You're not wrong!!! 🧡
Posts by Susannah
Wow that's amazing! So glad for you!
My mental health has calmed from *constant* extremes of bad, to just about coping most days, with bad days interspersed, which is the biggest improvement. Body is still crap, but that's par for the course ha.
Heya Eric!
Dragged to SM by friend being dragged by someone wasn't how I expected to be back lol.
Been a slog of a time, tbh, but hanging in! How are you??? 🧡
And on she continues with her public lashing, showing exactly who she is. But you are the one who is mean to *her*? Oof. Anyone reading can see it's not fair or realistic.
I respect the hell out of you for largely staying out of this toxic whirlwind. It's *intense*!
Love you so much!
But you didn't finally do yourself in running around after the healthy woman having a crap week?! Aren't you an absolute horror!! 🙄
I hate seeing you forced to endure this tirade while so ill, flaring your condition severely. It's frankly brutal. Her blocking/hiding anyone who calls her out on this cruelty says it all.
By the way, as your friend, someone who knows best, you are VERY far from a crap friend. You're damn awesome!
I don't think you have any idea how cruel a thread like this is, nor how deeply damaging - especially aimed at someone who is so extremely ill, struggling every single day to manage even the very most basic of life needs, with NO help
If you care for her, you've sure had a strange way of showing it
Omg, I'm so horribly sorry you needed to ask this question, Ben, & that I didn't see till now! I've just been unable to handle SM, whilst navigating a pretty horrible state of mental health. I'm OKish, just communication is really, really hard right now!
Appreciate you, and miss being with y'all! 🧡
I'm broken to hear today's news!
I will always remember Tinu as one of our most kind, an incredible advocate, & a community foundation.
Tragically, her journey personifies the 100% letdown this world is, and the unrelenting harm it has wrought on our community.
There's no word for this emotion.
Learning of Tinu’s passing brought me back to socials for a minute.
Every person refusing to mask is responsible for the worsening health & isolation of disabled people.
Unmasked healthcare workers caused Tinu to have Long Covid on top of cancer. They killed her.
We are laughing hard. Feel free to join late!
Join the free screening this afternoon at 2pm EST
Sure! Hope the poor wee boy feels better soon! 🧡
Oh... And we kept it rolled back some for drinking when we were around, but rolled fully out overnight and if we were out, to prevent them accessing the wounds. Kind of tricky, but it really made a difference!
I hope you find something perfect! 🧡
The nice thing is you could roll it back for them to more easily access drinking and such.
Difficult thing is that different shapes will suit different animals better!
Only with small dogs, not cats, but we had luck with the kind that are the same shape as this, but soft and very slightly padded. HUGELY better than plastic! We tried a blow up one, too, at one point, but the girl we tried it on seemed more uncomfortable with that one than the standard shape.
I love kitty-burglar! 😻
Free Heated Blanket for Disabled People We know life costs more for disabled people. Not all disabled households can reduce their energy or water usage. And, you may feel you've tried all you can to cut back on costs. Scope is working in partnership with Southern Gas Networks (SGN), to offer disabled households within the SGN network area a plug-in heated throw blanket. This is to ensure that disabled people with limited mobility are comfortably warm. Even if they are unable to heat their homes adequately due to cost.
SGN are giving free heated throw blankets to disabled people living in their area. More info by emailing Disability.EnergySupport@scope.org.uk #MECFS #ChronicIllness
Not when I can avoid it, haha. 😅
Thanks!!
Oh, thank you! I'll try and have a look there!
And yes, really!! The worst thing is that you know it's just so they can catch people out! 🫠 I am so tired with how stacked against us everything is all of the damn time.
They see us as having no worth if no work - yet cannot work or poverty. Lol.
Thanks, lovely!!
This system is so purposefully and cruelly complicated, and grey area'd. Researching it is exhausting. Places I could ask for help are hard to access or require payment.
Damned ableist nonsense!!!
Does anyone know the UK benefits system well enough to be able to tell me how much money I can "earn" if I'm in the ESA support group on the highest rate, plus I have a direct payments care package...?
I say "earn" since it's not actual employment, legally speaking.
#NEISvoid
This foggy, memory-damaged post-viral girl cannot find the flaw in the logic!!!
People who want to talk about politicians in cognitive decline best also concern themselves with preventing the spread of Covid.
OvercomeDis Screening Series. Champions. Sun Feb 3rd, 2pm EST & 5pm with Audio Description.
First screening of the day is in about an hour
Champions at 2pm EST
Playing on Hyperbeam: hyperbeam.com/v/dis-movie-...
Followed by a replay with audio description at 5pm EST.
OvercomeDis Screening Series. Champions. Sun Feb 3rd, 2pm EST & 5pm with Audio Description.
Today we have a free online screening of
Champions
Playing on Hyperbeam: hyperbeam.com/v/dis-movie-...
2pm EST, followed by a second viewing, this one with audio descriptions, at 5pm EST.