Powerful video from @nikki-s.bsky.social on 6 years of #LongCovid.
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
Hat tip to Britt Lower of Severance for this subtle message in her acceptance Emmys speech
#ResearchLongCOVID
#ResearchME
Margot & Dakota making statements on the red carpet this week - and that bold message is to Research Long COVID & ME
#ResearchLongCOVID
#ResearchME
Needless to say #CovidIsNotOver 6/6
More than ever we need:
😷 To normalise that people #WearAMask
🔬 intensive efforts to #ResearchLongCovid to speed up diagnoses & treatment
🏣 Clean air in buildings
🪧 To recognise how much damage is still done to public health
💪🏼 Support #CallForPublicHealthAction
Beyond long COVID - how reinfections could be causing silent long term damage
#santequebec #covidisairborne #covidisntover #cleanairforall #cleanairinhealthcare #cleanairinschools #researchlongcovid #quebec #canada
www.cbc.ca/player/play/...
Yep. Disability advocates have been saying this since 2020. We need to actually address LC (as explained here by leading LC/IACC expert Dr. Amy Proal: www.latimes.com/opinion/stor...); ignoring it will make it worse. #TreatLongCovid #ResearchLongCovid #CureLongCovid
Three people (me and my children) crouching on top of the rocky ridge that leads up the Helvellyn in the UK's Lake District, looking down across the scenery. Dark clouds gather in the background
Here's old me - being able to go hiking with the family
They now go without me
#LongCovidAwarenessDay #ResearchLongCovid
The words CURE. NOW. are printed in capital letters onto narrow rectangle of sunshine yellow and white gingham fabric in blue marker. Slivers of yellow are visible between the pen strokes. This was my contribution to the Long Covid Support campaign banner for Long Covid Awareness Day 2025.
My Long Covid chronic fatigue, cognitive dysfunction’s & disabilities are overwhelming and relentless. All. Day. Every. Single. Day. For over 5 years. I have never recovered.
#longcovid #pwLC
#LongCovidAwarenessDay
#cureLongCovid
#fundLongCovid
#ResearchLongCovid
@longcovidsupport.bsky.social
Quote by Charles River Editors, The 1918 Spanish Flu Pandemic.
#LongCovidAwarenessDay #LongCOVIDAwarenessWeek #LongCovid #ResearchLongCovid #TreatLongCovid
In my own role model profile, I'm talking about my experiences of becoming newly disabled by #LongCovid
Particularly pertinent with the upcoming #LongCovidAwarenessDay and 5 year anniversary articles popping up everywhere.
We need more #ResearchLongCovid
www.ucl.ac.uk/bartlett/ker...
Yes! Yes! Yes! Op-ed from leading researcher on #LongCovid from @polybiorf.bsky.social #ResearchLongCovid #TreatLongCovid #CureLongCovid
The associated research by Cervia Hasler et al. was funded by dozens of grants in Switzerland by @snsf-ch.bsky.social and others 👏🏼👏🏼
This goes to show that progress can be made if only funding is provided.
More of it please!
#ResearchLongCovid
I'm not a medical researcher but I'm pretty sure that my cells aren't doing what they're supposed to be doing
Hopeful that the below research published in Science is part of the puzzle leading to treatments
Immune damage in Long Covid | Science www.science.org/doi/10.1126/...
#ResearchLongCovid
Dark background. Long Covid Support logo in top left. Graphics include blue quote marks, red star, newspaper with the word research, hand holding red jigsaw piece. Headed Co-Authored Research. 7 white boxes contain research titles. "Long Covid: a global health issue - a prospective, cohort study set in four continents", "Pathophysiological Mechanisms in Long COVID A Mixed Method Systematic Review", "Impact of Long COVID on productivity and informal caregiving", "Prevalence of orthostatic intolerance in long covid clinic patients and healthy volunteers: A multicenter study", "When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid", "A Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Adults: An International Delphi Consensus Study" and "Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?". Text at the bottom says Find more on our website www.longcovid.org
📣 Some of the work we do is in #LongCovid research. Several of our charity members have been involved in an array of research and have co-authored many significant papers. Take a look at some of them on our website - Link below! ⬇️
#ResearchLongCovid
This hits home really hard - I urge everyone to watch this, especially if you're healthy and not caring for someone with #LongCovid
I'm marginally better than Darren - I can work a few hours a day - but I've overexerted yesterday so today is payback time 😵💫😔
We need answers!
#ResearchLongCovid
💕 Por fin!
▶️ El texto íntegro de la PNL de #CovidPersistente q se aprobó en la Comisión de Sanidad del Congreso del Diputados el pasado 28/11!
🎉 Es la PNL de tod@s los pacientes de #LongCovid!!
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
#CovidIsNotOver
▶️ New study that takes into account the particularities of women and proposes ad hoc rehabilitation strategies.
♀️ "Considerations for the rehabilitation of women with #LongCovid"
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
🔗 www.sciencedirect.com/science/arti...
Fabulous to see - I've been using the Visible apps for years to great effect and donated my data to this study
Thanks @putrinolab.bsky.social for your ongoing efforts to #ResearchLongCovid and #MECFS
View of the Aggenstein, a mountain in the Allgäu Alps in South Germany bordering Tyrol in Austria. To the right of the mountain (drawn in brown, grey and dark green hues) further ranges of the Alps appear in dreamy blue tones. Sloping grassy fields with evergreen trees are in the foreground. The whole drawing is split into triangles with black fineliner creating an abstract impression. Colours are varied so that no two adjacent areas are coloured in the same tone.
Day 9 of #ArtAdventCalendar - I drew this Alpine landscape in 2024, chronically ill with #LongCovid using a photo I took myself in 2019 on a hiking trip with the family. Bittersweet as I have no capacity for exertion atm but high hopes in #ResearchLongCovid
#pencilDrawing polychromos on white paper
...completely on the specific person and only predicts that person's crashes
N=4,244
Measurements made with the Visible app
#PersonalizedMedicine
#ResearchLongCovid
🔗 Original article: www.researchsquare.com/article/rs-5...
👉🏻 El modelo predictivo es completamente dependiente de la persona en concreto y sólo predice los crash de dicha persona
N=4.244
Medidas realizadas con la app Visible.
#MedicinaPersonalizada
#ResearchLongCovid
🔗 Artículo original: www.researchsquare.com/article/rs-5...
I'm sorry that he has #LongCovid but I'm also so thankfull that he has been so brave to share this publically and advocate for all of us making this illness much more visible.
Thank with all my 🩷
#VIPLongCovid
#ThisIsTheWay
#LongCovidAwareness
#ResearchLongCovid
#CovidIsNotOver
Not a regular in this virtual demonstration for clean air, #ResearchLongCovid, open access to vaccines, evidence-based infection control and honest communication in this #CallForPublicHealthAction but I'm here, day 0️⃣2️⃣ for me, joining from 🇬🇧
Man wearing shirt, jacket and tie sat behind a desk with a microphone in front of him and a jug of water to his right. Subtitles read “continue to do a lot research”.
🚨At the UK #CovidInquiry, Prof. Sir Chris Whitty (CMO for England) on #LongCovid research:
“It is absolutely an area we need to continue to do a lot of research in because there are clearly a lot of people affected & will continue to be”
#CovidIsNotOver
#ResearchLongCovid
Good Housekeeping Magazine cover, and A. K. Davidson poetry feature.
If you fancy a little light (but not trivial) reading this weekend, I wrote a feature for Good Housekeeping magazine about poetry and the power of connection & community – raising awareness of #LongCovid.
#poetry #longhauler #researchlongcovid
Black and white images of 12 people with Long Covid including several on oxygen, several with severe fatigue and some undergoing hospital tests. There is the Long Covid Support logo and website address www.longcovid.org. Quote reads: “A legacy of the devastating pandemic is the many millions globally suffering long term disability through the pathological process of Long Covid. We so urgently need support for pathways to better offer research and clinical support to those with long term disability. Stigmatising the long term disabled with terms such as 'sicknote culture' might be taken to indicate a lack of insight into the seriousness of this situation”. Prof. Danny Altmann, Professor of Immunology, Trustee of Long Covid Support. Long Covid Support is a registered charity in England and Wales (1198938).
🚨 From our Trustee @Daltmann10 - full quote attached:
“Stigmatising the long term disabled with terms such as ‘sicknote culture’ might be taken to indicate a lack of insight into the seriousness of this situation”
#LongCovid
#ResearchLongCovid
#CureLongCovid
Long Covid Support logo and website address www.longcovid.org. A quote that says: “The world must not turn its back on people suffering from Long Covid. Long Covid is a global health crisis. Addressing Long Covid is not only a moral imperative, it is an economic imperative”. Dr. Ziyad Al-Aly, Clinical Epidemiologist, Researcher & Long Covid Support Advisor. #ConfrontLongCovid. Long Covid Support is a registered charity in England and Wales (1198938). Next to the words is an image of the SARS-CoV-2 virus crashing into planet earth.
Words from one of our Advisors, Dr Ziyad Al-Aly:
“The world must not turn its back on people suffering from #LongCovid.
Long Covid is a global health crisis.
Addressing Long Covid is not only a moral imperative, it is an economic imperative.”
#ResearchLongCovid
#CureLongCovd
2/3. #LongCovid treatment trials remain lacking - there are potential therapeutic targets e.g. immune activation, endothelial dysfunction & clotting abnormalities, with interventions including biological agents or anticoagulation.
#ResearchLongCovid
#TreatLongCovid
