Trust in my body: hard-earned and easily lost. Over the last years my experiences taught me that my body does not recover well from... well, anything, least of all surgery. It makes me feel wary that this process for now goes incredibly well. More on open.substack.com/pub/catofred...
#disability
In this latest blog post, I'll take you along during the ten days I've spend in the hospital to recover from my surgery. Read along on open.substack.com/pub/catofred...! Coming Sunday we will close the crowdfunding campaign, but we can use your help with one last push through gofund.me/07342fe1
It has been three days since the surgery. An update can be found through open.substack.com/pub/catofred... but the short and sweet is a successful surgery, with a rough recovery
Tomorrow is the surgery, so for my last day of counting down: one very shocked radiologist. I can't help if the instructions "tilt your head back as far as it can go" ends up looking like The Ring!
#countdown #EDS #crowdfunding #CCI
Two stands for, well, two. Two rings, for the bond between me and my spouse. For not having to do this alone, and for you being there for me.
#love #countdown #CCI #EDS #crowdfunding
Three days until the surgery - just as long as the three days of travel we did to get here. Those just have flown by, so hopefully these last days will too!
Do you too want to help me reach my goal before my surgery? You can find all the information at catofrederiks.substack.com/p/support
Four days until surgery, means four games we've found that can be (mostly!) played horizontal. We love cooperative games, so that includes Caper Cards, Hanabi, and Keep Talking. And for to scratch the competitive itch, we've got Locus!
#countdown #boardgames #crowdfunding #CCI #EDS
Five days until my fusion, five chapters worth of information for our cat and house sitter. And yes, we do need four pages for "Apps" and "Devices". Our house is very online.
Want to help me reach my crowdfunding goal? More information on catofrederiks.substack.com/p/support
With only six days to go, we've arrived to six boxes of tube feed formula! I sincerely hope my gastroparesis will vastly improve after my #cervicalfusion, so I can finally eat again!
Want to support me on my tapas journey? More info on catofrederiks.substack.com/p/support
#countdown #CCI #tapas
Watch live coming Sunday through youtube.com/live/jFkwkGI-Q5A?feature=share or www.twitch.tv/magehandhigh... to help and support my upcoming spinal fusion! #TTRPG #DnD #livestream #charity #CCI #EDS
With seven days until the surgery, I want to especially thank the more than 700 people who've made donations through GoFundMe. Thank you all so much for giving me a chance at life again.
Want to read more at how you can help too? Go to catofrederiks.substack.com/p/support
#countdown #CCI #EDS
January the 8th means only 8 days to go until surgery! And we miss our 8 little cat paws already. They're loved and cared for, even if we're not the ones doing so.
#cats #crowdfunding #CCI #EDS
Join us on on Youtube and Twitch Jan 11 at 2 pm eastern time for a special livestream in support of @catofrederiks.bsky.social a fellow Queer TTRPGer and friend of the pod who is raising money for a life-changing spinal fusion surgery. Would love to see you there!
Nine days until the surgery, nine months of intense and amazing crowdfunding. A full pregnancy worth of stories, of helping, of donations.
Do you want to help me too in this last stretch until the 16th? All options can be found through catofrederiks.substack.com/p/support
My surgery is in ten days, so the countdown has officially started. Since it's ten days, today I'll share all ten wheels that accompany me to Barcelona. Four wheels on my manual chair, and six on my powerchair
#wheelchair #countdown #EDS #crowdfunding #CCI
This might be one of the most amazing things during my crowdfunding: @magehandhighfive will play my oneshot Fey or Fiend during a charity livestream this Sunday! More information will follow soon.
#TTRPG #oneshot #charity #livestream #crowdfunding #CCI #EDS
Something very exciting is coming up very soon! Hopefully I rolled high enough refrain from spoiling until I can share this amazing news
#TTRPG #news #CCI #EDS #nat20
So much changed in the past seven years. In my newest blog you can read about how much my life has changed over the past seven years: from teaching unicycling to kids to using a wheelchair for my daily life. You can read the full blog through catofrederiks.substack.com/p/diary
Getting married and more! My new blog about how I am preparing for my up-coming surgery in January can be found through catofrederiks.substack.com/p/hibernation . If you too would like to help get the last item crossed of my list, you can give me a donation through gofund.me/07342fe1
25 days to Christmas, and 25 days full of dragons! Through fatherroderick.substack.com/p/advent-wit... you can find a cozy fantasy written by @fatherroderick.bsky.social. Every sponsored chapter helps me by giving me the chance to get my cervical fusion a little after Christmas. Will you help too?
CCI has so many complaints, varying from annoying to very severe. After my fusion on the 16th of January, I will finally be able to live without this range of issues. I can still use your help. By donating through gofund.me/07342fe1 you can help give me my life back.
Millions people world wide have been forced out of society due to PAIS: post acute infection syndromes.
Sunday November 30th a protest is organised on het Malieveld in Den Haag, with possibilites to join online too. More information through www.hetpaisprotest.nl
#MillionsMissing #postcovid #ME
A 3D X-ray scan of a neck that's bending backwards more than should happen
This is my neck in extension.
Friday January 16th I will finally be receiving my cervical fusion. I won't be able to make these kinds of movements, but in exchange, I'll be able to sit up. Live my life.
Help me with one last big push for my crowdfunding through gofund.me/07342fe1
The final part of Avyn and Larian's path can now be read through catofrederiks.substack.com/p/table-of-c.... If you loved reading it or would like to support my personal journey to a cervical fusion, you can make a donation through gofund.me/07342fe1
What creative challenge will you roll?
#writing #drawing #singing #creativechallenge #Halloween
A new part of the collaborative story just dropped! Want to read what Pam Hage made of this story? You can read this part and all previous parts of Avyn and Larian's Path through catofrederiks.substack.com/p/part-6-the...
An IV pole is standing in front of a dark brown, wooden closet. Hanging from the pole is a bottle with formula and a tote bag with a feeding pump. A feeding line is hanging going towards the camera before it disappears out of view
This is Perry. Perry brings breakfast in bed and carries my burdens.
No matter how much I love him, I would actually love having actual food even more! You can help me reach that by sending a little money my way through gofund.me/07342fe1 so I can undergo the cervical fusion I desperately need
UK and Switzerland are also available! All countries, of course, have their own unique shops available. Perfect for the Holiday Season just around the corner!
Without paying anything extra, you can give me the best Christmas present extra - my opportunity for life
#CCI #EDS #christmas #support
Want to shop online and support my crowdfunding to fund a cervical fusion? shoponline.org/cato now offers options for Brazil, South Africa, South Korea and Sweden, with Germany, France, Italy and Spain coming soon!
All translations of the second collaborative story are now available on my Substack, thanks to @fatherroderick.bsky.social! Here you can follow Larian's Path along with him. If you like it, I would love a donation to gofund.me/07342fe1 in order to fund the cerebral fusion I need!
#CCI #EDS #writing