I, too, have described my tinnitus as sounding like the buzz of a fluorescent light ballast.

I seem to be able to get my brain to focus elsewhere at times. So it's not always driving me crazy.

At first when I was outside I thought I was hearing crickets!

This is such an important issue. I particularly worry about what is happening inside immigration detention facilities.

Perfect article title!

Great interview! Thanks for your advocacy!

There is a general lack of provider knowledge regarding swallowing manifestations of POTS.

Clinicians should be trained to recognize the episodic nature of dysautonomia symptoms that include dysphagia.

For many, swallowing became a cognitive task rather than an automatic function.

Several participants described the unpredictable nature of their swallowing difficulties, causing fear and anxiety around eating and drinking. This episodic presentation distinguishes POTS-associated dysphagia.

A structured interview of patients with autonomic disorders was conducted utilizing the Dysphagia Handicap Index (DHI).
Swallowing function is controlled by the vagus nerve, which is responsible for swallowing coordination.

www.mdpi.com/2035-8377/18...

In Pursuit of Understanding the Crash What Post-Exertional Physiology Tells Us About ME/CFS

"Recovery-focused studies show ME/CFS patients report return-to-baseline times averaging nearly two weeks after a standardized physical exertion compared with around 48 hours in healthy, deconditioned controls."
likeannopeningbandforthesun.substack.com/p/in-pursuit...

Thank you to
@meactnet.bsky.social #millionsmissing #Frailandfurious
for the writing workshop on 4/14/26. You inspired me!

I go inside to seek refuge from the noises. But the internal vibration never ceases. It is as if I have a pair of buzzing bees inhabiting my ears. Tinnitus is merely one of the inescapable symptoms of my ME/CFS and Long COVID.

of course, the incessant cacophony of my tinnitus.

I am hyper sensitive to sounds: the dull roar of distant road construction, the occasional whine of a jet overhead, the annoying high pitched buzz of a neighbor’s chainsaw, various backyard birds calling out and responding to each other, and

It is an atypically warm mid-April day. The lead-colored sky forms a canopy overhead. Magnolia and weeping cherry blossoms are transformed to muted mauve by the sunlight-obscuring stratus layers. A warm, humid breeze swirls around me.

“We call on all those working with young people with #LongCovid to facilitate young people’s alternative networks of care, and take inspiration from young people’s forms of everyday activism to proliferate the tangible, everyday, forms of support needed”

www.longcovidkids.org/post/covid-m...

#Care

This is excellent. Thank you for sharing!

"You can’t bully your body into producing energy it doesn’t have. You can’t intimidate PEM into not happening."

What a beautiful video. Thank you for sharing! ❤️

Rosie Pidgeon on Instagram: "Thank you to @hope4mefibro.ni for letting me bring along some of my artwork yesterday to 'Shaping the Future for M.E. & Long Covid: Collaboration for Change' and represent... 33 likes, 2 comments - rosiepidgeonart on March 28, 2026: "Thank you to @hope4mefibro.ni for letting me bring along some of my artwork yesterday to 'Shaping the Future for M.E. & Long Covid: Collabora...

Rosie met with the panel, talked about her work,connected with patients, parents, carers. Her story gives people hope, & that matters deeply.

We hope to bring the LCK art exhibition into a medical school for #MEAwareness Week. More on that soon. 🎨 www.instagram.com/p/DWbgQ6zDPr0/

An authority Headline: Authorities Frustrated By Awareness Of Long Covid Outside Of Designated Long Covid Awareness Day Story by Sam Likewise and Clark Cubicle Photo from Unsplash

Authorities Frustrated By Awareness Of Long Covid Outside Of Designated Long Covid Awareness Day

Brainstorming F words! 😅

RISD Alumni Magazine Winter 2024

“…astronauts are similar to persons with disabilities in that they have specific challenges in the ways they navigate space. [I]f you consciously design for the least-abled people, you make a better design for everybody” (p 29)
@exceedhergrasp1.bsky.social @thesicktimes.org
issuu.com/risd/docs/ri...

Loretta Ross said: “When people think the same idea and move in the same direction, that’s a cult. When people think many different ideas and move in one direction, that’s a movement.” — and that we spend too much time arguing with people whom we agree with on 75-90% of issues. /7

Have you @baldypidge.bsky.social seen this article? I was quoted in it.
thesicktimes.org/2026/03/30/c...

Billy, Happy Easter! Thank you for all that you do!

Love it!

Colin, Happy Easter to you and your family!

One of my take-aways, “David Putrino said that people with chronic conditions demonstrate good adaptive coping skills. It was confirmation that being chronically ill is hard and that modifying one’s behavior to cope is a recognized achievement.”

It is equally horrifying to think about the children who are undiagnosed or misdiagnosed.