“These patients are working and sometimes the only working member in the family, so they feel like they have to keep on working."
www.spokesman.com/stories/2026...
Posts by Matt Lazell-Fairman
RFK Jr. told the House E&C Committee today that the way to bring down healthcare costs is to "clean up the risk pool" — remove the people who cost too much. He said the $4.3 trillion we spend on chronic disease is the emergency. He said most of Minnesota's autism services funding was stolen. 🧵
Image of child in classroom in Africa.
New study: Children who survive severe malaria may face long-term cognitive impairment and decreased academic achievement for years after infection.
Read more on the study: ow.ly/X5XP50YNveg
On a red textured background a dark silhouette of the United States is overlaid with protest-style signs and illustrations. Signs include messages such as “Shutdown detention centers,” “Not here, not anywhere,” and “No ICE warehouse,” along with a megaphone graphic amplifying the message. Large white text reads “National Day of Action” and “Stop ICE Warehouse Detention.” At the bottom, the date “April 25, 2026” is displayed. The overall design evokes urgency and protest energy.
10,000 people.
That’s how many ICE plans to detain - cut off from healthcare, accommodations, and due process.
Detention causes harm. For disabled people, the risks are even greater.
On April 25, communities take action.
Find a protest near you:
https://tinyurl.com/ICEWarehousing
Largely text-based graphic sharing that research paper highlights a new tool enhancing diagnostic accuracy for ME/CFS in clinical settings. Image of paper title, authors, and journal with the QR code and photo of Jaime Seltzer (white woman with long curly hair wearing glasses, green shirt, and black blazer.) Text: Building tools that clinicians actually use—tools that reflect what patients experience—requires lived experience leadership at the table from day one. MEAction Scientific Director Jaime Seltzer is co-first-author with Stephanie Grach, MD.
We’re excited to share a new study about the ME/CFS diagnostic & treatment algorithm that #MEAction’s Scientific Director & Mayo Clinic researcher-clinicians created, as part of the Society to Improve Diagnosis in Medicine grant.
www.meaction.net/post/meactio...
@exceedhergrasp1.bsky.social
We've had a lot of questions about why we are leaning into the accessible rallies...this is why.
Our neighbors who are disabled or ~unfit~ according to this evil man are at the front lines of the harm RFK Jr. is causing. When we EMBRACE accessibility and inclusivity, it is an act of resistance.
They plan to make America "healthy" by murdering everyone who isn't. Voila! Can't have sickness once you kill the sick.
BBC highlights criticism of claims from neurologist that Long COVID is psychosomatic; and debate over "functional somatic disorder" in Frontiers in Medicine
virology.ws/2026/04/21/t...
RFK Jr. just said HHS is "cleaning up the risk pool" (i.e., people who are unhealthy) to bring down healthcare costs.
The Democrats fast tracked every single one of these nominees except Hegseth (and that is only because a single Democrat, Chris Murphy, held up the nomination).
The task of de-Trumpification of science and public health will take a generation and a "Marshall Plan" to rebuild. Without a bold, expansive vision to guide us, there is no coming back. Small-bore, poll-tested versions of the future will not help us. www.thenation.com/article/soci...
Time to get ready for #MillionsMissing which will be May 9th-16th with focus on the 12th!
We have a guide by energy level to help you safely join in!
The goal of the guide is to do the SAFEST energy level for you and all the ones under it if possible.
Toolkit: bit.ly/MM2026toolkit
After speaking up for Medicaid expansion, the Chief of my tribe Cherokee Nation will not be allowed to speak again on the Oklahoma House floor. oklahomavoice.com/2026/04/16/c...
Join us for the May Yale Community Breakfast!
This month’s conversation, “Understanding Long COVID,” will explore the lasting impacts of COVID-19 and what current research tells us about this complex condition.
📅 Thursday, May 7
⏰ 8:00 – 9:00 AM
📍 Dixwell-Yale Community Learning Center or Zoom
15h by Author I tried to Pace but never really mastered it, as a mom there are so many things... Then I couldn't do ANY of the things because my moderate ME became very severe ME. It is a whole other world, that I didnt even realize was a possibility! Now I'm bedridden and dependent on anyone who happens to check if my commode needs empty or if I have water or food. On a good day I can brush my child's hair. Take pacing seriously! Reply Message Hide 2
A tragic cautionary tale that was posted on my Facebook page. 😢
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
A four-hour documentary from 1969 about life in Nazi-occupied France chronicles the way that many ordinary citizens simply lived their lives as if nothing had changed, @dgraham.bsky.social writes. "The Sorrow and the Pity" is more relevant than ever:
A drawing of the U.S. Capitol with Long COVID Campaign logo above it, and Sign on, Senators to #FundLongCOVID underneath, with the message: Sunday Voicemails Plus Emails Equals Change.
📣#LongCOVID Community📣 THANK YOU to the almost 600 folks who've emailed & called their Senators! Sunday emails & voicemails CAN move the Senate on Monday! Senate FY27 #FundLongCOVID "Dear Colleague" deadline extended to Monday AM. @lccampaign.bsky.social free, customizable tools here: 1/x
-70% of farmers can't afford all the fertilizer they need.
-6 in 10 say finances have worsened.
-94% say things are the same or worse.
This is what a war in Iran looks like for Nebraska farmers.
Wow. SCOTUS’s “shadow docket” was first established to stop the Clean Power Plan.
It’s remarkable how many assaults on democracy, or at least on established process, over the last decade have served to protect fossil-fuel interests from the energy transition.
www.nytimes.com/2026/04/18/u...
Coming soon... Our book was written in community sharing our experiences of living with myalgic encephalomyelitis
It's been three and a half decades since I contracted the flu, probably a virus, that stole my active life. I got sick & never recovered. Today is my M.E. anniversary, my "sickiversary." People with Long COVID are only beginning a journey that for me has lasted 35 years. #millionsmissing
As you are able today, please give to this GoFundMe with a one time gift or use the monthly recurring donation option. And kindly share with others in your personal circle.
Every gift helps and I am so very grateful to all who have given so far! 💛
#StandByMEcfs
www.gofundme.com/f/financial-...
GOOD NEWS! Researchers have made a HUGE breakthrough towards a UNIVERSAL antiviral. By targeting sugar molecules found on the surface of many viruses that SHARE structural similarities, they identified FOUR compounds that successfully BLOCKED infections from SEVEN different viruses.
Israel killed an average of at least 47 girls and women per day in Gaza.
A new analysis published by the United Nations shows that more than 38,000 girls and women were killed in between October 2023 and December 2025.
Crossing state borders for HRT. Insurance denials. Missed surgeries.
U.S. Catholic bishops imposed a ban on all trans healthcare throughout the church's massive networks. That's left working class trans people struggling even more.
Our latest, by @davidforbes.bsky.social are some of their stories:
I'm working on a story for @thesicktimes.org about RECOVER clinical trial results that have been shared so far (from the VITAL, NEURO, and AUTONOMIC studies), and am looking for people in the #LongCOVID and IACC communities to share what they think of the findings. DM or email me!
📣📣📣with the deadline extended to Monday, let's keep the emails & calls going! These Senators signed the FY26 #FundLongCOVID letter last year, but haven't yet this year: @kirstengillibrand.bsky.social, @kim.senate.gov , @warnock.senate.gov, @wyden.senate.gov Let's try & grow the list for FY27! 4/x
And these senators have signed on to the #FundLongCOVID letter as well @warren.senate.gov, @welch.senate.gov, & @whitehouse.senate.gov
All thanks to your incredible advocacy 👏👏👏3/x
Along with FY27 #FundLongCOVID letter leads @markey.senate.gov @kaine.senate.gov @duckworth.senate.gov, these senators have now signed on too: @alsobrooks.senate.gov, @booker.senate.gov, @klobuchar.senate.gov, @lujan.senate.gov, @padilla.senate.gov, @schiff.senate.gov, @smith.senate.gov …2/x