This World Health Day, we bring attention to one of the biggest challenges in neurodegenerative diseases: late and uncertain diagnosis.
🧠 PREDICTFTD aims to transform FTD diagnosis by overcoming the current 3.6-year diagnostic delay!
#WorldHealthDay #FTD #Biomarkers #EUProjects
Day 2 of the PREDICTFTD project meeting in Desenzano del Garda. 🌍
A focused day covering biomarker work, AI modelling, and an overview of the olfactory (nasal) swab sampling. We also had important discussions on the regulatory roadmap and ethics - important pieces as the project moves forward.
Day 1 of the PREDICTFTD consortium meeting in Desenzano del Garda!
We kicked off with updates across the project, from ongoing work packages to a really interesting demo of how our data systems are coming together.
More tomorrow.🚀
#PREDICTFTD
In light of Brain Awareness Week, we are preparing for our upcoming team meeting. 🌍 The PREDICTFTD partners will meet in person on March 26–27, 2026, in Desenzano del Garda, Italy.
Looking forward to two productive days of discussion and exchange. 🧠
This Brain Awareness Week, we’re spotlighting the fight against FTD. 🧠
Our goal is vital: to give clinicians the tools they need to diagnose FTD faster, enabling earlier intervention and better care. Learn more about our approach: www.predictftd.eu
The recent @alzheimereurope.bsky.social Europe data on dementia prevalence across Europe is a strong reminder of the growing impact of neurodegenerative diseases!
www.alzheimer-europe.org/dementia/pre...
During #BrainAwarenessWeek, we'd also like to share our new "Prevalence of Dementia in Europe 2025" report. The results show that policy and advocacy are more important than ever.
🧠Where does your country stand?
bit.ly/DementiaPrev...
bit.ly/DementiaPrev...
#dementiaprevalence #dementiaineurope
Discussion paper and guidelines for the ethical use of technology for and by people with dementia
Learn more about the Working Groups: https://www.alzheimer-europe.org/about-us
Geschlecht, Gender und Sexualität im Kontext von Demenz: Sensibilisierungsleitfaden für Fachkräft e im Gesundheitsund Sozialwesen
Sexe, genre et sexualité dans le contexte de la maladie d’Alzheimer et des maladies apparentées : Guide de sensibilisation à l’attention des professionnels de santé et du secteur médico-social
People with #dementia and carers are experts in lived experience. This #BrainAwarenessWeek, we recognise that #PublicInvolvement shapes research, policy and awareness. #EWGPWD #EDCWG
Learn more about:
Technology use:
bit.ly/4sSR5Bv
Sex, Gender and Sexuality
bit.ly/4s9DmpJ (DE)
bit.ly/4seWClT (FR)
🔬@Leitat Technological Center, Spain, participate in the assessment of the diagnostic potential of biomarkers for FTD detection in the PREDICTFTD project. LEITAT works on biomarker analysis and validation, leading Biomarkers study using Luminex Technology. ✔️
🔗 Discover more: leitat.org
🌍Teraglobus is a Lithuanian SME engaged in dissemination, exploitation, stakeholder involvement, and healthcare consulting within EU-funded projects.
🔗 Discover more: www.teraglobus.lt
📣 Our first PREDICTFTD newsletter is out!
👉https://www.predictftd.eu/newsletters
Open the link to read the newsletter and learn more about what we’re working on.
As part of our partner introduction series, we’re excited to feature Alzheimer Europe.
🤝 In the PREDICTFTD project, @alzheimereurope.bsky.social plays a central role in involving people affected by FTD, raising awareness, engaging stakeholders, and building a dialogue with EU policymakers.
For PREDICTFTD, our partner @dzne.science offers extensive FTD patient data, including MRI, neuropsychology, and genetics. DZNE supports retrospective data collection and delivers patient samples for biomarker analysis and evaluation.
🔗 Learn more: www.dzne.en
🧠 On Nov 7, the PREDICTFTD consortium meets online for its Plenary Session, a key moment to review progress, strengthen coordination, and plan next steps toward advancing early, accurate diagnosis of frontotemporal dementia.
#PREDICTFTD #DementiaResearch
🧠 The PREDICTFTD leaflet is now online!
Discover how the project advances early and accurate diagnosis of familial and sporadic frontotemporal dementia (FTD) through predictive liquid biomarkers and AI-assisted diagnostic tools.
Find the leaflet and share👉 www.predictftd.eu
The PREDICTFTD project will participate in the 35th Alzheimer Europe Conference (6–8 October 2025, Bologna).
Looking forward to connecting with colleagues, sharing insights & exploring the future of dementia care.
▶️Find out more: www.alzheimer-europe.org/conferences/...
Frontotemporal dementia carries a major economic & societal burden, worsened by delayed diagnosis.
Within PREDICT-FTD, OHE explores costs, caregiver impact & the case for biomarker-based diagnosis. Read more: www.ohe.org/insights/the...
For many families, FTD starts with confusion and delayed answers.
💜 This #FTDAwarenessWeek, we call for earlier recognition and better support. In PREDICTFTD, with Alzheimer Europe, lived experience guides efforts to improve diagnosis and quality of life.
It’s FTD Awareness Week
Hearing from those living with FTD shows resilience & determination beyond diagnosis.
In PREDICTFTD, board member Margaret works with Alzheimer Europe to ensure that lived experience guides research and improves outcomes for patients and caregivers.
This week is #FTDAwarenessWeek
FTD often goes unnoticed & misunderstood, yet behind every diagnosis is resilience, struggle & love.
Real experiences are vital for PREDICTFTD. Stephen, dementia advocate & board member, joins Alzheimer Europe to bring his experience to the center of awareness & change
🚀 Continuing our Partner Introduction Series: @idibaps.bsky.social
🧠 The Alzheimer’s and cognitive disorders unit specializes in early and preclinical neurodegenerative dementias. They bring valuable samples and data from previous FTD cohorts and will recruit patients for PREDICTFTD as well.
🚀We begin our partner introduction series with @erasmusmc.bsky.social, which hosts the Biomedical Imaging Group Rotterdam (BIGR) — a team of 40 brilliant AI and imaging researchers. They coordinate and oversee data infrastructure, data collection, project management, and AI model development.
In the near future, a person could walk into a clinic, provide a blood sample, and—within weeks—receive an accurate, AI-assisted diagnosis that not only detects Frontotemporal Dementia (FTD) at an early stage but also identifies its molecular subtype. This is the vision of PREDICTFTD.
🚀 The PREDICTFTD Website Is Now Live! 🧠
Explore how we're working together to enable earlier and more accurate diagnosis of FTD—paving the way for tailored care and treatment.
📍 Visit us at: www.predictftd.eu
PREDICTFTD is funded by the European Union under the Grant Agreement n° 01156175.
🔬 Our Mission in PREDICTFTD
We are proud to be developing a cutting-edge diagnostic tool for the early detection of Frontotemporal Dementia (FTD) — enabling tailored care and support.
Through the integration of:
✔️ Liquid biomarkers
✔️ AI-powered diagnostic algorithms
✔️ Multimodal clinical data
🧠 Why PREDICTFTD?
Frontotemporal dementia (FTD) has a debilitating effect on patients, caregivers, and healthcare systems.
🔍 While 15–30% of cases are genetic, the majority — 70–85% — are sporadic, often leading to frequent misdiagnosis and an average delay of over 3.5 years before diagnosis.
💡 Members of the PREDICTFTD Public Involvement Board gather online for the first time to discuss different aspects of a Frontotemporal dementia diagnosis. This consultation was attended and facilitated by Soraya Moradi Bachiller, Public Involvement Officer at Alzheimer Europe.
We are thrilled to share the wrap-up of the PREDICTFTD project Kick-off Meeting!
@erasmusmc.bsky.social
@leitat.bsky.social
@dzne.science
@unihalle.bsky.social
@idibaps.bsky.social
@ohenews.bsky.social
www.youtube.com/watch?v=hwhH...
