
#WorldMEDay
#GreatestMEdicalScandal #MyalgicEncephalomyelitis
#MECFS
#LongCovid
"We constantly hear there’s no money left,” Polanski said, “but actually there is a lot of wealth in this country… but we are taxing people who are working really hard far more than we’re taxing wealth.” He added: “that’s totally the wrong way round!”
www.newstatesman.com/the-weekend-...
New article:
School Leadership in the Anthropocene: Four Pillars of an Intelligent, Humane Response
With my UCL colleagues, David Godfrey and Monica Mincu. Full text and summary available here. Enjoy - and be in touch!
responsibleleadershipblog.wordpress.com/2025/02/24/s...
Proud to endorse Zack Polanski to be the next leader of The Green Party.
Zack is inclusive and welcoming to new members and understands the urgent need for The Green Party to become a broad church. He is also ready to take the fight to all shades of Toryism.
No narrow party can rise to get into government. The current Labour Party is dying on its feet because it's dogmatic and has lost touch. The Greens welcome socialists, and others too. The Labour Right couldn't take it over if they tried.
Brave move, Zack - and a good one. Your senior Green colleagues are great, but the message isn't cutting through. Reform have all the momentum. Ethical left populism is what we need.
#BackZack
We need bold leadership. Now.
That's why I'm running to be the next leader of the Green Party.
Join our campaign: backzack.com
#BackZack
We are proud to campaign alongside disabled people in our constituencies. They are not expendable. They are not a burden. They are not – as Frances Ryan writes - a cost to society . They are our neighbours and friends, and they deserve to live healthy, social and fulfilling lives just like anyone else. If ministers took the time to speak to people with illnesses and disabilities, they might understand not only the hardships they face but their humanity that successive governments have denied. There is an alternative: treat disabled people with care, respect and dignity instead.
Thanks to @jeremycorbyn.bsky.social for mentioning my work in his piece about Labour’s disability benefits cuts. The narrative that disabled people are “a cost” on the rest of society is pernicious and becoming more and more engrained. www.mirror.co.uk/news/politic...
Excellent article on our increasing brutishness towards neurodiversity, disability and unhappiness.
www.theguardian.com/commentisfre...
Digital graphic on dark blue featuring magenta headings and text: "Long Covid Awareness." White text describes long-covid. Below left are magenta hashtags related to the campaign. A circular crop on right contains a protest scene. The protesters hold signs saying: "Long Covid Me/CFS Destroy Lives," "1.9 million Have Long Covid," and other statements of protest. The upper right corner features a magenta hand icon. Bottom text promotes the 'Voice of Reason' campaign with website.
💌 We're started the #Postcards4LC campaign for #LongCovidAwareness because we urgently need funding for:
⭐ biomarkers
⭐ pathophysiology
⭐ treatments
@ashleydaltonmp.bsky.social
@england.nhs.uk
@nihr.bsky.social
#LongCovidAwarenessDay
Writing my postcards to @ashleydaltonmp.bsky.social and more for #LongCovidAwarenessDay as part of @longcovidadvoc.com campaign
We need funding now!
#pwME #LongCovid
Dear @sadiqkhanlondon.bsky.social,
I was invited to join your roundtable with Thames Water.
Will you call for them to be nationalised?
Stopping us from being there isn't going to stop me asking the questions!
📣Another blog post I hear you ask? Yes! Here's today's with @clairetyler.bsky.social & Catherine Dilnot:
🎤Testing, Testing – Why are Black applicants not getting graduate jobs?🎓💼
Black applicants are 45% less likely to get a graduate role than their white peers
blogs.ucl.ac.uk/cepeo/2025/0...
📺 Our #pedanticzebra book club recording is now available!
We have a fascinating discussion with @jonathanstea.bsky.social that covers:
▶️ Pseudoscience
▶️ US Politics & misinformation
▶️ The Lightning Process
Audio, video & text versions available
Links below👇
www.youtube.com/watch?v=lP6B...
It's not nothing, and these should have been reported. But it's such small change. Monumental lack of ambition, vision and urgency from a Labour government.
"While much of society does not consider or advocate for us, we continue to deliver the news and share our stories."
@mileswgriffis.bsky.social in @thesicktimes.bsky.social, reflecting on five years of Long COVID: thesicktimes.org/2025/03/07/h...
Thank you graphic celebrating 15K followers, featuring large gold and silver "15K" text, pink butterflies, and a "Thank You!" message in a stylish font, with the text "FOLLOWERS" below and the website handle "@LONGCOVIDADVOC.COM" at the bottom, alongside a verified badge.
👀It is important in these times to have choices to where we place our social media attention.
👩💻So, we've worked to create a viable community on Bluesky.
🥳To celebrate your support we are now VERIFIED!
Looking forward to this panel @ucl.ac.uk next Weds 5-7pm.
5 years since covid, what are the lessons for communicating in a crisis?
Jonathan Van-Tam
@profaliceroberts.bsky.social
@susanmichie.bsky.social
Professor Jack Stilgoe
Dr Philip Ball
and me!
www.eventbrite.co.uk/e/communicat...
New, open-access publication:
English headteachers are deeply conflicted: they know they must lead on climate change education, but feel overwhelmed by competing responsibilities.
Please read and share.
#educationalleadership #climatechange
#BELMAS
www.tandfonline.com/doi/full/10....
💙 LCA wholeheartedly supports @thereforme.bsky.social #FundThePlan campaign.
It is crucial that strong foundations are formed for #pwME and that means investment.
One of our members explains below in our video contribution. 1/8
youtube.com/shorts/4yCiM...
