A quote from my piece, The Debt Came Due, about navigating #PEM.
“I want to be honest about this because the people who read what I write deserve honesty more than they deserve a tidy narrative about resilience. I am depressed.”
#LongCOVID #MECFS #PwME #Depressed
substack.com/@darthfoo/p-...
Can’t wait for Monday!! #LetsGoPens
Here’s a quote from the piece.
“The people who live with ME/CFS did not greet Long COVID with surprise. They greeted it with recognition. That recognition was both comforting and devastating.”
#LomgCOVID #MECFS #PwME
My pain is bad tonight, I can’t sleep. I’m thinking back to my essay about long term #MECFS patients, Those Who Were Already Here. I’m grateful to and devastated for those I’ve encountered from this community.
#LongCOVID #PwME #ChronicIllness
substack.com/@darthfoo/p-...
A quote from my piece, The Debt Came Due.
“There is a version of my life that exists in my memory like a photograph from a trip I’ll never take again. In that version, I wake up and get out of bed without negotiating with my body first.”
#LongCOVID #MECFS #PEM #PwME
substack.com/home/post/p-...
I’m with #DonaldTrump on this one. Every one of my doctors use this treatment method. #DrTrump
I’m sorry. I hoped to hear you were doing better. Take care and I hope you’re feeling a bit better soon.
Slept through it. Caught the highlights and skimmed the coverage. I’m very excited the Penguins are back in the Stanley Cup Playoffs after missing them the last three years. Joy has been hard find, so I’m grateful for this. I hope you’re well, Tamara.
It takes nearly 4 hours round trip to see my #LongCOVID & #MECFS specialist. Beth moves her patients around to make it happen. Yesterday, my doctor was frustrated with me, and she earned it. I’ve been selective about her recommendations. She reminded me why that’s dangerous. I won’t forget it. #PwME
Boys showed up HUGE tonight. When this team plays its game, nobody can stop us. Let’s lock in, finish strong, and own Round 1. Only downside? My ugly, patchy as fuck beard is coming back. #LetsGoPens @pittsburghpenguins.bsky.social
IT. IS. TIME.
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The Wednesday morning @dejankovacevic.bsky.social DAILY SHOT OF #PittsburghPenguins podcast can be found right here on Bluesky:
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“The idea that this illness could permanently alter my ability to do that kind of work, to be present, to contribute, to matter in a room full of people who need something I can provide, is a grief I carry around like a stone in my chest.”
A quote from my piece, The Debt Came Due, about the current #PEM crash I’m navigating.
“I find purpose in helping others. It is the through-line of my entire professional life, from child protective work to retail management.”
#LongCOVID #MECFS #PwME
substack.com/home/post/p-...
I was in bed on Long COVID Awareness Day. This is what I would have said. New essay at Center Left.
#LongCOVID #MECFS #LongCOVIDAwareness #ChronicIllness #PEM
“There is a particular cruelty in being too sick from a disease to advocate for awareness of that disease on the day set aside for exactly that purpose.”
substack.com/home/post/p-...
“I drive to work. I talk to people. I solve problems. I go home. I am tired in the way ordinary people are tired, the kind of tired that a night’s sleep fixes.
That life is gone.
What replaced it has a name.
Long COVID. ME/CFS”
#LongCOVID #MECFS #PEM #PwME
A quote from my piece, The Debt Came Due.
“There is a version of my life that exists in my memory like a photograph from a trip I’ll never take again. In that version, I wake up and get out of bed without negotiating with my body first.”
#LongCOVID #MECFS #PEM #PwME
substack.com/home/post/p-...
Migraine. Burning nerves. Can’t be upright. Moving feels like fighting double gravity. This is a normal Sunday with Long COVID and ME/CFS. There is nothing inspiring about it. It just hurts.
#LongCOVID #MECFS #ChronicIllness #InvisibleIllness #PwME
Deep in a #PEM crash at the moment. Not upright, barely eating, flat on my back resting and recovering. Will this ever get better?
#LongCOVID #MECFS #PwME
Having some déjà vu...another one for BLowe!
FIRST HOMER OF THE SEASON GOES TO BRANDON LOWE!
Trying to work up the energy to feed the cats. They want dinner.
Never this bad and I’m sorry I didn’t say, I hope the surgery went well. I’m not thinking clearly.
Where I can’t get out of bed?
Crashed after some activity last week. Since Saturday can't get out of bed, can't stay upright, can't stay awake. It's been days.
I know everyone is different but I just need to hear from people who've been through this. How long?
#LongCOVID #MECFS #PEM #PwME
Am I the only person who clicks to the original source when seeing a recap article on news aggregators? #Media
Spent #LongCovidAwarenessDay in bed, unable to stay upright. Missed the moment, but not the meaning.
To every patient navigating this illness, and especially to our caregivers: I see you. All of you. Be well. #LongCOVID
@longcovidsos.bsky.social @longcovidadvoc.com @longcovidsupport.bsky.social
