This is figure 1, which shows Long COVID Disease Burden vs. Other Conditions, by Sex Predominance.
A study in Communications Medicine finds that Long COVID’s disability burden rivals that of Alzheimer’s and asthma in the US, but Long COVID receives 14% of its years lived with disability-proportionate funding from the National Institutes of Health. go.nature.com/4v23Nzv #medsky 🧪
Thanks!!!! I’ll share with the recoding when it is ready.
4 people holding anti-Trump #NoKing signs and flag. One sign is a 3D head of Trump in a pile of poop.
Oak Park, Illinois #NoKings
Teal and gray ribbon symbolizing Long COVID awareness with logos of Bateman Horne Center, Solve M.E., OMF, and #MEAction above text : "Together, we're highlighting Long COVID resources! Long COVID Awareness Day"
To honor #LongCOVIDAwarenessDay, #MEAction Network, Solve M.E., Bateman Horne Center & Open Medicine Foundation (OMF) once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4
#LongCOVID #pwME
BREAKING
Former ICE agent:
On my first day training new cadets, I received secretive orders to teach them to violate the Constitution by entering homes without a judicial warrant.
youtu.be/Y3ziTSYyook?...
I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good.
Stay free
The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault.
CW - Alex Jeffrey Pretti, an American citizen, was directing traffic and helping a woman who was pushed
37-year-old white man, no serious criminal history
Observing with a cell phone
He had a legal gun permit
Worked for the VA
He was murdered by ICE
www.reddit.com/r/PublicFrea...
Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further
1/
Powerful caregiver/parent lived-experience perspective on complex chronic illness— research must include a longitudinal approach. Lived experience matters. We need studies that reflect that reality.
#MECFS #IACC #LongCOVID #MyalgicEncephalomyelitis
www.annfammed.org/content/23/6...
I’m thrilled to share my recent interview on the Make Visible podcast, episode #23! I hope you’ll take a moment to listen.
#LongCovid #MyalgicEncephalomyelitis #MECFS #OccupationalTherapy
open.spotify.com/episode/5C5h...
People will die if we don’t fix this. This is what the Democrats are holding out for…
youtube.com/shorts/eoNPs...
As Toni Morrison said, "the very serious function of racism is distraction. It keeps you from doing your work." But she also reminded us never to lose our capacity to be shocked.
Part of my conversation on @ayman.msnbc.com earlier today.
Mike Johnson doesn't know sh*t
Please watch this documentary trailer and learn about #ME/CFS
#MyalgicEncephalomyelitis
Donate if you can.
whatdoesntkillyou.movie
Why is the IL state police helping ICE move “detainees”?
Last night around 8pm my vehicle got blocked by ISP so that 15 white transport vans could move through the intersection. They traveled east on Roosevelt and turned north on 1st Ave.
Why is IL helping ICE move people ????
here’s more context to the videos DHS is putting out from Chicago.
We are two days into a government shutdown — House Republicans are nowhere in sight.
Why are they hiding?
As I was saying…
Remember when @asbmb published this article on #MECFS? www.asbmb.org/Asbmb.Web/me...
Protest sign with images of MN state representatives who were shot today. Crowd in background
IL is thinking of you all in MN
Proud to stand w Bateman Horne Center to raise awareness & support for those with ME/CFS & other infection-associated chronic conditions. With Thalia’s leadership, vision & dedication, BHC is entering a new chapter,advancing advocacy & compassionate care for this community. Please donate to support.
Photo of presentation title page on blue and yellow graphics. A4P holding onto Hope: a brighter tomorrow conference Saturday, June 7, 2025, 2:40 PM to 3:20 PM eastern standard time Amy Mooney presents: Pacing for post exertional malaise (PEM)
www.awarenessforpotsies.org/conference
I know it’s not the same, but Trader Joe’s has really good GF raisin bread.
How do you pace when daily tasks like showering trigger PEM?
This MERC video breaks it down—ADL tips, energy buckets, OT vs PT & more.
Watch Now: loom.ly/VeNUq7w
💙 Donate: loom.ly/KiU4n_4
@openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID
Amazing insight into how your body is responding to compressions due to specific positions.
Internal jugular vein compression and potentially other compressions- insufficient blood flow- can be made worse with cervical instability… or cervical instability made worse from poor blood and CFS flow. It’s all connected. Good you are pursuing. Best to you.
