Join us today, Friday March 27 at 1 pm ET! Let's get ready to rumbllle! Or un-rumble, if that's what your stomach needs 😅
Registration link: us06web.zoom.us/webinar/regi...
We'll talk all things brain and gut in #LongCovid and #MECFS with neurogastroenterologist Dr. Zac Spiritos!
My son published the first book of a series he is writing. IF you can, please support him for yourself (if you like the genre) or to gift to someone.
a.co/d/6T0qJYr
Herbal cabinet #1 mostly 2025 harvest, some tools and some canned produce
Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
Help us keep patients at the driver’s seat this #givingtuesday2025 by donating and sharing if you can or sharing widely if you can’t donate.
My son has written book one of a series he is writing. If you read and like it, please share it.
The cover illustration was done by my daughter
linktr.ee/intheeyesofgods
I call this the Hypermobile friendly chair and it’s on sale for 75% off in brown or gray.
If you order, please consider using @RenegadeRes Amazon link to purchase
amzn.to/3MlH5Aq
Please help us fundraise without additional cost to you!
I have a doctor in Ireland I can connect them to that will do virtual visits
Please help our non-profit with your purchase or by sharing with others
The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...
Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
3. Mine are with medications that help my autonomic function
1. 58
2. 64
3. 10-15
4. Night time 30 (oura) day time 41 (polar H10 w/elite HRV)
5. Function level -mild (can do most things)
Symptom level - moderate (with meds and supps)
2.
1. Average HR while sleeping
2. Average HR daytime while awake & sitting
3.average HR increase from laying down to standing
4. Average HRV
5. Severity level
My answer in the next comment
1. This is difficult to do on an standard poll but curious where everyone sits if you are willing to answer the following questions in the comments.
Please specify if your numbers are with it without medication that stabilize your HR.
The petition for appropriate care for Sanne is past 2,500 sig. Let’s join #pwME #MEAwareness #MECFS #GreatestMEdicalScandal forces 🙏🏻.
We can sign from anywhere in the 🌎
@meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social
The text reads “University hospitals refuse ..
2. Watch the recording and fill out the interest form if interested.
Recording of the info session youtu.be/r_N9apL7k1E?si…
Fill out the interest form docs.google.com/forms/d/e/1FAIpQLSf1ky9u...
1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
comment
About to season my shoulder like I season my lamb chops 🤣
Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden.
Will add castor oil to the finished product.
These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.
2. Looking at blood pooling, cold spots, suspected compression, mechanical & molecular factors impact patterns.
1. Has anyone tracked their body temps in different parts of the body with infrared thermometers and correlated with dysautonomia symptoms over time? If so, have you found patterns on better/worse days? If no one has. We should start #thetemptest
@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open
Helps us work to advance MECFS and Long Covid research and care.
My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.
www.zeffy.com/en-US/fundra...
My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
Help me celebrate my birthday next week by donating to @renegaderesearch.bsky.social and help us do this much needed work
www.zeffy.com/en-US/fundra...
Not accepting specimens at all?
Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test.
youtu.be/6BUZtcC1Ezc
Almost done with the PEM cocktail study design. Next step is IRB application and recruitment.
This has had a major impact on decreasing PEM for me and a few early testers.
Will differentiate if severity level affects impact among other things.
Stay tuned!
