Hey there. Have you watched yet?
What are you waiting for? It’s great content, driven by #PwME!
#ICanCME2025
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#ICanCME2025
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Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
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Recording of this amazing event just dropped.
Thank you @icancmeresearch.bsky.social for all the work involved in putting this stellar event together…very much appreciated!
#ICanCME2025
#MEcfs
#LongCOVID
m.youtube.com/watch?v=pOQd...
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Thanks @spichaksimon.bsky.social for covering @isabelrb.bsky.social & @tessfalor.bsky.social presenting on our #TheAcidTest research project for #ICanCME2025!
See our March 2025 Roundtable with @sunsopeningband.bsky.social & @ciarawrightphd.bsky.social for more info: www.youtube.com/watch?v=6BUZ...
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Oops…messed up the hashtag…
#ICanCME2025
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If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
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#ICANCME2025 Great discussion On Addressing Ableism/Internalized Ableism in Research and Clinical Settings by Dr. Daisy Fung. Very interesting all the areas judgement and abelism can be seen in.
#ICANCME2025 Great discussion On Addressing Ableism/Internalized Ableism in Research and Clinical Settings by Dr. Daisy Fung. Very interesting all the areas judgement and abelism can be seen in.
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#ICANCME2025 Executive function is the CEO of the brain.
#ICANCME2025 Executive function is the CEO of the brain.
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ICANCME2025 if Post Exertional Malaise (PEM) is a part of ME than why isn't research studies designed with that in mind?
#ICANCME2025 if Post Exertional Malaise (PEM) is a part of ME than why isn't research studies designed with that in mind?
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Graph showing ME is the most underfunded illness in underfunded illnesses
#ICANCME2025 Check this out🙄
➡️ME is one of the most underfunded of underfunded diseases. WOW that is so wrong.
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Advertising for 2025 ME Conference
#ICANCME2025 Day # 3 has kicked off and I am expecting another fantastic day.
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Menu for Day # 3 #ICANCME Conference
@icancmeresearch.bsky.social
#ICANCME2025 Wow what an agenda for Day # 3
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I'm grateful to have been able to present preliminary findings at #ICanCME2025, and can't wait until it's a paper to show you.
Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️
We appreciate you!
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Considering how flattened I am, I don't think I can cover the third day.
One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--
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Today is the last day of the #ICanCME2025 Conference.
We will be talking research design today!
Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!
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Done! WHEW
It was a lovefest there at the end, folks, but genuinely. We had a lot of really good speakers today and I thought the spread of different topics was really interesting.
Awesome work from planning committee!
Tomorrow's the last day of #ICanCME2025 🧪
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We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
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Rebecca Ryan up now to discuss GI manifestations in ME #ICanCME2025
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Very cool imagery in Sammie's presentation. A collage of dismissive statements teens have heard when they say they're sick, including " you would feel better if you didn't spend all day in bed", "you are looking really well", "it could be a lot worse" and "kids don't get Long COVID"
#ICanCME2025
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Sammie McFarland up now from @longcovidkids.bsky.social
#ICanCME2025
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Love the way Maitland frames mast cells as helpers who have lost their way 😂
And that there are a lot of potentially underlying causes and that it's best to look for autonomic and connective tissue issues for first mover
#ICanCME2025
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Happening today at #ICanCME2025:
#neurodiversity and #MECFS 💙
The conference is being held virtually and sessions are recorded.
#healthcare #disability #chronicillness
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Ruhi Snyder talking about caregiving in severe ME. This is what I love about this conference, there is an equal amount of original research, clinical contextualization and sociological considerations. It's very cool. #ICanCME2025
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Yellman emphasizes that exercise tests for #POTS absolutely need to rule out #pwME (and usually don't). #ICanCME2025
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Yellman talking about pyridostigmine now. One of my faves for #POTS +ME(+ND). It leads to improved cardiac output due to its effect on the nerves through acetylcholine. IMO, issues in acetylcholine in ME and in #ADHD. #ICanCME2025
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Brayden Yellman taking about dysautonomia and #MECFS now! #ICanCME2025.
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#ICanCME2025
Late diagnosis of ASD, and ME and your presentation is so helpful in reframing my life.
Thank you so much.
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