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Thank you to
@meactnet.bsky.social #millionsmissing #Frailandfurious
for the writing workshop on 4/14/26. You inspired me!

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Social Media Tips:
Shares matter! Share & comment on our posts and on others using the hashtags below.

Please tag @meactnet and use the hashtags #MillionsMissing and #FrailAndFurious. Feel free to add additional hashtags.

Please add an image description or alt text if you can and add captions.

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Level 3 actions with a level 3 battery on white background with red graphics and black text. Frail and Furious #MillionsMissing logo. Text: Share your story on social media.
Photo + your story. See our storytelling prompts for this year’s messaging ideas.  Use the hashtags: #FrailandFurious and #MillionsMissing, and tag @MEActnet.
Create a fundraiser for #MEAction. 
Start your own fundraiser using our site, or using Facebook or Instagram's fundraising platforms.

Level 3 actions with a level 3 battery on white background with red graphics and black text. Frail and Furious #MillionsMissing logo. Text: Share your story on social media. Photo + your story. See our storytelling prompts for this year’s messaging ideas. Use the hashtags: #FrailandFurious and #MillionsMissing, and tag @MEActnet. Create a fundraiser for #MEAction. Start your own fundraiser using our site, or using Facebook or Instagram's fundraising platforms.

Level 3:
- Share your story!
Photo + your story. See our storytelling prompts for this year’s messaging ideas. Use the hashtags: #FrailAndFurious and #MillionsMissing, and tag @MEActnet.

- Create a fundraiser for #MEAction.
Use our site or social media. meaction.funraise.org/start-fundra...

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Level 2 actions with a level 2 battery on white background with red graphics and black text. Frail and Furious #MillionsMissing logo 
Text: Interact on social media! Reshare/Like/Comment on posts in the community.  Search hashtags including #FrailandFurious and #MillionsMissing
Share our fundraiser with your network.

Level 2 actions with a level 2 battery on white background with red graphics and black text. Frail and Furious #MillionsMissing logo Text: Interact on social media! Reshare/Like/Comment on posts in the community. Search hashtags including #FrailandFurious and #MillionsMissing Share our fundraiser with your network.

Level 2:
- Interact on social media! Reshare/Like/Comment on posts in the community. Search hashtags including #FrailandFurious and #MillionsMissing

- Share our fundraiser with your network. (new fundraiser coming soon but meaction.net/donate always works too!)

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2026 Millions Missing storytelling workshops registration open for April 14 and 16 at 4 pm ET, two sessions available. Text-based graphic with dates circled on a calendar. Text: Are you registered? Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

2026 Millions Missing storytelling workshops registration open for April 14 and 16 at 4 pm ET, two sessions available. Text-based graphic with dates circled on a calendar. Text: Are you registered? Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

Register now for either of our #MillionsMissing Storytelling workshops coming up THIS WEEK on April 14th and 16th at 4 pm ET. For anyone wanting some guidance and help crafting your story!

April 14 https://ow.ly/49nK50YCSEf
April 16 https://ow.ly/6mXj50YCSEi

#FrailAndFurious #pwME

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Video

Are you frail & fabulous? Frail & fighting…formidable…funny? We want to hear what your “and” is…so tell us, what is your “f” word?

Join us this #MillionsMissing to tell the world we are #FrailAndFurious & so much more!

Fight for our healthcare
Will you join us?

Millionsmissing.org

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Person using a megaphone to amplify their voice, promoting storytelling for the #MillionsMissing campaign in 2026. 
Text: "Storytelling is a key part of #MillionsMissing this year!  There are HUGE policy implications this year for telling your story. Share your story on social media and/or to our story bank. See our #MillionsMissing Take Action Toolkit for all the info."
Detailed photo description: White woman with brown hair pulled back wearing sunglasses and a coat holds  megaphone and is speaking into it. Above her is a sign that says "amplify your voice."

Person using a megaphone to amplify their voice, promoting storytelling for the #MillionsMissing campaign in 2026. Text: "Storytelling is a key part of #MillionsMissing this year! There are HUGE policy implications this year for telling your story. Share your story on social media and/or to our story bank. See our #MillionsMissing Take Action Toolkit for all the info." Detailed photo description: White woman with brown hair pulled back wearing sunglasses and a coat holds megaphone and is speaking into it. Above her is a sign that says "amplify your voice."

Storytelling is a key part of #MillionsMissing! Find all you need in our toolkit: https://ow.ly/IUOk50YGIh9

It’s essential that we make our policymakers understand that ME is a serious, complex disease that deserves care and support, appropriate treatments and research.

#FrailAndFurious #MECFS

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We will record a brief introduction with some helpful tips for those unable to attend but most of the video will not be recorded in order to let people receive help with their stories with privacy.

#FrailAndFurious #pwME #Medicaid #MECFS

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Red t-shirts featuring 'Frail & Furious #MillionsMissing' on the front and '#MEAction logo on the back. Text: Tees now available! Available for immediate shipping! With or without logo on the back. Multiple colors, styles, and sizes! Order now.

Red t-shirts featuring 'Frail & Furious #MillionsMissing' on the front and '#MEAction logo on the back. Text: Tees now available! Available for immediate shipping! With or without logo on the back. Multiple colors, styles, and sizes! Order now.

#MillionsMissing 2026 #FrailAndFurious tees are now available! https://www.bonfire.com/store/meaction-1/

We have lots of styles and colors to choose from!

You can choose tees with a logo on the back on ones without.

A portion of your purchase helps support our work!

#pwME #MECFS #LongCovid

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Myalgic Encephalomyelitis is a fully disabling life changing chronic illness. #MEAction #frailandfurious #mecfs #pwme #disabilityjustice #fundhealthcare

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2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

Register now for either of our #MillionsMissing Storytelling workshops coming up on April 14th and 16th at 4 pm ET. For anyone wanting some guidance and help crafting your story!

April 14 https://ow.ly/AX0650YCSEj
April 16 https://ow.ly/uy7250YCSEh

#FrailAndFurious

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 New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person.   MEAction logo is a circle with the text #MEAction in the circle.

New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person. MEAction logo is a circle with the text #MEAction in the circle.

This #MillionsMissing, we are #FrailAndFurious!

Injustices are happening worldwide because ME is not taken with the seriousness we deserve.

Let's come together to show the world how devastating this disease is.

Join the fight: millionsmissing.org

#pwME #LongCovid #MECFS

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