Healthcare loves "profound transformations" of itself, these changes almost never include patients like me though. These "new" models are just a reshuffling of the hierarchal care (paternalist care) that we have always have. #Healthcare #ChronicPain
www.alanbrewington.com/blog/2026/4/...
New post, healthcare is great at reorganizing itself but not including patients. #healthcare #ValueBasedCare #Medx #PatientCenteredCare www.alanbrewington.com/blog/2026/4/...
Enhanced Care models are not transformative, a Collaborative Care model would be. Today's new post is one of my most #Medx based yet, I'm proud of how this turned out. #EnhancedCare #ValueBasedCare #ChronicPain www.alanbrewington.com/blog/2026/4/5/w406spa8fr0uhnhy68dduld83hhauu
Perspective. AI is going to revolutionize medicine. CMS (pre Trump) has shown interest in authorizing new reimbursement models. All great things but my #RheumatoidArthritis flare started last week & is now one of my worst in years. Who is helping my perspective, the now? #ChronicPain #PainAwareness
At some point in time, most of us will be a #caregiver to a parent, grandparent, or love one. This was not easy to write, it definitely pushed my vulnerability limit. Hopefully my experience can help someone else. #Healthcare #ChronicPain www.alanbrewington.com/blog/2025/6/...
Today I wrote about the realities of #Caregiving. This is a pretty vulnerable look at my experiences with dad before he passed. #FathersDay #Healthcare www.alanbrewington.com/blog/2025/6/15/sur8twvv8lh2m1durzk7v9tl06zrgc
New Post - Talking about the art and challenge of patient storytelling in today’s world. #MedSky #ChronicPain #Rheum #PatientsUseAI www.alanbrewington.com/blog/2025/5/...
New Post-Patient Storytelling. #RheumChampion #ChronicPain #Rheum #Healthcare www.alanbrewington.com/blog/2025/5/31/kuwolfsy00aez28ir3ocqv8z7ruxoq
Guess what, I have an another new post to share. That's 2 in a little over a week. Today's post is about redefining what it means to be a patient using my #ChronicPain and #RheumatoidArthritis as an example. #MedSky www.alanbrewington.com/blog/2025/5/25/rlibnfe909sxo6jts9fbq5a5jdc5n0
If you support #Trump and his so-called "big, beautiful bill" you are NOT in anyway shape or form pro-life at all. This bill takes away health care and food away from millions of citizens, largely kids, in order to protect those who have an abundance. #BigBeautifulBill #IDPol
“I felt the need to respond since #exercise is a big part of my #success as a patient..posts..that criticize #patients like me who #advocate for exercise r denying my right to treat the ridiculousness [of #ChronicIllness]..on my own terms”: buff.ly/8DavrjX
by @abrewi3010.bsky.social
Thanks for sharing!
Work requirements for #Medicaid are cruel and will cause deaths. Kicking some 14 million off their insurance will cause death. #Trumps big beautiful bill is cruel and will cause deaths. #IDPol #Healthcare #ChronicPain
If your interested I have a new post out! #medsky #chronicpain
New Post - Exercise doesn't make me an #Ableist, I lift therefore I limp (and that's ok). #ChronicPain #Rheum #RheumatoidArthritis #Share www.alanbrewington.com/blog/2025/5/18/qesjzcoje1rfs3l4slq5hiucp9b0ew
May is #arthritisawareness month. If you have any ?'s about the 120 different types of #arthritis of which some 80 are autoimmune based, please ask. For patient advocates like me, answering questions is the best advocacy. This is a ridiculous disease which affects each differently. #Medsky #Share
How are patient advocates, like myself, supposed to advocate with leaders like this? I understand & agree that the us vs them tactic doesn't work but RFK Jr and company are almost forcing us into that game. #Medsky #RheumatoidArthritis #ChronicPain #PatientsUseAI
Saw a clip of RFK Jr claiming he has never heard of rheumatoid arthritis, lupus, Crohn's, or any other autoimmune disease. Is he really that ignorant? This is not a great time to be a chronic patient, apparently everything is my fault. #Medsky #RheumatoidArthritis #ChronicPain
I'm concerned that the current administration is going to turn #Medicaid into a big business administration. The purpose will be to give business loans & socialize healthcare losses, it won't be about the patient or person anymore. #BlueSky #Healthcare.
“Quality of life applies to #caregivers too, especially when discussing #EndOfLife type issues. #Dad was a huge #advocate for this idea. He understood better than most that the only true metric in #healthcare should be #QualityOfLife.”: buff.ly/ssX1rgA
by @abrewi3010.bsky.social
Tell your doctor a complete picture of your life & not just the negative. This turns the visit into a human interaction instead of just a clinical experience. #Medsky #ChronicPain
What do you want to know about treating and living with #ChronicPain? What do you want to know about utilizing #Opioids as part of a pain management plan? How might we (meaning patients like me) increase your knowledge, understanding, or & empathy about chronic pain? #Medsky #Healthcare
“Since #nudity is such a #taboo subject coupled with the weirdness of having that many drugs running through your system at once, it is easy to forget this one small, yet surreal experience of #surgery ": buff.ly/43hxGjN
by @abrewi3010.bsky.social
#ChronicIllness #patients
Thanks for the signal boost!
In today’s adventure with #chronicpain I began the day by slowly driving over a speed bump that sent massive amounts of pain thru my neck. Neck feels somewhat better but that trauma set off my #rheumatoidarthritis. This is common if you are not familiar. #Medsky
Just like you can support the men and women of the armed forces and think the orange one isn't qualified to run a lemonade stand, its important to realize the same goes for employees of government agencies. Government workers are dedicated & hard working, it's time to stand with them! #IDPol #Medsky
I’d be 20 years younger if health insurance companies did not exist! #Medsky
I must admit, ever since my type 2 diabetes diagnosis I’ve started to lose Diet Coke. It tastes great and is lighter than regular coke. #medsky #diabetes
Here's an advance directive I hadn't thought about before @taylorcoffman.bsky.social wrote this: taylorcoffman.substack.com/p/illness-an...
Trump, RFK Jr, & Musk firing so many at HHS is not about improving patient centered care, it's about their politics. More specifically, it's about their politics of capitalism. It's paternalism with a profit motive. #ChronicPain #MedSky