GLP-1 Drugs to Reduce Symptoms in People with ME/CFS and Identify Disease Subgroups YouTube video by SolveME

ICYMI: Watch our webinar with Dr. Carmen Scheibenbogen on her Catalyst Award-winning study on #GLP1 drugs, #MECFS, and subtyping.

youtu.be/v_c3wSmmJeA

Long Covid patient Jeremy and his mother Stephanie, a ME/CFS patient, are pictured. Included is Jeremy's testimonial about how joining Solve's LC-Plan helped him navigate health insurance.

Research is underfunded. Promising studies go unsupported. Families are struggling.

People with #MECFS & #LongCovid need action now—not someday. Solve is here to help.

Support our work with a gift today. All gifts are DOUBLED through April 30th!
https://solvecfs.org/donate/

6/
Deadline: COB Friday, April 17.

5/ Outside the U.S. or low on spoons? You can still help:
Share this thread
Thank @SenMarkey @SenTimKaine @SenDuckworth
Tag friends who can act

4/
How to help (tools built by @LCCampaign, auto-finds your 2 Senators):
📞 Call: tinyurl.com/LongCOVIDCall
📧 Email: tinyurl.com/LongCOVIDEmail
2–3 minutes. The email template is fully editable - please personalize with your story if you have the spoons.

3/
🔬 ARPA-H for high-risk, high-reward LC + associated research
The NIH report language is the piece we've been waiting for. It directs funding to INTERVENTIONAL drug trials, biomarker discovery, and real diagnostic tests plus a required NIH Director briefing to Congress within 180 days.

2/
The letter, led by @LCCampaign, calls for:
💊 $200M at NIH for interventional drug trials, biomarker discovery, diagnostics & therapeutics for Long COVID AND associated conditions (dysautonomia, POTS, ME/CFS)
🏥 $10M at AHRQ for Long COVID Care Network clinics

Urgent call to action urging the Senate to fund over $210 million for Long COVID and ME/CFS research by April 17 deadline.

1/
@SenMarkey, @SenTimKaine, and @SenDuckworth are championing a FY27 “Dear Colleague” letter for $210M+ in #LongCOVID research — and it includes #MECFS, #POTS, and #dysautonomia by name. Deadline is FRIDAY. 🧵

Milken Institute announces the 2026-2027 FasterCures LeadersLink Cohort with portraits of diverse participants in hexagonal frames. Solve CEO Emily Taylor is pictured as one of the new cohort.

We’re proud to announce that Solve CEO Emily Taylor has been selected for the 2026–2027 cohort of FasterCures’ LeadersLink—a leadership program of the Milken Institute focused on accelerating biomedical progress.

Learn more:
https://ow.ly/M0t650YKwxU

Announcement for a webinar on GLP-1 drugs targeting ME/CFS symptom reduction and disease subgroup identification, featuring Dr. Carmen Scheibenbogen, Dr. Sadie Whittaker, and Dr. Jessica Maya.

🚨TODAY @ 8:30 am PT / 11:30 am ET! Join us for a webinar with Dr. Carmen Scheibenbogen, “GLP-1 Drugs to Reduce Symptoms in People with ME/CFS & Identify Disease Subgroups," and learn how her research could help identify biomarkers & treatments. Register:
https://ow.ly/cTSG50YmL8g

Banner for ME/CFS Q&A series featuring a compass on wood and researchers Dr. Gunnar Gottschalk and Dr. Avik Roy from Simmaron Research Institute.

Watch! Dr. Avik Roy & Dr. Gunnar Gottschalk of Simmaron Research Foundation share how six years of work on the molecular mechanisms of #MECFS has led to one of the only ongoing clinical trials specifically designed around a defined biological target.
https://youtu.be/OMmjcTKxivU
#MEAwarenessHour

The Life Improvement Trial - Open Medicine Foundation The Life Improvement Trial (LIFT) investigates the efficacy of Pyridostigmine and Low-Dose Naltrexone (LDN) in ME/CFS patients.

From our friends at the Open Medicine Foundation: The Mestinon/LDN Life Improvement Trial (LIFT) is seeking eligible research participants now within 300 miles of Brigham and Women’s Hospital at Harvard Medical School.

Learn more about the LIFT: https://www.omf.ngo/the-life-improvement-trial/

Announcement for ME/CFS advocacy event with Rebecca Groble testifying before Illinois Senate Public Health Committee from 3-4 PM CT.

Solve community member and advocate Rebecca Groble is testifying about #MECFS at the Illinois Senate Public Health Committee between 3-4:00 CT today.
You can tune in to her testimony here:
https://ilga.gov/Senate/AudioVideo

Call to action urging Congress to increase funding for ME/CFS research and support CDC and NIH programs in FY27.

🚨Deadline is tomorrow!🚨

Tell your Senators to sign the Dear Colleague letter in support of ME/CFS research funding. Contact them by April 15th with our easy-to-use action tool here:
https://solvecfs.quorum.us/campaign/160282/

Call to action urging Congress to increase funding for ME/CFS research and support CDC and NIH programs in FY27.

Tell your Senators to sign the Dear Colleague letter in support of ME/CFS research funding. Contact them by April 15th with our easy-to-use action tool here:
https://solvecfs.quorum.us/campaign/157943/

HER: Health Empowerment Revolution This event is designed to equip you with knowledge, tools, and support to better understand & manage migraine along side other chronic conditions.

Tired of your health conditions being treated separately instead of together? Join experts & community members @ the HER - Women’s Health Conference on May 3rd and learn how to connect the dots in your care. Free! Join in person (Phoenix, AZ) or online.

Sign up: https://ow.ly/BcMt50YGKZy

Graphic showing a $123k matching challenge to advance science, with text encouraging gifts to Solve M.E. in April.

Every day without answers is another day people lose to ME/CFS & Long Covid.

Right now, your gift is DOUBLED to fuel research + advocacy.

Don’t miss this chance to amplify the science: https://solvecfs.org/donate/

#AmplifyTheScience #MECFS #LongCovid #ResearchMatters

Graphic showing a $123k matching challenge to advance science, with text encouraging gifts to Solve M.E. in April.

🚨 Solve M.E.’s 4-week Matching Gift Challenge starts TODAY. Every dollar you give is DOUBLED to accelerate progress for #MECFS & #LongCovid. Millions are still waiting for answers. This is a moment to act.
Donate now: https://solvecfs.org/donate/
#MovingTheScienceForward

Big thanks to @foushee.house.gov for introducing a resolution to recognize March as #LongCovidAwareness Month. Visibility matters!

Thank you message for ME/CFS Advocacy Week 2026 participants highlighting community impact at state and federal levels.

Thank you to everyone who took action during #MECFSAdvocacyWeek 2026.

You helped make sure our community is heard at the state and federal levels this year. More to come.

Call to action for ME/CFS Advocacy Week 2026 urging people to add their name to letters for State Medical Boards and Chief Medical Officers.

Today for #MECFSAdvocacyWeek: add your name to our letters to State Medical Boards and Chief Medical Officers.

Community sign-on: tinyurl.com/StateMedicalBoardForm
Clinicians: tinyurl.com/ClinicianSignOnForm
Share our posts: tinyurl.com/MECFSThursdaySocials

Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.

Today for #MECFSAdvocacyWeek: make your voice heard at the federal level.

Contact your reps: solvecfs.quorum.us/campaign/157943
Share our posts: tinyurl.com/MECFSFederalAdvocacyDay

#MECFS #pwME #MEAwarenessHour

Instructional graphic urging participation in ME/CFS Advocacy Week 2026 by writing a letter to support standardized medical education.

Today's action for #MECFSAdvocacyWeek: write to your state's Patient Safety Agency.

Pre-written template ready. Takes ~20 minutes.

https://canva.link/mecfsquickstartguide

ME/CFS Advocacy Week 2026 invitation encouraging registration to join standardized medical education efforts with Zoom links and action toolkit provided.

📢 ME/CFS Advocacy Week 2026 starts today. It's not too late to join us.

When you register, we'll provide everything you need to take action this week.

tinyurl.com/SolveMEAdvo2026

6 years since pandemic, hundreds of thousands in LA County suffering from effects of long COVID The symptoms vary, but advocates want the Board of Supervisors to create a task force to better understand the condition and its impact.

Before #LongCovid made her too sick to work, Elle Seibert was Solve's Registry Data Manager. Today, she & other advocates are urging the LA Board of Supervisors to create a Long Covid task force. Watch: www.nbclosangeles.com/news/local/la-county-lon...
#LongCovidAwareness

It’s official!

It’s #LongCOVIDAwarenessDay!

Let’s do this!

Trend #LongCOVID #LongCOVIDAwareness

Participate in actions and events at
longhauler-advocacy.org/lcamonth2026

Share your stories.

Follow and elevate others.

Repost, like, engage.

Tag us, and others you want to engage!

A teenage girl with long blond hair is holding her assistance dog - a tan and white spaniel. She is wearing a dark jacket and a blue hat. She is smiling. They are standing with a road in the background.

“Before I got ill I was active and independent"

Molly, aged 17, describes things many people never have to think about, standing up, concentrating, eating, or leaving the house, can suddenly become incredibly difficult.

www.dorsetecho.co.uk/news/2593333...

#LongCovidKids #LongCovidAwareness

“You’re not just becoming disabled,” said Elle Seibert, 31, who has dealt with debilitating fatigue and cardiac symptoms since 2020. “You’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.”

Check out this @latimes.com story that shines a light on the devastating impact of #LongCovid. Thank you, Elle, Lawrence, and Beth, for sharing your stories on #LongCovidAwarenessDay.

Teal and gray ribbon symbolizing Long COVID awareness with logos of Bateman Horne Center, Solve M.E., OMF, and #ME Action above text promoting Long COVID resources.

To honor #LongCOVIDAwarenessDay, @meactnet.bsky.social @solveme.bsky.social @batemanhornecenter.bsky.social & @openmedf.bsky.social once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4
#LongCOVID #pwME