Seedlings in clear plastic pots on a windowsill, overlaid quote about keeping seeds and knowing what to plant.
This is ME: I am a gardener. I keep seeds on my windowsill. I still know exactly what I would plant.”
Your “This is ME” doesn’t need to look like anyone else’s. It only needs to feel like you.
Submit by April 30 → https://bit.ly/3Q4Vy5T
Bateman Horne Center logo with large navy text reading "Not all days look the same"
Symptoms change. Capacity changes.
These tools help communicate what that actually looks like:
• Good Day / Bad Day Questionnaire
• Communication Cards
• Crash Survival Guide
Built to support understanding.
Find these resources freely available at https://bit.ly/4dJIQ6t
Graphic styled as a reminder note pinned to a calendar. A blue sticky note reads: “Reminder – Online Support Group.” Event title: “Who Am I Now? Identity and Chronic Illness.” Date and time: Tuesday, April 21 at 1:00 pm MDT. Background shows a monthly calendar layout, reinforcing the reminder theme. Bateman Horne Center logo appears at the bottom.
When illness changes your life, it can also change how you see yourself.
This Support Group is a space to gently explore identity, meaning, and who you are becoming, alongside others who understand.
Join us Tues, April 21 💙
🔗 https://batemanhornecenter.org/events/
Clinical care guide for managing ME/CFS and Long COVID, A Decade of Expertise offering patient guidance.
Over a decade of clinical expertise, distilled into one guide. BHC’s Clinical Care Guide is a practical roadmap for navigating ME/CFS, Long COVID, fibromyalgia & related conditions. Free to download, free to share. 💙
Download: https://bit.ly/4jScKFu
#MERC @openmedf.bsky.social.
ME/CFS awareness poster with large "This is ME" text, pale blue background, delicate floral accents, "Submit by April 30."
May is ME/CFS Awareness Month. We’re inviting people living with ME/CFS, and those who love them, to share who they are in their own words.
The prompt: This is ME
Submit a short video, audio clip or written reflection by April 30. 🔗 https://bit.ly/3Q4Vy5T
#MECFSAwareness #ThisIsME
Blue slogan: Everything we build, we build for you. Bateman Horne Center logo and tagline at lower-left on pale background.
You shouldn't have to figure this out alone. 💙 We're spotlighting free resources for pw ME/CFS, Long COVID & complex chronic illness - clinically grounded tools to help you navigate, communicate, and advocate. Stay tuned. We're just getting started.
Browse resources: https://bit.ly/4dJIQ6t
Recording with subtitles will be added to our "Coffee" with a Clinician Playlist next week! For now, take a peek at past sessions www.youtube.com/playlist?lis...
"Coffee" with a Clinician is happening now! www.youtube.com/watch?v=MANg...
Graphic with a light background and blue border featuring a coffee cup icon at the top. Text reads: “‘Coffee’ with a Clinician, Wed, Apr 8 | 10 am MDT. Chapter 4: Post-Exertional Malaise, Part 2. 4.3 Screening Questions and 4.4 Screening Tools to Identify PEM. Ryan Bourdo, DPT; Michelle Haddad, PhD; and Zeest Khan, MD.”
What questions help identify post-exertional malaise (PEM)?
Join Coffee with a Clinician: Chapter 4, Part 2 — Screening Questions & Tools. Learn how PEM is identified and what tools help measure function.
Wednesday, April 8 | 10 am MDT
🔗 https://bit.ly/3JCHAFq
Graphic titled “Online Support Group” in blue text. Event details read: Tuesday, April 7 at 1 pm MDT. Subtitle: “Managing Symptoms on a Daily Basis: Hacks and Strategies.” Background image shows a person sitting on a bed with knees pulled up, holding a laptop in front of their face, suggesting a virtual or online setting.
Managing symptoms day to day can feel overwhelming, but you don’t have to do it alone.
This month’s Support Group is a space to share what’s helped, ask questions, and connect with others who understand.
Join us Tuesday, April 7 💙
🔗 https://batemanhornecenter.org/events/
Inspiring to see the next generation contributing thoughtful, patient-centered ideas to improve ME/CFS awareness and care 👏
Graphic titled “Upcoming online events – April 2026” Three events are listed: Tuesday, April 7: Support Group 1:00–2:00 PM MDT, “Managing Symptoms on a Daily Basis: Hacks and Strategies.” Wednesday, April 8: “Coffee with a Clinician” from 10:00-11:00 AM MDT, “Post-Exertional Malaise (PEM) Part 2.” Tuesday, April 21: Support Group from 1:00–2:00 PM MDT, “Who am I Now? Identity and Chronic Illness.” At the bottom: “Register now: batemanhornecenter.org/events.
April can be a full month, so we wanted to give a quick heads up 💙
Our first Support Group and “Coffee” with a Clinician are happening in the same week (Apr 7 & 8), which is a little different than usual.
We hope you’ll join us for connection, learning, and support.
batemanhornecenter.org/events
Graphic with a blue border and the word “UPDATED” at the top. Center panel reads “State-by-State Resource Directory 2026” on a muted green background with simple geometric accents. Bottom text states: “We’ve added more locations: Washington DC & U.S. Territories.
Navigating chronic illness is hard. Finding support shouldn’t be.
Our State-by-State Resource Directory now includes Washington, DC & U.S. Territories, expanding access to trusted resources for ME/CFS, Long COVID, and related conditions.
Explore: https://bit.ly/3ZBBIAC
Graphic titled “March Recaps” with subtitle “A quick look at Support Groups this month.” Design features a soft green background of clover leaves. At the top are tab-style labels reading “Support Groups,” “March 3,” and “March 17.” A white card overlays the background with the main title centered, and a small hand cursor icon appears in the bottom right corner, suggesting clickable or interactive content.
Couldn’t join us in March? We’ve got you 💙
Our Support Group recaps are now available, covering:
• Communicating needs with confidence
• Life stages and aging with ME/CFS or Long COVID
You can always look back and learn from shared experiences here:
🔗 https://bit.ly/4dja6si
Graphic of a desk with a laptop, plant, and pen. Overlaid text reads “New Blog Post is Live!” followed by: “A new NIH/NIAID strategic vision emphasizes post-infectious illness and immune system research, including conditions like ME/CFS and Long COVID, signaling increased federal attention.” A link to batemanhornecenter.org/blog and “nature medicine” appear at the bottom.
A new NIH/NIAID research vision highlights post-infectious illness—including ME/CFS and Long COVID, and the role of the immune system in chronic disease.
It’s an important signal of growing recognition. What might this mean moving forward?
Read more: https://bit.ly/47kH4EN
Long COVID affects ~5.8M children, more than asthma, and is often missed or dismissed.
It’s not just fatigue; it’s loss of function.
This #LongCOVIDAwareness week, we’re sharing resources + education.
Watch full session here: https://youtu.be/no1a1A4tMfw
Graphic with the words “Invisible Illness: Long COVID” overlaid on an image of a person lying down on their side, partially covered by a blanket, suggesting fatigue or rest. The overall tone is subdued, emphasizing the often unseen nature of Long COVID symptoms.
Long COVID is complex, and reliable information matters.
The U.S. Department of Health & Human Services offers resources on symptoms, care, and research:
https://www.hhs.gov/longcovid/index.html
We’ll be sharing trusted Long COVID resources all week for #LongCOVIDAwareness
Blue sticky note pinned to a calendar reading, “Reminder: Online Support Group – ‘Life Stages and Aging with ME/CFS or Long COVID,’ Tuesday, March 17, 1:00 pm MDT,” with Bateman Horne Center logo at the bottom.
How does chronic illness intersect with your current life stage?
Join our March Support Group:
Life Stages & Aging with ME/CFS or Long COVID
Tues, March 17
1:00 pm MDT
Let’s talk about aging, adapting, and growing with chronic illness.
Register: https://batemanhornecenter.org/events/
Graphic promoting Long COVID Awareness Day featuring partner logos from Bateman Horne Center, a DNA-style research logo, Open Medicine Foundation (OMF HOPE), and #MEAction. A teal and gray awareness ribbon labeled “Long COVID” appears beside the text: “Together, we’re highlighting Long COVID resources!” The bottom reads “Long COVID Awareness Day.”
In recognition of #LongCOVIDAwarenessDay, we joined forces with @meactnet.bsky.social @solveme.bsky.social & @openmedf.bsky.social to be #UnitedForME.
We gathered resources from our organizations to inform & empower: https://bit.ly/3Na4mX4
Medical training often teaches a linear model of care: diagnose → treat → cure.
ME/CFS & Long COVID don’t work that way.
Jennifer Bell, FNP-C reflects on the humbling shift of resetting expectations and focusing on supportive care.
Educational content by MERC + @openmedf.bsky.social
Join us tomorrow for “Coffee” with a Clinician
Chapter 4: Post-Exertional Malaise (PEM), Part 1
Key characteristics & pathophysiology of PEM
10:00 am MDT
Free | Optional $5 donation
Zoom + YouTube live
Register:
Table with pictures critical things that may be needed. Food, Hydration, Medicine, Toilet, Bathe, Brush Teeth, Fresh Clothes, Hygiene Wipes, Change Sheets
During a crash, people with ME/CFS may struggle to think, speak, or process information.
Communication cards can help patients point to needs like food, medication, pain, light sensitivity, comfort items, or emergencies.
Download them in our Crash Survival Guide:
bit.ly/44MgSS9
A symptom list doesn’t always show severity.
Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID.
🔗https://bit.ly/3n9foLx
Educational material by #MERC in collaboration with @openmedf.bsky.social
Free self‑paced education for ME/CFS, Long COVID and related conditions, from Bateman Horne Center & Emerge Australia
Through our ongoing partnership with @emergeaustralia.bsky.social, self-paced modules on PEM, pacing, orthostatic intolerance & sleep remain available for those living with ME/CFS & Long COVID.
Accessible. Practical. Built with lived experience + clinical insight.
🔗https://emerge.org.au/lea-ea-bhc/
Chronic illness can change how we communicate.
Join our March Support Group:
Tues, March 3
1:00 pm MST
Topic: Communicating Needs with Confidence
We'll talk about expressing needs, feeling heard, and navigating relationships.
Register: https://batemanhornecenter.org/events/
Green and tan event poster with the Society for Disability Studies logo in the top left. Event takes place March 2 at noon Eastern Time. Deborah Lefkowitz will give a talk titled "Navigating Disability: Living, working, and surviving financially with long COVID." Description reads "Long COVID, described as a 'mass disabling event,' forces millions of Americans to take time off work, work part-time, or leave the workforce altogether. Drawing on her extensive interview data, Deborah Lefkowitz discusses how individuals with long COVID navigate disability within complicated, not always consistent, legal, administrative, and workplace requirements." This event will include a 40-minute talk with a 35-minute Q&A after. Access copies and slides provided, and there will be a 5 minute break midway." On the right is a picture of Deborah, a white woman, smiling, with brown eyes, and wavy, salt-and-pepper hair.
Join us on March 2 at noon Eastern for one of our last events for the spring semester! Deborah Lefkowitz will give a talk on Long COVID and disability. Please email access needs to our admin assistant Gaby at admin@disstudies.org.
Register today at tinyurl.com/r3v5erxr 1/2
Graphic listing Bateman Horne Center’s March 2026 online events, including two support groups and a “Coffee with a Clinician” session, with dates, times (MST), and a link to batemanhornecenter.org/events to register.
March events are open for registration
3/3 Support Group: Communicating Needs with Confidence
3/11 “Coffee” with a Clinician: Key Characteristics & Pathophysiology of PEM
3/17 Support Group: Life Stages & Aging with ME/CFS or Long COVID
Register now: http://batemanhornecenter.org/events
Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.
🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.
Read more here:
https://ow.ly/rlfQ50Yl4yN
Bateman Horne Center cover: how BHC provides complex care today and for the future, with arrow button.
Headline: Depth. Continuity. Time. Body: For every hour face-to-face, our team spends several more hours: • Reviewing histories • Coordinating labs and specialty care • Interpreting complex results • Managing medications
Bateman Horne Center: standard insurance models don't support episodic care; clinic left traditional insurance billing to protect continuity.
No single clinic can meet the global need. Bateman Horne Center: training, open knowledge, practical tools, research.
Complex illness requires depth and continuity. For each hour face-to-face, our small team spends several more coordinating care & reviewing complex results.
We’ve structured care to protect that depth while expanding education and research beyond our clinic walls.
Read more: https://bit.ly/3OuHMZu
What can you expect during a biobank research visit at Bateman Horne Center?
✔️ Provider screening
✔️ Consent review
✔️ Saliva, blood & urine samples
✔️ Supportive research staff
Participant involvement makes this work possible.
Learn more: https://batemanhornecenter.org/research/
