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Poor walnut brain kitty!

7 months ago 1 0 0 0
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This is my new superhero logo. I am Triple-tubed Girl. mojovampire.com/burnout/

#tubie #gastroparesis #chronicillness

11 months ago 1 0 0 0

Yeah, I tried Reglan and Domperidone and both gave me tremors. And I agree, so many of our very few options are horrible.

1 year ago 0 0 0 0

That’s because it is horrifying. And same here, I can dull it, but it doesn’t go away. Compazine helped it the most, but it gave me serious tremors. My right arm was just jumping around and I had no control. So I had to go off it.

1 year ago 1 0 1 0

I hate the nausea. It is worse than the pain IMHO.

1 year ago 0 0 1 0

No clue. Just wham! My guts went on a permanent vacation.

1 year ago 1 0 1 0

It's been 3 years for me. Whereabouts you located? I'm in California.

1 year ago 0 0 1 0
Nothing Here to See - Eva's Gastroparedic Adventure It seems like forever ago that I first reached out to my GI about an increase in pain and venting. The only way for me to communicate with my GI is via the online portal. There is no office to call. A...

I have been finding the process of writing posts to be so draining that it takes a bit before I can post them.

mojovampire.com/nothing-here...

#gastroparesis #chronicillness #NEISvoid #insurance

1 year ago 2 0 1 0
Music's Back - Eva's Gastroparedic Adventure There is a lot going on and I have some news to share, but I thought I would start with something that is going right. I finally got music back. It has been many months since I have been able to liste...

I go on a rant and then walk in back. Up next: mojovampire.com/musics-back/
mojovampire.com/nevermind/

#gastroparesis #tubie #chronicillness #NEISvoid

1 year ago 2 0 1 0

Ok. Little chat. As we are hitting the 5 year anniversary of Covid lockdowns beginning in 2020, as someone who is permanently disabled by Long Covid, here’s what I’d *love* to see when people talk about the ongoing pandemic and how it effects them:

1 year ago 598 207 2 21
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German tourists’ ordeal reportedly ending as they are returned from US detention Jessica Brösche to join Lucas Sielaff, who is reported to have returned to Germany on 6 March A German tourist detained by US immigration authorities is due to be deported back to Germany on Tuesday after spending more than six weeks in detention,…

German tourists’ ordeal reportedly ending as they are returned from US detention

1 year ago 217 62 17 12
The words “Thank you for contacting the abyss. Your scream is really important to us” over a swirling galaxy in shades of blue with stars in the black void of space.

The words “Thank you for contacting the abyss. Your scream is really important to us” over a swirling galaxy in shades of blue with stars in the black void of space.

#NEISvoid

1 year ago 21 5 1 0

@rds773.bsky.social Happy Birthday!

1 year ago 1 0 1 0
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Five hundred, twenty-five thousand, six hundred minutes - Eva's Gastroparedic Adventure Today is Nommie’s first yahrzeit (anniversary of his death). That means that as of tomorrow, it will have been a year since our cross country move. It has been quite a year, in so many, many ways. Nei...

Short update on my life mojovampire.com/five-hundred...

1 year ago 2 0 0 0



To: All SEC Employees
From: Ken Johnson, Chief Operating Officer
Date: March 3, 2025
Subject: RE: Update on LARO, PLRO and CHRO Leases

As some of you might be aware, the General Services Administration (GSA) has been involved in a process across federal agencies to review office space leases and potential options for reducing space and related costs. GSA has now decided to end all federal leases goverment-wide where GSA can do so unilaterally and where the agency is not providing direct services to the public.

As part of this decision, GSA recently informed us it has decided to teminate the building leases for the Los Angeles Regional Office (LARO) and the Philadelphia Regional Office (PLRO). GSA retains the sole authority to terminate the leases because they manage those leases on our behalf. To be clear, these lease terminations are not associated with any reorganization or reduction in force plan regarding SEC personnel, but rather apply solely to SEC space.

As part of the initiative described above, GSA also notified us they intend to terminate the lease for the Chicago Regional Office (CHRO). The SEC has responded to the Administration and pointed out that CHRO's lease terms are different iand do not allow for unilateral GSA termination without significant financial penalties. We will keep you posted as we learn more about GSA's decisions.

The SEC will be working with GSA on the process for finding new space for these offices. We understand that GSA aims to have the space exited by the end of August 2025 for PLRO and CHRO, and the end of September 2025 for LARO. It is the SEC's intent that if new office locations are not ready by the time the GSA-initiated lease terminations take effect, then the affected SEC staff will be placed on full-time telework.

We will provide more information as we learn it.

Thank you.

To: All SEC Employees From: Ken Johnson, Chief Operating Officer Date: March 3, 2025 Subject: RE: Update on LARO, PLRO and CHRO Leases As some of you might be aware, the General Services Administration (GSA) has been involved in a process across federal agencies to review office space leases and potential options for reducing space and related costs. GSA has now decided to end all federal leases goverment-wide where GSA can do so unilaterally and where the agency is not providing direct services to the public. As part of this decision, GSA recently informed us it has decided to teminate the building leases for the Los Angeles Regional Office (LARO) and the Philadelphia Regional Office (PLRO). GSA retains the sole authority to terminate the leases because they manage those leases on our behalf. To be clear, these lease terminations are not associated with any reorganization or reduction in force plan regarding SEC personnel, but rather apply solely to SEC space. As part of the initiative described above, GSA also notified us they intend to terminate the lease for the Chicago Regional Office (CHRO). The SEC has responded to the Administration and pointed out that CHRO's lease terms are different iand do not allow for unilateral GSA termination without significant financial penalties. We will keep you posted as we learn more about GSA's decisions. The SEC will be working with GSA on the process for finding new space for these offices. We understand that GSA aims to have the space exited by the end of August 2025 for PLRO and CHRO, and the end of September 2025 for LARO. It is the SEC's intent that if new office locations are not ready by the time the GSA-initiated lease terminations take effect, then the affected SEC staff will be placed on full-time telework. We will provide more information as we learn it. Thank you.

BREAKING — The Securities and Exchange Commission (SEC) has just announced the closure of major regional offices in Philly, LA and Chicago, per email shared with me.

“5 alarm fire,” SEC employee tells me.

Full email text:

1 year ago 6702 3191 254 334

Like people who rely on their meager social security checks have enough in their monthly budget to save any. 🤬

1 year ago 1 0 0 0
Ariana Grande and Cynthia Erivo 'Wicked' Performance at 97th Oscars (2025)
Ariana Grande and Cynthia Erivo 'Wicked' Performance at 97th Oscars (2025) YouTube video by Oscars

I love Oz in all of its multiverses. I also grew up on The Wizard of Oz and The Wiz. This medley got me right in the Gen X feels.
#Wicked #oscars #WizardofOz #TheWiz

youtu.be/In-GXkhzFNM

1 year ago 2 0 0 0

Back in the ER. All I wanted/needed was some hydration. 6 hours later, after a normal CT and land, I*finally* got a liter of fluid and a discharge. #gastroparesis #tubie #NEISvoid

1 year ago 3 0 0 0
An Octopus’s Garden - Eva's Gastroparedic Adventure I think an octopus must have moved into our attic because the shoes keep dropping. When last heard from, things were looking up. I had gone a few nights without venting overnight and we thought the wo...

My latest update in my Gastroparedic life. mojovampire.com/an-octopuss-...

1 year ago 0 0 0 0
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So close... - Eva's Gastroparedic Adventure It has been a while, but I have been occupied with a flare, a birthday party and a visitor. All in good time. On January 29th, I was scheduled to see my GI NP. We arrived at the appointment and there ...

Latest in my life journey with gastroparesis. mojovampire.com/so-close/

#gastroparesis #chronicillness #NEISvoid #tubie

1 year ago 1 0 0 0
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The Elite Lawyers Working for Elon Musk’s DOGE Include Former Supreme Court Clerks Much attention has been paid to the young Silicon Valley engineers working for Musk’s Department of Government Efficiency, but the group has also hired high-powered legal talent.

NEW: It's not just coders.

DOGE is filled with lawyers, elite attorneys with conservative credentials.

We have new names:

www.propublica.org/article/elon...

1 year ago 2408 1148 89 54

The end of the no propane/G-J tube flipped saga:https://mojovampire.com/wonder-of-wonders/

1 year ago 1 0 0 0
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Bookshop: Buy books online. Support local bookstores. An online bookstore that financially supports local independent bookstores and gives back to the book community.

Indie Bookstores Will Soon Be Able to Sell E-Books to Customers www.nytimes.com/2025/01/28/b...

While I am at it, let me add a plug for libro.fm for audiobooks from independent booksellers.

#books #resist #independentbooksellers

1 year ago 1 0 0 0
A white presenting woman is wearing a green dinosaur onesie. She is shown from the chest up and is wearing a black t-shirt under the partially unzipped onesie. 

The hood of the onesie, showing white teeth, a snout and yellow eyes, with spikes starting at about her forehead, is covering her eyes and nose. All you can see are her smile and chin, with a cascade of long, dark brown hair on one side.

A white presenting woman is wearing a green dinosaur onesie. She is shown from the chest up and is wearing a black t-shirt under the partially unzipped onesie. The hood of the onesie, showing white teeth, a snout and yellow eyes, with spikes starting at about her forehead, is covering her eyes and nose. All you can see are her smile and chin, with a cascade of long, dark brown hair on one side.

This has not been a Good Day.

mojovampire.com/just-when-yo...

#gastroparesis #NEISvoid #tubie #chronicillness

1 year ago 3 0 1 0

I will do my best. Both to find the joy and to be ready when the time comes to actively defend what I can.

1 year ago 1 0 0 0

I literally do not know how I am going to make it through the next 4 years. The administration is undoing the work of the civil rights movement with the stroke of a pen.

And that is only one of a million things that have been destroyed or corrupted and it is only day 3. 😭

1 year ago 2 0 1 0

some reporters have been too loose with phrasing like DEI. makes it sound like it's all abt post-George Floyd murder stuff. As he notes, they're ditching anti-discrimination policies that go back to LBJ.

1 year ago 2554 830 64 24
A white presenting man with short, greying, but floppy hair and big sunglasses, wearing a pink button up shirt with a royal blue fleece vest over it. Peering over his right shoulder is a woman wearing a grey hoodie, with the hood over her head, wearing sunglasses pose on Stinson Beach in west Marin county, CA. It is a sandy beach with some people and ocean waves in the background

A white presenting man with short, greying, but floppy hair and big sunglasses, wearing a pink button up shirt with a royal blue fleece vest over it. Peering over his right shoulder is a woman wearing a grey hoodie, with the hood over her head, wearing sunglasses pose on Stinson Beach in west Marin county, CA. It is a sandy beach with some people and ocean waves in the background

I wrote a brief update on my continuing efforts to transition from TPN back to enteral feeding.

mojovampire.com/a-brief-brief/

#gastroparesis #tubie #chronicillness

1 year ago 2 0 0 0

That is impressively inaccurate.

1 year ago 0 0 0 0

I hear you. 9 months in our current place and the only room fully unpacked is the bedroom. But there were 3 hospitalizations in there, a PICC line, TPN and 4 months of extreme pain.

Nevertheless, I look forward to the day when our house is set up the way we want it. Until then, this will do.

1 year ago 0 0 1 0
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