TODAY April 15:
Zoom/phone support meeting for #MECFS, #LongCovid.
MEAction
NC State Chapter Support Group,
friends, allies, caregivers.
🫂 WED Apr 15, 2026
(3rd Wednesday, monthly)
🕧12:30 PM EDT US
www.meaction.net/event-detail...
Happening now...
#MEActionNC is Advocacy meeting tomorrow!
Sat, Apr 11, 2026
11a -12p, Eastern US
We will discuss opportunities for action, big & small. We welcome all volunteers regardless of capacity. For deets, link, call in #, use last month's mtg announcement:
www.meaction.net/event-detail...
Fantastic he’s our patron and so glad we have so much in common. Our webinar with him is on our website :)
How was your event with Dr. Spiritos. I'm guessing awesome!!
We're co-hosting him today with @renegaderesearch.bsky.social if you'd like to attend.
bsky.app/profile/rene...
Thank you, Dr. Spiritos. Great invitation to our event. We'll see you later!
LOL he *whispers "and IBS."
Busting the myths of IBS!!! Yes.
This is going to be breath-giving, itch-relieving, moving in general and for bowels, and overall amazeballs.
TY to
@renegaderesearch.bsky.social
for allowing me to volunteer some on this one.
Just 4 days away now. Hope people are enjoying Dr. Zac's Instagram/Tiktok for frequent short videos with music & humor to teach about POTS, Hypermobility, fatigue, brain fog, post infection issues, GERD, silent reflux, burning tongue, IBS, and MCAS, MCAS, MCAS. On Friday we get at least 90 mins.😀
Just 4 days away now. Hope people are enjoying Dr. Zac's Instagram/Tiktok for frequent short videos with music & humor to teach about POTS, Hypermobility, fatigue, brain fog, post infection issues, GERD, silent reflux, burning tongue, IBS, and MCAS, MCAS, MCAS. On Friday we get at least 90 mins.😀
Today. In 30 minutes. Hope to see you.
Happening now:
Long Covid Awareness and Advocacy topics.
Help for figuring out easy ways to participate.
🧵Advocacy thread by our mid atlantic neighbors in MD. If you are a Maryland resident, and have a couple spoons to help out, please check it out.
March 18:
Zoom/phone support for #MECFS, #LongCovid for
us, @MEActNet's NC State Chapter Support Group,
@CFSnova, & friends, allies, caregivers.
🫂 WED Mar 18, 2026 (3rd Sat., monthly)
🕧12:30 PM EDT US
We talk about post exertional symptom worsening (PESE) & PEM.
www.meaction.net/event-detail...
#MEActionNC is restarting Advocacy mtgs. 1st is this Sun, Mar 15, '26, 11 AM-12 PM, EDT US. We will discuss upcoming opportunities for action, big & small. We welcome all volunteers regardless of capacity.
For deets, link, call in #:
www.meaction.net/event-detail...
#LongCovidAwareness #MECFS
This event will be useful. Let's learn more about triple therapy, blood thinners OTC and prescription, LMW heparin in both syringe and in the pill form, and how not to get scammed by fake labs saying they can test for microclots.
This event will be useful. Let's learn more about triple therapy, blood thinners OTC and prescription, LMW heparin in both syringe and in the pill form, and how not to get scammed by fake labs saying they can test for microclots.
We get to watch and maybe ask questions of champions of our conditions discussing microclots, antiphospholipid syndrome, and hypercoagulabilty and symptoms that come from those, plus treatment.
Bring your friends!
Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers.
New panelists:
Bela Chheda, MD, Inf. disease & internist
Anil Rama, MD, neurology and sleep medicine
Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center
The March 2026 newsletter which includes our co-hosted event is going out very soon. Sign up if you want event and other news from @renegaderesearch.bsky.social
We're excited co-host on the 3/27 one titled
"GI-NeuroImmune Axis and the Role of Histamine and Mast Cells"
Speaker Zachary Spiritos, MD, MPH, NeuroGastroenterologist
Dr. Spiritos is a knowledgable and lively. His telehealth clinic, Ever Better Medicine, can see patients from IL & NC.
I designed these! 💞 Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy ❤️🩹
Excited to host this webinar with you!
Looking forward to co-hosting this event!
Yes, indeed! We are a co-host for this event with Zac Spiritos, MD, neurogastroenterologist.
He is the founder of the Ever Better Medicine (.health) clinic and can only take patients from IL or NC.
We have a few of his patients in our support group who have been pleased with their care.
Your brain does not store memories like videos. 🧠🧪
Memories are reconstructed each time you recall them through a process called reconsolidation. During this process, details can shift based on emotion, context, and new information, which is why memories can change over time.
Simple graphic urging you to sign the HHS letter today. Cream background with large red circle in the center. Text in center: Join over 1600 signers!! Sign letter to HHS today. Freakin' Frail and #MEaction logo at the top. Text underneath: Protect Medicaid access for people with ME/CFS and Long COVID! FreakinFrail.org
Can you sign & share our letter to HHS? freakinfrail.org
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
Nice store!
3X match of your gift today.
This group must keep going. They do vital work for a severely underserved and ill population.
Please donate today.
6 shirts and 2 mugs all with a design that says Invisible illness Visible Love. It has a heart and an outline of a heart connecting the two phrases. The #MEaction logo is in the corner. Tops clockwise starting in top left corner: Gray sweatshirt, purple tee, red hoodie, white mug with red handle, mauve shirt, teal shirt, red shirt, and mug with black handle.
To celebrate Family Caregivers Month, we’re unveiling brand-new shirts, sweatshirts, & mugs — created by caregivers for our community!
Our community came together — caregivers, volunteers, designers, friends — to create these items! Find them here: www.bonfire.com/store/meacti...
#InvisibleIllness
black square with gold frame. Gold glitter splash on the background. The words in cream, Light up a lantern. Image of a lantern in the center
Light Up A Lantern!
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate