Advertisement · 728 × 90

Posts by still

Preview
What the Weather Is Doing Layer 2 · The Still Landscape

You can't shame fog into clearing. You can't grade a storm into becoming sun.
Yesterday's post was about what actually helps when the weather inside gets bad — and it's not harder looking.

stillsupport.substack.com/p/what-the-w...

2 weeks ago 0 0 0 0
Preview
What the Weather Is Doing Layer 2 · The Still Landscape

A mood tracker asks: how do you feel, on a scale of one to ten?
The weather check-in asks: what are conditions like right now?
One of those questions has a right answer. The other one just has a true one.
stillsupport.substack.com/p/what-the-w...

2 weeks ago 1 0 0 0
Preview
The Rain Doesn't Care Layer 2 · The Still Landscape

I was seven years old when Butch Cassidy came out. I tap-danced to "Raindrops Keep Fallin' on My Head." It took me fifty years to understand what that song was actually about.

The weather doesn't grade you. It just is.

stillsupport.substack.com/p/the-rain-d...

2 weeks ago 1 0 0 0
Sometimes Physical Pain Isn't The Worst Part About Chronic Illness

Sometimes Physical Pain Isn't The Worst Part About Chronic Illness

"One cannot deal with chronic physical pain when they're already defeated mentally. At that point, you're too tired to even care anymore.": buff.ly/QGwUFjd

#ChronicPain #MondayBlogs #ChronicIllness #MentalHealth #InvisibleIllness

2 months ago 28 6 4 0
Preview
Layer 2 Applied: When Your Brain Lies to You You know that moment in “Comfortably Numb” when the disconnect hits.

Sunday hit and my brain stopped working. I'd been tracking the data. I just wasn't reading it.

New Layer 2 post on reading cognitive-emotional patterns without turning your brain into a performance review.

stillsupport.substack.com/p/layer-2-ap...

#ProcessOverGoals #ChronicIllness

2 months ago 1 0 0 0
Post image

Sometimes the most powerful act is allowing yourself to be honest about how you feel. This quote pushes back against toxic positivity and makes space for real emotions.
#ItsOkayNotToBeOkay #MentalHealthMatters #EmotionalHonesty #BeKindToYourself #MensMentalHealth

2 months ago 2 1 0 0
Preview
Creating Healthful Choices in 2026 - A gentle reflection on creating healthful choices in 2026, focusing on pacing, mental health, seasonal goals and living a happier life.

"Now, I am in my late 40s & well into the joy that is #menopause, so I have long ago realised that rigid rules & #resolutions never work. We all have stories of being in mid-January & already having failed at the new ideas.": buff.ly/HN13hoT

by @beverleybutterfly.bsky.social
#disability #spoonie

2 months ago 5 2 0 0
Preview
Layer 1 Applied: Reading Your Patterns (The Practice) Tuesday, I told you how I missed my fatigue patterns this week.

I had the data. Entries going back weeks. Sleep quality. Energy levels. The whole baseline.

I just wasn't reading it.

Then the spiral started.

New post on the practice of retrospective work—reading patterns without optimizing them away.

open.substack.com/pub/stillsup...

#ProcessNotGoals

2 months ago 0 0 0 0

So right Christophe! Pattern Recognition driven by "patients" is the foundation.

2 months ago 1 0 0 0
Advertisement
Throughput medicine rewards:
🔷short visits
🔷clear diagnoses
🔷protocol compliance
🔷symptom control

Chronic illness requires:
🔷time
🔷iteration
🔷pattern recognition
🔷systems thinking

These are structurally incompatible.

Throughput medicine rewards: 🔷short visits 🔷clear diagnoses 🔷protocol compliance 🔷symptom control Chronic illness requires: 🔷time 🔷iteration 🔷pattern recognition 🔷systems thinking These are structurally incompatible.

From 👆

"Throughput medicine rewards:
🔷short visits
🔷clear diagnoses
🔷protocol compliance
🔷symptom control

Chronic illness requires:
🔷time
🔷iteration
🔷pattern recognition
🔷systems thinking

These are structurally incompatible."

2 months ago 22 6 2 0
Preview
U.S. government has lost more than 10,000 STEM Ph.D.s since Trump took office A Science analysis reveals how many were fired, retired, or quit across 14 agencies

The US government lost more than 10,000 STEM PhDs last year, according to an analysis by Science of newly released OPM data, with 11 departures for every hire. And many OPM calls "voluntary" separations were probably pushed. www.science.org/content/arti...

2 months ago 359 264 16 33

New collaborative study on the risk and interpretation of 'breakthrough infections' amidst declines in vaccination rates and a sustained, national measles outbreak.

2 months ago 3 3 0 0
WHO graphic titled “Measles can be fatal – Know the symptoms.” A child’s face and body are shown with red spots. Labels point to symptoms: rash starting on the face and spreading over the body, fever, red and watery eyes, runny nose, small white spots inside the cheeks, and cough.

WHO graphic titled “Measles can be fatal – Know the symptoms.” A child’s face and body are shown with red spots. Labels point to symptoms: rash starting on the face and spreading over the body, fever, red and watery eyes, runny nose, small white spots inside the cheeks, and cough.

Measles can be fatal.

Do you know its symptoms?
🔴 Rash that starts on the face and spreads over the body
🔴 Fever
🔴 Cough
🔴 Red and watery eyes
🔴 Small white spots inside the cheeks

Seek health care if you suspect you or your child has measles. 🔗bit.ly/4iq4nkD

2 months ago 216 98 7 15
Preview
That app scoring your groceries? We checked its homework. Why a simple score can’t capture what’s actually good (or “bad”) for you

The problem is that nutrition and ingredient safety aren’t binary. Forcing them into green/red categories can mislead more than it helps. So let’s break down how these apps work and why their approach can be problematic. Let’s discuss…

2 months ago 12 3 0 0
Post image

(CNN) - The fast-growing measles outbreak in South Carolina is now the largest in the United States since the disease was declared eliminated in this country more than two decades ago.

@cnn.com
www.cnn.com/2026/01/27/h...

2 months ago 2943 1113 231 199

The chronic illness community knows this story.

We're always the collateral damage when "personal freedom" meets public health.

Immunocompromised people can't opt out of consequences.

How did we lose trust in science? How do we rebuild it?

#PublicHealth #DisabilityJustice #ChronicIllness

2 months ago 4 0 0 0
Advertisement

What "personal choice" actually cost:

- 3 weeks family quarantine
- Our business: catastrophic losses
- My other daughter's pregnant friend: exposed
- A 15,000-person concert: potential exposure
- Relationships: permanently damaged

The invisible infrastructure collapsed.

2 months ago 1 0 1 0

The source: a family who didn't believe in vaccines, picked up their daughter from an LDS mission in Poland, brought measles home.

They owned a large plant nursery. Never disclosed they were the source. Kept operating.

The outbreak spread. 7 confirmed cases.

2 months ago 0 0 1 0
On April 5, 2011, a health-care provider notified the Salt Lake Valley Health Department (SLVHD) of an unvaccinated Salt Lake County resident aged 16 years with generalized rash
(onset April 4) and a 3-day history of sore throat and fever (101.7°F [38.7°C]) (Table). When investigated by public health officials on April 6, the patient had a morbilliform rash, cough, coryza, conjunctivitis, and Koplik spots, and reported no recent travel or contact with ill persons. Serum collected on April 5 was positive for measles immunoglobulin M (IgM). On April 7, SIVHD announced that a measles case had been confirmed. On April 8, a health-care provider notified SLVHD that an unvaccinated Salt Lake County patient aged 15 years had sought care in late March with generalized rash (onset March 21), fever (103.7°F [39.8°C]), cough, coryza, and conjunctivitis. The patient had traveled in Europe during March 3-17. No measles testing was performed during the acute illness. Serum collected on April 8 was measles IgM-positive. This patient had attended a school class on March 21 with the patient reported previously. Five additional Salt Lake County residents were
confirmed to have measles, with the last rash onset on April 17, 2011 (Figure).

On April 5, 2011, a health-care provider notified the Salt Lake Valley Health Department (SLVHD) of an unvaccinated Salt Lake County resident aged 16 years with generalized rash (onset April 4) and a 3-day history of sore throat and fever (101.7°F [38.7°C]) (Table). When investigated by public health officials on April 6, the patient had a morbilliform rash, cough, coryza, conjunctivitis, and Koplik spots, and reported no recent travel or contact with ill persons. Serum collected on April 5 was positive for measles immunoglobulin M (IgM). On April 7, SIVHD announced that a measles case had been confirmed. On April 8, a health-care provider notified SLVHD that an unvaccinated Salt Lake County patient aged 15 years had sought care in late March with generalized rash (onset March 21), fever (103.7°F [39.8°C]), cough, coryza, and conjunctivitis. The patient had traveled in Europe during March 3-17. No measles testing was performed during the acute illness. Serum collected on April 8 was measles IgM-positive. This patient had attended a school class on March 21 with the patient reported previously. Five additional Salt Lake County residents were confirmed to have measles, with the last rash onset on April 17, 2011 (Figure).

In 2011, my fully vaccinated 16-year-old daughter contracted measles from an unvaccinated classmate.

She's Patient 2 in this CDC outbreak report.

Now in 2026, we're repeating history. Once again, the chronically ill and immunocompromised will pay the price. 🧵

pmc.ncbi.nlm.nih.gov/articles/PMC...

2 months ago 2 1 1 0
Labeling Controls Accessibility resources free online from the international standards organization: W3C Web Accessibility Initiative (WAI).

Thank You! Not just a "nice to have", it's a W3C Standard www.w3.org/WAI/tutorial...

2 months ago 2 0 0 0
Preview
Layer 6: Collective & Legacy — What You're Building Beyond Just Surviving Today If Layer 1 is your physical baseline, Layer 2 is your cognitive and emotional state, Layer 3 is how you navigate relationships, Layer 4 is managing external demands, and Layer 5 is making sense of you...

👋 I'm Drew, building Still - process-oriented chronic illness management.

Not about being better. About seeing what's real.

6 layers: daily stability to legacy. Free, privacy-first, evidence-based.

Latest: Layer 6 launched. bit.ly/4qDmHdn

#ProcessNotGoals #ChronicIllness #DisabilityJustice

2 months ago 4 0 0 0
Preview
Beyond Chronic Illness: The Wider World of Human Support Needs A companion to "What Still Means by Chronic Illness"

open.substack.com/pub/stillsup...

6 months ago 1 0 0 0
Preview
What Still Means by Chronic Illness A foundational essay for Still

stillsupport.substack.com/p/what-still...

6 months ago 0 0 0 0
Advertisement
Preview
A Different Kind of Tracker After Christine died, I threw away seventeen mood tracking apps and built something different.

stillsupport.substack.com/p/a-differen...

6 months ago 0 0 0 0
Preview
Why Your Mood Tracker Is Making You Worse Christine had seventeen different mood tracking apps on her phone when she died.

stillsupport.substack.com/p/why-your-m...

6 months ago 0 0 0 0
Preview
What Hospice Really Means *On dignity, letting go, and the difference between fighting for time and fighting for peace*

stillsupport.substack.com/p/what-hospi...

6 months ago 0 0 0 0
Preview
The Caregiver's Reality Check Monitoring Your Own Energy While Supporting Others

open.substack.com/pub/stillsup...

6 months ago 0 0 0 0
Preview
The Caregiver Fatigue Multiplier Christine's Dexcom wasn't just her responsibility.

open.substack.com/pub/stillsup...

6 months ago 0 0 0 0
Preview
The Quiet Revolution There's a revolution happening, but you won't see it trending on social media.

open.substack.com/pub/stillsup...

6 months ago 1 0 0 0
Preview
How to Help Without Fixing A Toolkit for Supporters

stillsupport.substack.com/p/how-to-hel...

7 months ago 0 0 0 0