Purple flyer with a Janeese Lewis George for DC Mayor logo and smiling photo of JLG in a purple blazer. DISABILITY JUSTICE LISTENING SESSION FRIDAY, APRIL 24, 5-7 PM ONLINE A space for people with disabilities and community members to share their experiences, needs, and ideas RSVP: go-janeesefordc.org/disabilityjustice

DC folks:

Janeese Lewis George @janeese4dc.bsky.social, who is running for Mayor, is having an online disability justice listening session on Friday 4/24. Would be a great opportunity to raise Long Covid, ME/CFS and related issues!

Sign up: www.mobilize.us/janeesefordc...

We've had a lot of questions about why we are leaning into the accessible rallies...this is why.

Our neighbors who are disabled or ~unfit~ according to this evil man are at the front lines of the harm RFK Jr. is causing. When we EMBRACE accessibility and inclusivity, it is an act of resistance.

They are explicitly and specifically targeting people with long covid because, to put it bluntly, there's fuck all else available to us. MAHA decimated long covid research funding and now the grifters are swooping in....

SELF consistently put out some of the best articles on migraine. This is a big loss for that type of exposure and sharing information.

Wise to take it easy (altho I know that’s easier said than done!)

To add, you’re eligible to take the survey whether your MCAS is diagnosed or only suspected!

#NEISvoid

(Alice Wong blasted StoryCorps from beyond the grave at her memorial last month—they wanted her "diverse" stories but didn't want to broadcast any disabled voices on NPR that might make (abled bodied) people "uncomfortable" if they heard a stutter or such... so she started disability visability)

#MCAS folks—

The newly formed International Society for Mast Cell Activation Syndromes has a 10-min survey to learn how they can best serve MCAS patients and caregivers.

Please take it, please share it!

Survey: forms.office.com/e/N4RDJYVep0

Org: ismcas.org

Qs: advocacy@ismcas.org

MassME seeks a consultant with deep expertise in #MECFS advocacy / research / clinical care, 100 hrs now thru EOY

massmecfs.org/get-involved...

So happy to hear you’re finally feeling better! Even “short Covid” really is such a long haul.

We want to talk to anyone in prison who thinks they may have Long COVID, and would appreciate readers sharing this call for sources with any loved ones, friends, or contacts. People in prison have limited access to information, so they may not know much about what Long COVID is. Rather than just asking if someone has Long COVID, you may need to explain that a person might have it if they got COVID-19 and never felt they really got all the way better or if an old health issue got a lot worse after COVID-19. Anyone with ideas for sources should contact reporter October Krausch by May 31 at rebelprof@proton.me If writing from the prison: The Sick Times Attn: October Krausch PO Box 331009 Brooklyn, NY 11233

Reporter @octoberk.bsky.social is working with The Sick Times on an investigation about the experience of #LongCOVID in prison, which will also highlight how people outside of prisons can advocate on this issue.

Former Bachelorette Shares Emotional Health Update: 'Hardly Get Out of Bed' Michelle Young is opening up about her ongoing health journey, sharing a new update with fans after months of symptoms and a recent diagnosis.

Entertainment Now: 'Former Bachelorette Shares Emotional Health Update: ‘Hardly Get Out of Bed’'

'In an Instagram post on April 17, the former “The Bachelorette” lead reflected..opening up about her Dysautonomia diagnosis..specifically POTS..'

entertainmentnow.com/the-bachelor...

A drawing of the U.S. Capitol with Long COVID Campaign logo above it, and Sign on, Senators to #FundLongCOVID underneath, with the message: Sunday Voicemails Plus Emails Equals Change.

📣#LongCOVID Community📣 THANK YOU to the almost 600 folks who've emailed & called their Senators! Sunday emails & voicemails CAN move the Senate on Monday! Senate FY27 #FundLongCOVID "Dear Colleague" deadline extended to Monday AM. @lccampaign.bsky.social free, customizable tools here: 1/x

#TripleTheNIHBudget

May it happen!!!! 🙏🏻🙏🏻

!!!

Man I’m so relieved you’re catching a break on any front, you deserve it!!

And for an hour and a half!! I think it’s tremendous that’s even possible, I would not last 5 consecutive mins—this seems like a VERY encouraging sign to me!!

Omg!!

Iris Long, Scientific Mentor to AIDS Activists, Dies at 92

It’s hard to express how important Iris was to ACT UP’s scientific development. She was the catalyst who started it all. Iris Long, Scientific Mentor to AIDS Activists, Dies at 92 www.nytimes.com/2026/04/17/h...

Exciting update!

The drive to ask Senators to sign a request for Long Covid funding is going so well that the deadline has been extended to Monday—calls and shares this weekend will continue to help!

And 13 Senators have already signed on!

Ask yours to join: tinyurl.com/LongCOVIDCall

There’s a lot of criticism of the Beighton scale for being too limited in focus to capture all the different forms of hypermobility, so yeah that the current model misses some people is plausible to me!

#MECFS

If you have a few spoons, let them know your priorities...

Are you in Boston for #AAI2026? Care about sex differences in immune responses? Join us at MIT this Sunday for an incredible event!

How much longer do we need to let kids sit in poorly ventilated classrooms before we actually do something about this

Also, *we need treatments for Long Covid*

Please help Kimalah stay housed with Long Covid!

Ignore the date in the original post, need has since become much more time-sensitive if I'm understanding correctly

Corporate powers want you to blame school closings (that saved lives!) but it’s really long covid, the disease they cavalierly want you to risk catching all the time

A horizontal white bar with pale teal borders top and bottom carries the legend Health Storytelling Live Author Q&A and bears these images: A book cover with an image of a discarded surgical mask against a blurred landscape and the words AFTER COVID: THE HEALTH IMPACTS THAT WILL LAST GENERATIONS; a dark-haired man in an open-collared blue shirt, author and journalist Jason Gale of Bloomberg News; and a woman with dark auburn hair and a black jacket, journalist and host Maryn McKenna. The rest of the information is in the post text.

It's Friday and therefore time to remind you of an excellent event next week! On Weds 22 April at 6pm US ET, I'll talk to @jasongale.bsky.social of @bloomberg.com about his new book AFTER COVID, sponsored by @emorycshh.bsky.social.
RSVP for livestream links: humanhealth.emory.edu/events/livin...

I'm working on a story for @thesicktimes.org about RECOVER clinical trial results that have been shared so far (from the VITAL, NEURO, and AUTONOMIC studies), and am looking for people in the #LongCOVID and IACC communities to share what they think of the findings. DM or email me!

Study links long COVID in kids to worse grades, attention, and social life

CIDRAP: 'Study links long COVID in kids to worse grades, attention, and social life'

'The findings, drawn from the National Institutes of Health–funded RECOVER observational pediatric cohort, suggest that the impacts..extend beyond physical symptoms...'

www.cidrap.umn.edu/covid-19/stu...