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Posts by ICanCME Canadian Research Network

02 Chamber survey | Physiosforme

New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.

Please share widely.

For all the info and survey link, head on over to

www.physiosforme.com/o2survey

2 months ago 38 30 1 4

We would love your support in helping us to increase our reach.

Please like, share, and subscribe to the videos on YouTube and on here. πŸ’™

2 months ago 7 4 0 0

Hey there. Have you watched yet?

What are you waiting for? It’s great content, driven by #PwME!

#ICanCME2025

2 months ago 2 1 0 0
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Welcome! You are invited to join a webinar: SMART Grants - English Webinar. After registering, you will receive a confirmation email about joining the webinar. Please join us for more information on the SMART grants. This webinar will be in English.

For those with questions, we will be hosting SMART Webinars - Thursday, February 5th.

3 pm EST-In English

us06web.zoom.us/webinar/regi...

4 pm EST-In French

us06web.zoom.us/webinar/regi...

You must register to attend, but these are not mandatory webinars required to apply.

2 months ago 0 0 0 0
Programme de subventions SMART - ICanCME

For those wishing to apply in French, please view this link to see the French application:

icancme.ca/fr/recherche...

2 months ago 0 0 1 0
SMART Grant Program - ICanCME

Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!

Please check out the criteria and deadlines in the application.

icancme.ca/research/sma...

2 months ago 4 3 1 0

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social

2 months ago 1 1 0 0
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A big thank you to all those who helped to make this event a reality!

It took over a year and a half of planning and work to pull it off and we want it to continue to have a positive impact.

So please help us get the word out and share broadly. πŸ’™πŸ’™πŸ’™

3 months ago 4 0 0 0

Our AMAZING speakers included leaders and groups such as…

@sunsopeningband.bsky.social @virusesimmunity.bsky.social
@polybiorf.bsky.social @daniellebeckman.bsky.social @exceedhergrasp1.bsky.social

And so many more that I cannot seem to find/tag on here. Check it out.

3 months ago 7 1 1 0
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ICanCME Research Network

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. πŸ’™

The theme of our #Canadian conference was β€œNothing About Us Without Us”.

Please #subscribe to our channel to help us drive engagement and watch and like our videos too.

youtube.com/@icancmerese...

3 months ago 17 10 1 2

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social

3 months ago 3 2 0 0

@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social

3 months ago 4 2 0 0

Thank you for the great work!

5 months ago 2 1 0 0

Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.

simonspichak.beehiiv.com/p/day-3-of-t...

5 months ago 8 3 0 0
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Thank you for supporting us! πŸ’™

5 months ago 2 0 1 0

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

5 months ago 24 11 2 0

#ICanCME2025

5 months ago 5 0 0 0

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

5 months ago 24 9 3 4
Menu for Day # 3 #ICANCME Conference

Menu for Day # 3 #ICANCME Conference

@icancmeresearch.bsky.social

#ICANCME2025 Wow what an agenda for Day # 3

5 months ago 2 2 0 0
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It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
πŸ‘‰#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social

5 months ago 3 1 0 0

Are you registered?

If so, please join us for our last day together! πŸ’™

5 months ago 7 1 0 0
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We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.

#ICanCME2025 #Paediatric #Children

5 months ago 18 7 2 1

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. πŸ©΅πŸ’™πŸ©΅

5 months ago 3 2 0 0
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I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.

#ICanCME

5 months ago 6 2 0 0
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We are excited and ready for day 2 of @icancmeresearch.bsky.social!

#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!

#ICanCME2025 #pwME #MECFS

5 months ago 31 9 4 2

Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025

5 months ago 9 4 0 0

It was so lovely having you there Nandini! Thank you for your kind words and the support.

5 months ago 3 0 1 0

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

5 months ago 10 6 2 1
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Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis A brief summary of the presentations.

And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.

simonspichak.beehiiv.com/p/icancme-da...

5 months ago 23 13 4 4

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).

Huge shout-out for the respect for lived experience! Wonderful start!

#ICanCME2025

#NothingAboutUsWithoutUs

@icancmeresearch.bsky.social, applause to planning team!

5 months ago 27 7 0 0