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Posts by Wheelie Out There

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Are you using any of these hands-free devices that make life easier & safer: lights, fans, thermostats, door locks & more.
Convenient temp control is important when living w #MultipleSclerosis. It is affordable w so many Bluetooth & Alexa smartdevices on the market. tinyurl.com/b99aysb8 #disability

3 days ago 4 0 1 0

Wonderful photo. Beak doesn't look particularly sharp.

6 days ago 0 0 0 0
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"On the river, there's a long experience of my body meeting challenges," she says. "When I'm leaning into a stroke, ... I love that. I can move this boat through anything."

Story and photos by Nancy Eve Cohen. tinyurl.com/3sreww59

#MultipleSclerosis #disability 2/2

1 week ago 2 0 0 0
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Rowing upriver, leaving the wheelchair behind Multiple sclerosis has made walking difficult, but out on the water, Joannah Whitney can go anywhere.

Joannah Whitney leaves her wheelchair behind & rows the Connecticut Rv. MS can "feel like just a march of loss. Losing this. Losing that. ... So rowing, for me, was an antidote to that."

Hear & read her story. Story, photos by Nancy Eve Cohen.

#MultipleSclerosis #disability 1/2

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"Prevention is very effective when used earlier in the course of the disease,” Dr. Miravalle says. 2/2 #MultipleSclerosis

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"In #MultipleSclerosis, … time is brain": specialists recommend taking disease-modifying therapies ASAP. “One misconception is that there is time and patients have time to wait until things get worse before they act,” says neurologist Augusto A. Miravalle. tinyurl.com/yc2k2bhd
#disability 1/2

1 week ago 3 1 1 0
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Looking for more ways to connect? ms life is an online community for those affected by #MultipleSclerosis.
This volunteer-led site offers a supportive empowering space for all, incl. newly diagnosed & those helping a loved one live w MS. Expanding your online supports is good! mslifecommunity.com/

1 week ago 2 0 0 0

I know exactly what you mean. I would get huge bursts of energy after aquatic therapy sessions. I've not felt anything like that since. Keep at it.

2 weeks ago 1 0 0 0
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It sounds crazy to exercise when fatigue is an issue, but posture work really seems to help me. Does anyone have any exercises for #MultipleSclerosis?
The next Ask an MS Expert is learning safe, confidence‑building ways to stay active at any ability level.
4/9/26 @ 12 p.m. ET. tinyurl.com/5n8mc7dd

2 weeks ago 1 1 1 0

This, often while raising children of their own and maintaining jobs outside the home. Millions of women. #caregiving

2 weeks ago 0 0 1 0
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‘Nothing prepares you’: The invisible lives of carers in the UK Thrust into the isolated world of caring, a daughter learns how other sole carers cope, some under immense strain.

Usually #caregiving falls to the daughter. "Sitting in that small room, I realised then that life had shifted. My #ageing father wouldn’t be able to help much & my older brother is estranged... I would be doing this solo, a single woman w no partner to turn to, caring for [my mother]." #disability

2 weeks ago 4 1 0 1
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How to Cope When Friends Disappear After Diagnosis Friendships can shift or vanish after an MS diagnosis, leaving you hurt and alone. Learn why it happens, how to cope emotionally, and ways to rebuild connection with people who truly support you.

What hurt even more than #MultipleSclerosis & chronic illness symptoms was something that totally blindsided me — losing friends. Has it happened to you too?

This article is great for identifying so many of the feelings that swamped me then, and it offers coping methods.

2 weeks ago 2 1 1 0

Plants for life and the planet.

3 weeks ago 0 0 0 0
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My pal Dave got dxed w #MultipleSclerosis while in the Navy. He's a leader in the Illinois MS community & helped me get my life back on track. Here he is in his "Proud uncle of a Marine" cap.

Is there a vet in your life who has MS?

Find support for #veterans w MS: tinyurl.com/te65xnek #disability

3 weeks ago 3 1 0 0
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Seven Voting Laws Every Blue State Should Enact Right Now Read more here.

State legislatures should ban signature-matching of mail-in ballots. For #disability & younger voters, signatures change w age. More state-level protections include limiting waiting times; criminal/civil remedies vs. intimidation; & counting all ballots mailed by Election Day. #MultipleSclerosis

3 weeks ago 2 0 1 0
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“As someone with #MultipleSclerosis, I find that it’s very therapeutic to learn about how other people have coped with this disease and other disabilities.”

Helen Russon invites you to the online MS Book & Screen Support Group, about books & MS-related films. Contact helenrusson0225 at gmail.com.

3 weeks ago 1 0 0 0

#disability #MultipleSclerosis

3 weeks ago 2 0 0 0
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Empowering people affected by MS to live their best lives The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

Sylvia Lawry died in 2001 at age 85. “I really believed this would be a short-term undertaking,” Lawry said in her biography, 'Courage'' by Richard Trubo. “Of course, I was wrong.” #MultipleSclerosis
tinyurl.com/3c8jubep 3/3

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Lawry's MS Society is now the world's largest private funder of MS research, playing a part in every one of more than 20 current treatments for the disease. It provides supports and info to 1 million in the US living with MS and their families. 2/3

3 weeks ago 1 0 1 0
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A Sister's Love: Sylvia Lawry placed a NYT ad seeking others w #MultipleSclerosis like her brother.
It led to her starting the MS Society, 80yrs ago this month. “She went where she needed to go, talked to who she needed to talk to & didn’t take no for an answer,” says Tim Coetzee, Society pres. 1/3

3 weeks ago 4 1 1 0
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When I went to the doctor, limping from #MultipleSclerosis, he told me to exercise more. #@*&$! dx process!
This week's Ask an MS Expert is about diagnosis. Learn what's involved & conditions that can be confused for MS, from a prof of neuro studies. From10/26/23.
3/26 11AM CDT. tinyurl.com/5cjy3acp

4 weeks ago 3 0 0 0
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Valerie Perrine, Screen Siren Who Won Critical Acclaim, Dies at 82

At least NYT still runs great obits. Valerie Perrine RIP:

Given her sexpot image..., Ms. Perrine was asked ... if she considered herself a feminist & whether she supported the ... Equal Rights Amendment....

“I don’t believe in the E.R.A. at all,” she said. “Women aren’t equal, they’re superior.”

4 weeks ago 2 0 0 0
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The Hidden Tax on Disabled Travel After two weeks traversing 2,300 miles across New Zealand and checking off every must-do on my list, when I finally checked into my hotel room back in the states, I didn’t have the reaction I expected...

It's so much prep work to do anything w a #disability, says Ian Ruder after his trip to New Zealand.

"While months of planning had resulted in a shockingly problem-free trip, the combined cost of all the stressors, all the worrying & all the extra, anxiety-inducing interactions had worn me down.

1 month ago 3 0 0 0
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How an act of civil disobedience in 1978 Denver helped propel disability rights On July 5-6, 1978, on a busy downtown Denver street, 19 people in wheelchairs blocked public buses--which didn't have wheelchair lifts--to demand access to public transit.

"We are the misfits of the misfits, & look at where we are now. Are you kidding me?"

How 19 #wheelchair users & allies shut down the Denver transit system & won wheelchair lifts on over 200 buses. Great story about the 1978 beginnings of #disability activist group ADAPT.
www.npr.org/2026/03/19/n...

1 month ago 3 2 0 0
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#MultipleSclerosis is there, even when you can’t see it.
For me, it means muscle tightness through my body 24/7, causing fatigue & spasms—unseen from the outside.
It's MS Awareness Week&we're showing the unseen realities of MS life. nationalmssociety.org/how-you-can-help/get-involved/raise-awareness

1 month ago 2 0 0 0
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Love and Service - True Tales by Disability Advocates In this episode, Kurt Wilkinson talks with his friend and fellow host of the show, Adam Griebel, and his wife, Laura Griebel. Laura shares her story, "Floaters," about proving her abilities in the swi...

"Service is spirituality." Beautiful podcast episode here featuring a married couple with #disabilities and some profound marital & spiritual insights. Great work from disability-forward nonprofit Artspark Texas.

www.buzzsprout.com/1895604/epis...

1 month ago 2 0 0 0
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How does your pet or service animal help you cope? When Jeff Smith’s hands go numb of #MultipleSclerosis, his black Lab, Colt, carries the house keys in his mouth. “He picksup on my [symptoms] before I do."
nationalmssociety.org/news-and-magazine/momentum-magazine/the-ms-experience/animal-attraction

1 month ago 4 0 0 0
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Christina Applegate on life with multiple sclerosis: ‘I won’t lie and say any of this is a blessing’ When the Emmy-winning comedy star was diagnosed, her body started giving up on her. She writes about losing control, gaining weight – and refusing to be a ‘good girl’

Christina Applegate on #MultipleSclerosis exhaustion: "It feels as though I’ve been on a 3‑day sleepless bender – and that’s how I feel after a good night’s sleep."

"I don’t have patience for bullshit any more, for things that are meaningless or merely 'extra.'"

#disability

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A cartoon from the 1950’s that’s more relevant than ever 💔

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