It’s been 5 yrs today since Rivka Solomon was featured on PBS NewsHour, raising awareness about ME/CFS & Long COVID. Advocates like Rivka have worked tirelessly to bring awareness to people newly diagnosed w/ Long COVID, & related diseases. We are #StillSickStillFighting
www.pbs.org/newshour/bri...
Making Invisible Illnesses Visible: Recognizing and Responding to Infection Associated Chronic Conditions — Iskander and Haridopolos From the Office of the U.S. Surgeon General. "Grounds for optimism in this emerging field include calls from public health leaders to break down silos between infectious and chronic conditions, new data and emphasis on IACCI from the Centers for Disease Control and Prevention"
Making Invisible Illnesses Visible: Recognizing and Responding to Infection Associated Chronic Conditions
dx.doi.org/10.1093/cid/...
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs
BAD GRADES & POOR ATTENTION SPAN: School-aged children with long COVID had more than double the risk of decreased academic performance.
www.cidrap.umn.edu/covid-19/stu...
Brought a lump to my throat. You deserve a cure as soon as humanly possible. The neglect must end now.
An important read and totally on the mark. Sadly. Scarily. My big reservation/concern. "The Nazis were defeated". Yeah, but the cost was WWII and tens of millions of lives. And my fear is that registering and voting may not do the trick.
mitchthelawyer.substack.com/p/a-historia...
Lovely
Just signed this for my beloved friend Hollis
Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.
Today advocates are asking Congress to change that - join us! It takes 5 minutes:
https://ow.ly/2hKo50YySls
#MECFS #MEAwarenessHour
Solve M.E. #MEAction Network
Shows a train conductor with a head resembling the head from The Scream by Munch. The conductor is saying "Welcome Aboard” to people with long COVID. The train is labeled the ME/CFS Express, and through the train’s windows, suffering people can be seen. The first long-COVID passenger being helped onto the train has a suitcase labeled "one way". A crowd of people labeled long Covid, including a child, is waiting to board the train.
According to a recent NIH study, 4.5% of the people who have had COVID will meet the diagnostic criteria for ME/CFS. Patients often experience extreme suffering and a drastic reduction in their quality of life. www.nih.gov/news-events/...
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
Announcement for ME/CFS Advocacy Week 2026 from March 23 to 27 with upward arrows and a megaphone graphic. Megaphone in top corner. Solve M.E. logo and MEAction logo under each arrow.
ICYMI!
#MECFS affects millions but is NOT part of standard clinical training.
Advocacy Week (Mar 23–27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams.
Register: https://ow.ly/Tqet50YoPG7
We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.
The guide focuses on 24 medications, but includes a few other interventions for breadth /1
Shows a doctor on the edge of a forest trying to put out a small COVID fire. There is a large fire in the forest behind the doctor labeled "long Covid". A frightened deer runs out of the forest to escape the fire. The deer is labeled ME/CFS. The cartoon shows that while Covid is somewhat less prevalent (though still a dangerous threat), the huge problems of Long Covid and ME/CFS still loom.
March is Long COVID Awareness Month. Please offer support to your stricken friends. @thesicktimes.org @guitarmoog.bsky.social @exceedhergrasp1.bsky.social @chromatowski.bsky.social @emilyrj.bsky.social @thecovidinfoguy.bsky.social @davetuller1.bsky.social @mileswgriffis.bsky.social
PART 1 - What is Long Covid?
Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.
#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport
NIH Director Jay Bhattacharya says patients with ME/CFS, long COVID, vaccine injury and chronic Lyme are often gaslit and told their symptoms are psychological, making them feel crazy. He’s told NIH staff he wants to invest in finding real answers for these conditions.
No one with such bizarre anti-science notions should be in a position of power at HHS. He’s going to cause a lot of death and illness. Impeach him now before it is too late.
Cannot make this shit up.
"During an appearance on Theo Von’s podcast yesterday, Kennedy described why he was determined to keep going to in-person addiction meetings during the pandemic:“I’m not scared of a germ. You know, I used to snort cocaine off of toilet seats.”
Our beloved Sec HHS. OMG.
Today would be a great day to register to vote!
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
I recently spoke with two doctors who graduated from the University of Washington School of Medicine. One recognized the name ME/CFS but knew nothing about it. The other doctor had never heard of it. Do you think the U.of W is failing its doctors by not teaching about ME/CFS?
I hope you get some bit of relief soon. ME/CFS is an awful disease.
These are really scary and unprecedented times. Protesters should consider wearing masks.
Sweden readies one of its largest military aid packages for Ukraine with air defenses, Saab radars and drones
Sweden is preparing one of its largest security assistance packages for Ukraine, including air defense systems and Saab-made radars, along with investments in Ukraine’...
1 - guy lifting his head up from the pillow 2 - guy starting to get out from under the covers 3 - guy grabbing his slippers while sitting on bed 4 - guy putting on a shirt 5 - guy just staring at his feet 6 - partially lays back down
Still doubting our spiral into fascism? Still don't believe in big brother/ICE etc.
Take a look at this:
techcrunch.com/2025/10/16/a...
Shows a caricature of Simon Wessely, a British psychiatrist who believes that ME/CFS is a psychological illness. He has demeaned and damaged very sick patients with his faulty, baseless notions. The graphic shows him with a big cigar in his mouth and a CBT (Cognitive behavioral therapy) label on his shirt.
Nice hat! Hope you will be able to do more soon.
Read this at least twice and better, 5 times. This is not alarmist, melodramatic, conspiracy thinking---this is our reality. Highlights are mine.
Share this with your family and friends and social media before it is too late.
anchorlightpublications.substack.com/p/my-final-p...
@thePotsPostman - half of chronic illness is trying to act like everything is fine. the other half is wishing someone noticed when it isn't.
@thepotspostman
Trump is the most corrupt, money hungry, mafioso, skilled at threats and extortion, that has ever set foot in DC. Read this article and realize the magnitude of conflict. No wonder the rich get richer. Sickening.
www.nytimes.com/interactive/...
