Heading to college with dysautonomia? Watch DSN's DyscEd Q&A video, download the free handbook & join College Connections support group for students navigating dysautonomia.
Video: https://youtu.pulse.ly/s5gxntoc26
#Dysautonomia #POTS #College
Newly diagnosed with dysautonomia? DSN's Getting Started guide is your roadmap - learn about forms, find providers, discover management techniques & connect with community.
https://dysautonomiasupport.pulse.ly/zhuobgc1bp
#Dysautonomia #POTS
Dysautonomia affects the autonomic nervous system, which controls automatic body functions. It impacts 70 million people worldwide. While there's no cure, symptoms can be managed effectively. Learn more:
https://dysautonomiasupport.pulse.ly/h63gfycsem
#Dysautonomia #POTS
Need a dysautonomia-knowledgeable doctor? DSN's free patient-recommended Provider Directory helps you find experienced healthcare professionals near you.
https://dysautonomiasupport.pulse.ly/aeyx4aiswo
#Dysautonomia #POTS #ChronicIllness
Balancing activity & rest helps manage dysautonomia symptoms. The Dysautonomia Workbook is full of OT-based tools to help you keep that balance. Get yours: https://dysautonomiasupport.pulse.ly/i0ghtkdehk
Connect with others who understand. DSN offers 2 Global Communities—Facebook & Inspire—for peer support. 🌍
https://dysautonomiasupport.pulse.ly/s3npyjtrbf
#Dysautonomia #POTS #ChronicIllness
Living with dysautonomia? You're not alone. DSN offers medically-reviewed info, safe online communities, monthly Virtual Support Groups & downloadable resources. Everything you need in one place: https://dysautonomiasupport.pulse.ly/133epgwg8k
#Dysautonomia #POTS #ChronicIllness #Support
AAG: rare dysautonomia w/ autonomic failure. Symptoms: orthostatic hypotension, dry eyes/mouth, gastroparesis, bladder issues. Treatment: plasma exchange, IVIG, immunosuppressants. https://dysautonomiasupport.pulse.ly/1scjnzl6bx #Dysautonomia #AAG
The Dysautonomia Workbook: A Guide to Empowered Living is now available!!! Get practical tools and strategies for living with dysautonomia. See details and order info:https://dysautonomiasupport.pulse.ly/35bcqluith
#dysautonomia #chronicillnesssupport #potssyndrome #longcovid #symptommanagement
Happy New Year from all of us at DSN! 🎊
As we step into 2026, we want you to know: you are not alone in this journey. 🩵 Wishing you all a year filled with compassion, strength, and bright days ahead.
As we look forward to another new year, what are your hopes and plans for 2026? Share your thoughts and let's start weaving a network of support for each other's New Year's dreams!
#NewYear #dysautonomia #chronicillnesssupport #potssyndrome #longcovid #2026
What is Orthostatic Hypotension? OH is a drop in blood pressure when changing position, causing dizziness, lightheadedness, and sometimes fainting. Learn more: https://dysautonomiasupport.pulse.ly/yw04vrgy9l #Dysautonomia #OH #ChronicIllness
From "Ask the Expert: How to Use OT to Manage Dysautonomia" with Dr. Joanna Behm. Full video: https://youtu.pulse.ly/b7oe89kpqo
Workbook: https://dysautonomiasupport.pulse.ly/6xt8oqretd
#Dysautonomia #POTS #OT
Managing fatigue in school? These modifications help students with dysautonomia: elevator pass, extra books at home, brain breaks, virtual attendance & adjusted schedules. Full guide: https://dysautonomiasupport.pulse.ly/os8s3hipdg #Dysautonomia #POTS
You asked about heat intolerance! Try cooling vests, ice packs, portable fans & lukewarm showers. This season's temp shifts are challenging!
https://dysautonomiasupport.pulse.ly/fp4eea8ozb
#Dysautonomia #POTS #ChronicIllness
Need to explain POTS? Download our free handout! 📋 Easy info on Postural Orthostatic Tachycardia Syndrome for family, friends & doctors. Other dysautonomia handouts available too!
https://dysautonomiasupport.pulse.ly/lfq4yvqhxq
#POTS #Dysautonomia
Today, we're wishing you moments of peace: peace with where you are right now. Peace that recognizes your reality without diminishing your hope. Peace that holds both acceptance and action.
You are more than your symptoms, more than your diagnoses. May you feel that truth today. 💙
What other stockings could they be talking about?
#chronicillnesshumor #spoonie #potsie
It's tiiiiiiimeeee! 🎉 The Dysautonomia Workbook pre-orders have shipped & copies are available now!
https://dysautonomiasupport.pulse.ly/x7zten6hv5
#Dysautonomia #POTS #ChronicIllness
The DSN Creatives Club is a place for members to explore and develop interests and talents with others who understand the challenges of pursuing your passion and goals with a chronic condition.
Join: https://facebook.pulse.ly/dqmngmwv4h
#dysautonomia #creativeexpression
Cold intolerance with dysautonomia? Try layers, heated blankets, hand warmers & warm soaks. Avoid quick temp shifts!
https://dysautonomiasupport.pulse.ly/z83fdi9ogd
#Dysautonomia #POTS #ChronicIllness
Energy conservation helps manage dysautonomia fatigue through planning, prioritizing, pacing & positioning. Sit when possible, take breaks early & organize efficiently. https://dysautonomiasupport.pulse.ly/kvscy7kda2
#Dysautonomia #POTS
Assistive tech isn't just for chores—it's for joy. Scrolling rings, adaptive athletic equipment, ergonomic tools for art/music/gardening. Search: assistive tools + your symptoms + what you love. You deserve to enjoy life. 🩵
#AssistiveTechnology #Disability #ChronicIllness
MCAS commonly co-exists with dysautonomia. Mast cells inappropriately release inflammatory chemicals causing multi-system symptoms. Treatment includes trigger avoidance & medications. Learn more: https://dysautonomiasupport.pulse.ly/iexvyluoyb
#MCAS #Dysautonomia #POTS
What's the best or most thoughtful gift you've ever received as a person managing chronic illness - or as a caregiver for a person with chronic illness? What's on your wishlist this year? Tell us what would make your holidays brighter!
What's the best or most thoughtful gift you've ever received as a person managing chronic illness - or as a caregiver for a person with chronic illness? What's on your wishlist this year? Tell us what would make your holidays brighter!
Free IST handout available! Learn about symptoms, diagnosis & treatment for Inappropriate Sinus Tachycardia. Perfect for patients & caregivers. 📋💙
https://dysautonomiasupport.pulse.ly/858owwavh2
#Dysautonomia #IST #ChronicIllness
You don't have to navigate dysautonomia alone. 🩵
DSN's regional online communities offer peer-to-peer support in a welcoming and private environment. Find your region: https://dysautonomiasupport.pulse.ly/f6qzdnzqgy
#dysautonomia #support #community #chronicillness #peerSupport
Vasovagal Syncope (VVS) is a form of dysautonomia where the nervous system suddenly fails to maintain blood vessel tone, causing fainting. Triggered by standing, stress, or pain. Learn more: https://dysautonomiasupport.pulse.ly/6q3twduw3q
#Dysautonomia #VVS
Newly diagnosed with dysautonomia? DSN's Getting Started guide helps you go from surviving to thriving with provider directories, management resources & supportive communities.
https://dysautonomiasupport.pulse.ly/u5cni7mcia
#Dysautonomia #POTS
