Research uncovers ME/CFS's systemic impact for targeted therapies Millions suffering from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition often overlooked due to the lack of diagnostic tools, may be closer to personalized care, ...

Bateman Horne Center, a U.S. research center focused on studying chronic fatigue syndrome, conducted animal free research by using human data and AI to uncover the disease’s systemic roots, through linking gut, immune, and metabolic signals.
www.news-medical.net/news/2025072...

DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says ‘We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s

@georgemonbiot.bsky.social

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

Thank you 🙏🏼

Patients with severe ME/CFS deserve better than unproven theories

My rapid response at BMJ is online now. I joined the chorus of protest about an opinion piece claiming people with severe ME/CFS can recover by "reframing their beliefs" &c. People with ME/CFS deserve so much better than that:

www.bmj.com/content/389/...

#MECFS

Bill Cassidy: A Profile in Cowardice The Louisiana Republican knew better than to vote for public health enemy RFK Jr. He did it anyway.

Cassidy opened the door and let RFK Jr. in. Now, he’s listlessly watching as RFK goes wild on health. Quite a precipitous fall for the good doctor. Sadly, we have not hit rock bottom yet in this new anti-vaxx era. Cassidy’s reputation still has further to fall, too. www.thenation.com/article/poli...

1 in 5 Americans depend on Medicaid for health insurance, but they don't all know they're on it because it may go by another name (e.g., Medi-Cal, Apple, BadgerCare). I identified the name of each state's Medicaid program. If you or someone you love is in one of these programs, call 202-224-3121.

National Institutes of Health lays off hundreds more staff, including at cancer research institute The cuts at the National Institutes of Health blindsided staff, after reassurances that no further layoffs were planned.

More firings at the National Cancer Institute, including the Cancer Information Service, “which provides answers to doctors and patients about cancer, and updates to databases summarizing cancer information for healthcare providers”.

I mean who needs it, right?

www.cbsnews.com/news/nih-lay...

Project 2025 is gutting medical funding that helped Russell Vought's own kid Its architect's daughter has cystic fibrosis—and benefits from a "miracle drug" backed by an agency he's attacking.

The architect of #NIH cuts is Russell Vought whose own daughter is alive today because of advances in treating cystic fibrosis, brought to us, to the Vought family, by NIH. 1/
www.motherjones.com/politics/202...

Today (Sunday in Australia) is the last day to weigh in on the AUS survey for their new ME guideline.

It’s brief and international folks can participate! As national guidelines in any country often end up influencing others, I think it’s a good use of a few mins—this could affect all of us.

1/

Think about this the next time you get 'food poisoning'. And keep in mind that increased infections--bacterial and viral--increase the risks of post infectious fatiguing illnesses, AKA ME/CFS and Long Covid.
All USDA food safety monitoring is being cut back.
Good luck to us all.

Link to Todd Davenport’s @sunsopeningband.bsky.social expert thread about B. Walitt, A. Nath & NIH’s latest scientifically flawed study claiming to be on ME, LC & PEM: threadreaderapp.com/thread/19150...

NIH *claims* to study PEM, but fails to use the gold standard 2-day CPET. "Post-exertional malaise in Long COVID: subjective reporting versus objective assessment"
Co-authors include B. Walitt and A. Nath, what quality of science could we really expect? www.frontiersin.orghttps//www.frontie...

Women’s Health Initiative, known for hormone therapy trials, to lose federal funding The Women's Health Initiative, the enormous study that shaped treatment of menopause and other conditions, is on the verge of shutting down.

Federal funding for the Women’s Health Initiative, which as one of the largest research projects in women’s health has shaped treatment of menopause, osteoporosis, and nutrition, will stop in September.

Along with the fact that every single PEM crash runs the risk of permanently lowering your baseline. Making you even less functional and more ill. And this is not the exception.
>67% of #pwME (n=1534) have experienced a crash they never recovered from. (www.mdpi.com/2075-4418/9/...)

Also, bsky.app/profile/broa...

bsky.app/profile/bate...
bsky.app/profile/meac...

Yes, exactly. And that includes ICE, and all the other enforcers of this fascist agenda.

Ooops, there goes the science.
Maybe we can resort to prayer to save the planet. Or witchcraft. Or white christian nationalism.
Or fuck it, let's just not care and all fry and poison together.

The US is rapidly plunging into full on Fascism. Trump now thinks he is a king. HHS has become a pathetic and dangerous joke as RFK destroys science, research, data collection.

Everyone should read this.

My 27-minute #MECFS Medical Scandal Explainer video has just hit 100,000 views on YouTube.

Given that I've only got a small channel, I think this shows there is a strong interest in the scandal.

Thank you to everyone who shared it!

Today like any other day over the past 5 years I want to draw your attention to the fact that we are witnessing a mass-disabling event with worldwide over 400 million adults, adolescents and children living with #longcovid #myalgicencephalomyelities #postvac and other postinfectious conditions.

Omg. In a shocking moment, Nancy Bolan, a fired USAID worker and tonight’s guest of Rep. Ritchie Torres — reveals that Donald Trump has pulled the U.S. from the global polio eradication initiative — which threatens its spread to the U.S. Every single American should see this.

Trump’s war on DEI comes for programs helping autistic students find jobs in STEM Programs meant to help autistic students study science have been caught in the Trump administration’s war on DEI, Eric Garcia reports

Fulll article here: The National Science Foundation also axed a grant to create a model for including neurodivergent people across engineering schools in the United States.
www.independent.co.uk/news/world/a...

♿Social Security is NOT just for Seniors. It's also for people like me with Disabilities, people who receive Survivors Benefits & Veterans who receive Social Security benefits.

Before I became disabled, I PAID into the program with EVERY paycheck. There are MILLIONS more like me & it is OUR MONEY!♿

From the OMF-supported Medical Education Resource Center (MERC) at @batemanhornecenter.bsky.social

FFS New York Times.

They’re not *his generals.

Unbelievable