The APPG on Long Covid held a successful AGM on 24th March 2026. It has been registered and is good to go for another year!
Plans were discussed for upcoming meetings, and minutes from the meeting will be available on our website soon.
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Our #ForThoseWhoCant fundraising champion of the week is Emily Morrison. Emily has been deeply impacted by Long Covid and her sister Kate and her partner Martin will be running the Zurich Marathon, this Sunday, to raise awareness and donations for Long Covid Support.
Jo Dainow, Founding Member and Trustee of Long Covid Support, shares the story of how the charity was founded and what it's focus is now.
#LongCovid #LongCovidAwareness #LongCovidSupport
Think Global Health has reported on the closure of Long Covid clinics across the country despite millions still living with Long Covid.
🔗 Read the full article here: www.thinkglobalhealth.org/article/engl...
#LongCovidSupport #LongCovid #LongCovidClinics #LongCovid Awareness
So many of us with debilitating illness impacting every aspect of our lives, yet we’ve been abandoned by ICBs who are pulling funding from specialist #LongCovid healthcare services.
bsky.app/profile/nikk...
Today, alongside Long Covid Kids, Long Covid SOS and Long Covid Physio, we release our demands ahead of the release of the UK Covid-19 Inquiry report on Module 3 (due on Thursday 19 March).
Read the press release on our website: www.longcovid.org/impact/news/...
#CovidInquiry #LongCovid
White background with a red heart with a heart beat trace across the middle. Black text around the heart reads Every Heartbeat Counts. Below is written hashtag Long Covid Awareness Day.
The NHS England GP Patient Survey 2025 asked approx. 700,000 people if they have #LongCovid.
Yes: 4.2%
I don’t know: 9.5%
These figures are staggering evidence of the likely prevalence of symptomatic people & the continuing lack of education on Long Covid.
#LongCovidAwareness
If you or a loved one are able to donate to our fundraiser today, we are asking for £6 for 6 years — £1 for each year since the pandemic began. You can donate quickly and securely via the JustGiving link:
www.justgiving.com/campaign/lon...
#LongCovidAwarenessDay #EveryHeartbeatCounts
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❤️🩹 A THANK YOU TO OUR COMMUNITY ❤️🩹
Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact.
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Covid - forgotten but not gone. Like the ads I used to see on the tram about TB as a kid
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On #LongCovidAwarenessDay, here’s the video I did recently when I reached 6 years of debilitating, disabling and life-changing #LongCovid illness.
Millions of people worldwide facing systemic neglect.
#LongCovidHeartbeats
#LongCovidAwareness
“You’re not just becoming disabled, you’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.”
⬇️⬇️⬇️
#LongCovid
#LongCovidAwareness
#LongCovidHeartbeats
PART 2 - Prevalence of Long Covid
Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains why the number of Long Covid cases in the UK is increasing .
#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport
As you were a Member of the APPG on #LongCovid, fingers crossed you will include in your priorities measures to help prevent #Covid infection and providing the 3 million+ people with Long Covid the specialised healthcare they need for this complex and devastating illness.
I’ve also had Long Covid for 6 years. I was eventually seen by the local Long Covid service when it was set up in 2021 but was discharged once I’d had a few tests and completed some rehab online workshops.
🚨Research finds people who’ve had #Covid are at:
⚠️ 4.7 times the risk for kidney failure
⚠️ 3.2 times the risk for end-stage renal disease
⚠️ 2.7 times the risk for acute kidney injury
⚠️ 1.4 times the risk for chronic kidney disease
And more!
#LongCovid
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
“We are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support
BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month.
Read: www.bbc.co.uk/news/article...
#LongCovid #LongCovidClinics
Seven advocacy leaders pose together in a modern office atrium following a meeting. One woman sits in a wheelchair at the front, with six others standing behind her. The space features glass walls and hanging decorative lights.
1/ Our Chair, Nigel Rothband (centre), recently met with partners in the Overlapping Illness Alliance to move our shared advocacy work forward.
Together, we focused on how to improve recognition and strengthen support for people living with overlapping and under-recognised conditions.
❤️🩹
This is true (UK). I was discharged from #LongCovid Hospital Clinic in 2022, a 2yr wait since 2020 infection, with myriad ongoing symptoms. Offered only Talking Therapy in 2024. There's zero support, nothing joined up, government sweeping us under a carpet. Life is upside down, frightening. I cry.
Powerful video from @nikki-s.bsky.social on 6 years of #LongCovid.
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
Six Years. I too caught Covid this time in 2020.
In those 6 years, incl. the Covid inquiry, we shared testimonies, gathered evidence, gave those who need to know all the information they needed. They know.
We're still here, still ill. Like doing all, doing nothing is an active choice💔 #CureLongCovid
Thanks Ruairidh. 💖
👇🏼 the reality for tens of thousands of people with Long COVID
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